Blood Cancers & Disorders Support Group

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Comments (1,895)

Hello @rayofhope I love your @name. It’s important to always have hope. Believe me I understand...

https://connect.mayoclinic.org/comment/839405/

Discussion: MGUS to myeloma: How can it be detected sooner?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

@jnet116 welcome to Mayo Clinic Connect. We're you diagnosed with MGUS or multiple myeloma? What treatment...

https://connect.mayoclinic.org/comment/1148933/

Discussion: Lenolidamide and Ixazomib

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

International Myeloma Foundation has great information on labs, MGUS etc. worth following up with that! They...

https://connect.mayoclinic.org/comment/1144850/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2024

Hope your holidays were wonderful and that 2023 is off to a great start for you!!...

https://connect.mayoclinic.org/comment/793797/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2023

I was diagnosed with MGUS in 2005 after my father passed away from MM. I was...

https://connect.mayoclinic.org/comment/81204/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2019

I would get care at Mayo. Their myeloma doctors are the experts. I have MGUS and...

https://connect.mayoclinic.org/comment/1232245/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 8 11:58am

I was just diagnosed with MGUS. Does anyone know if there is any treatment to help...

https://connect.mayoclinic.org/comment/1111936/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

I have MGUS, diagnosed about 4 years ago, now I have also been diagnosed with Amyloidosis....

https://connect.mayoclinic.org/comment/1100049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Good morning. I was diagnosed with MGUS IgM Kappa with a small fiber neuropathy in 2012....

https://connect.mayoclinic.org/comment/943970/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

I’m totally in the dark with this mgus and kappa light chain stuff. It was picked...

https://connect.mayoclinic.org/comment/929893/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

I'm 70 and my Kappa is about 300 and Kappa/Lambda is 29. Still in the asymptomatic...

https://connect.mayoclinic.org/comment/1175389/

Discussion: Kappa light chains: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2024

My two cents: Personally, yes to occasional vertigo, ongoing mild neuropathy, and I fight the fatigue....

https://connect.mayoclinic.org/comment/1019615/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

I, too, have MGUS and neuropathy. I was diagnosed with MGUS in 2014, so ten years...

https://connect.mayoclinic.org/comment/991427/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2024

Hello Red7, Since posting my original diet question to the MGUS group- I’ve spent many hours...

https://connect.mayoclinic.org/comment/654615/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

I was just diagnosed with MGUS, low risk, IGG type. Two questions!!! 1) Can the feeling...

https://connect.mayoclinic.org/comment/1164116/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024

@cdeldeo MGUS is usually a "watch and monitor" treatment plan. That is, bloodwork is done every...

https://connect.mayoclinic.org/comment/1018185/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

I have IgA lambda MGUS. Has anyone been able to find out anything about it? I...

https://connect.mayoclinic.org/comment/846550/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

@nolarn Welcome to Mayo Clinic Connect! So many of us who are diagnosed with MGUS find...

https://connect.mayoclinic.org/comment/777355/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

Hello Nick, welcome to the MGUS forum. I think you perfectly describe the reaction we all...

https://connect.mayoclinic.org/comment/939342/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

@4kleo I’m circling back and reading some posts I missed. First let me say that I’m...

https://connect.mayoclinic.org/comment/1195548/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024