Blood Cancers & Disorders Support Group

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Comments (897)

I was treated twice with rituxan only for spleen related pain in 2016. I had frequent...

https://connect.mayoclinic.org/comment/165736/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

Hi @abide, in addition to the helpful information from @fortunateoldguy, I'm tagging other CLL members like...

https://connect.mayoclinic.org/comment/1094097/

Discussion: Anybody on Treatment for CLL? What kind of treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

I was diagnosed with CLL/SLL 14 months ago, since that time, (my lymphocytes were 4500 when...

https://connect.mayoclinic.org/comment/841749/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2023

@carrnv42 Hi, I was diagnosed May'24 and I've been on Z ever since. I haven't noticed...

https://connect.mayoclinic.org/comment/1452465/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2025

Still alive!!! Happy New Year Colleen! I'm still on Venclexta and still wondering if it is...

https://connect.mayoclinic.org/comment/671166/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2022

My CLL was treated with Obinutuzumab and Venclexta starting 8/2024. Got through the 6 months of...

https://connect.mayoclinic.org/comment/1430578/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2025

I recently saw my oncologist for my once a year checkup. After eight years I'm still...

https://connect.mayoclinic.org/comment/1312281/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

For many years, we have had the mindset of early detection/early treatment for cancer instilled in...

https://connect.mayoclinic.org/comment/1282722/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2025

My bone marrow showed I am 90% trashed out with my cll. She says I have...

https://connect.mayoclinic.org/comment/633844/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2021

Hmmm.. I was diagnosed with CLL after my PCP referred me to a hematologist/oncologist following an...

https://connect.mayoclinic.org/comment/1323150/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2025

Hi arooney33 - I also was just diagnosed with CLL. I also have a dry cough...

https://connect.mayoclinic.org/comment/1354098/

Discussion: Newly diagnosed with chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

I have had CLL since 1996 and rules may have changed, but my first hematologist did...

https://connect.mayoclinic.org/comment/1127333/

Discussion: CLL and immunization experience

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

I am having blood work this week in preparation for my visit with my oncologist next...

https://connect.mayoclinic.org/comment/864408/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2023

Yes, unfortunately, CLL is tough to permanently beat. I also recently learned that there are 200...

https://connect.mayoclinic.org/comment/1014590/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Good morning, @gardeningjunkie You definitely have a garden fairy on your shoulder and must be over-the-moon...

https://connect.mayoclinic.org/comment/944020/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

It seems to me Rituximab may be the miracle drug. I have CLL/SLL and pyoderma gangrenosum...

https://connect.mayoclinic.org/comment/1348927/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

Welcome @dmiles. I moved your post to the Blood Cancers & Disorders Support Group here https://connect.mayoclinic.org/group/blood-cancers-disorders/...

https://connect.mayoclinic.org/comment/799989/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Hi @learnknowgrow. I love your @name…I agree, knowledge is power. There is comfort in being prepared...

https://connect.mayoclinic.org/comment/1161207/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

I was diagnosed with CLL when I was 68 and was kept under surveillance until last...

https://connect.mayoclinic.org/comment/113623/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2018

Thank you for this reply, @nana120, https://connect.mayoclinic.org/comment/1294132/ I think it’s exactly the type of positive and...

https://connect.mayoclinic.org/comment/1294311/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 1, 2025