Blood Cancers & Disorders Support Group

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Comments (1,465)

I’m with you, don’t get much from hematologist, just that she will do labs every 6...

https://connect.mayoclinic.org/comment/913929/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Hi. I was just diagnosed with MGUS and am having a lot of anxiety. Could you...

https://connect.mayoclinic.org/comment/1111938/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 26 1:22am

Yes; it’s perplexing and almost like a weird form of punishment! I’m being facetious here, but...

https://connect.mayoclinic.org/comment/886255/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

I am being monitored yearly for MGUS and possibly coincidentally I am osteoporotic in my femur...

https://connect.mayoclinic.org/comment/698850/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2022

Hi all, I was diagnosed with MGUS three and a half years ago by a neurologist...

https://connect.mayoclinic.org/comment/895052/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

You are, of course, overwhelmed by being referred to an oncologist. Probably by all the medical...

https://connect.mayoclinic.org/comment/904488/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2023

My neuropathy hasn't progressed in the last 8 years. It is mostly minor loss of feeling...

https://connect.mayoclinic.org/comment/991229/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 9:00am

@katytx Welcome to Mayo Clinic Connect. The story you related has many of us nodding in...

https://connect.mayoclinic.org/comment/871259/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

I have low blood sugar (hypoglycemia), but have had it for at least 40 years --...

https://connect.mayoclinic.org/comment/880786/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

My MGUS was an incidental finding about ten years ago. I have labs and a hematologist...

https://connect.mayoclinic.org/comment/626219/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2021

@lizzyr1114 hello! I think blood disorders in general are pretty much out of the purvey of...

https://connect.mayoclinic.org/comment/987158/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

@tallyteresa My MGUS/myeloma journey started when a new nephrologist recognized concerning blood results. Apparently, they had...

https://connect.mayoclinic.org/comment/793950/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Hi, @pmm - what to do if the hematologists/oncologists at your clinic "don't treat MGUS"? I...

https://connect.mayoclinic.org/comment/987303/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

@quarksunite I recently read a letter from the VA that my friends husband received. MGUS is...

https://connect.mayoclinic.org/comment/814053/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

I wish I could say that diet stopped James from getting myeloma, but he was actually...

https://connect.mayoclinic.org/comment/626093/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2021

Hi, Thank you for your postings. I also have MGUS (M-spike protein 0.4) and neuropathy in...

https://connect.mayoclinic.org/comment/754086/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

I am new on this. I have diagnosed with MGUS and iron deficiency and cud stage...

https://connect.mayoclinic.org/comment/856133/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

@pcb, I added this discussion to the Endocrine System sypport group as well. @irhon79 has mentioned...

https://connect.mayoclinic.org/comment/852206/

Discussion: Atrophic thyroid, has anyone dealt with this?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

I only wish I had second opinion the va won't pay for second opinions so I'm...

https://connect.mayoclinic.org/comment/875723/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Hi patty thanks for getting back they did routine blood test on me they were looking...

https://connect.mayoclinic.org/comment/977553/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2023