Blood Cancers & Disorders Support Group

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Comments (2,233)

Good luck on that. I used to think doctors were like research scientists, and some are,...

https://connect.mayoclinic.org/comment/991688/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

I was diagnosed with MGUS over 14 years ago, DURING routine preop physical. Lab values are...

https://connect.mayoclinic.org/comment/739472/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2022

It would be good to check with you PCD and a neurologist on this. Neuropathy can...

https://connect.mayoclinic.org/comment/1238040/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2025

MGUS is considered asymptomatic. If you have excessive fatigue then it would be good for doctors...

https://connect.mayoclinic.org/comment/1189851/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024

Best wishes to you as well. My GfR varies around 50. MGUS is more common with...

https://connect.mayoclinic.org/comment/1188654/

Discussion: I have polycythemia: Your thoughts on new test results?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2024

Yep, have that DX after bone marrow biopsy. Prior was just MGUS, but no treatment yet....

https://connect.mayoclinic.org/comment/1082708/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024

Thank you for your response. I was born and raised in San Diego but moved to...

https://connect.mayoclinic.org/comment/1179778/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

You can have FLC in urine and not blood. This can happen early on. It’s helpful...

https://connect.mayoclinic.org/comment/1073580/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2024

Hi @canadabob. This informational article from verywellhealth.com may help give you a better understanding of MGUS...

https://connect.mayoclinic.org/comment/971601/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2023

Acanadabob I typed out a reply and then it got lost in the etherworld! Go figure....

https://connect.mayoclinic.org/comment/895243/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

I’ve never heard of MGUS but search for “Behçet’s” (beh-chetz{sounds like Chet Atkins}). Also, it wouldn’t...

https://connect.mayoclinic.org/comment/940753/

Discussion: Recurring severe mouth ulcers and MGUS

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Hi Susan, Sorry I don’t have any information either. I would like to know if anything...

https://connect.mayoclinic.org/comment/707269/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2022

At age 47 and after 7 years of being monitored closely I now have IgG Kappa...

https://connect.mayoclinic.org/comment/1263673/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

I’m no doctor but your numbers are similar to mine and I was diagnosed with MGUS....

https://connect.mayoclinic.org/comment/1181048/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

@nan77 Yes, welcome. I don’t know about your insurance coverage, but when I was diagnosed with...

https://connect.mayoclinic.org/comment/1077457/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2024

Hi Debra @oldladydebra1 , welcome to the forum. There are many people living with MGUS here...

https://connect.mayoclinic.org/comment/992118/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

@loribmt also in googling my blood test results showed probability dx of either Waldenström macroglobulinemia (WM)...

https://connect.mayoclinic.org/comment/1435921/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

I had some large wbc's and the specialists say they r related to multiple myeloma. However...

https://connect.mayoclinic.org/comment/1365715/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Greetings, nothing I have read on MGUS connects dots between the COVID vaccines and MGUS. I’ll...

https://connect.mayoclinic.org/comment/824352/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

I am 45 years old, and I was diagnosed with MGUS September of last year. At...

https://connect.mayoclinic.org/comment/1053258/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024