Blood Cancers & Disorders Support Group

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Comments (550)

I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I...

https://connect.mayoclinic.org/comment/1275379/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2025

Oh thank you so much🙏. Wow 13 biopsies,What a great fierce fighter you are !❤️ Yeah...

https://connect.mayoclinic.org/comment/1022596/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Thanks for sharing your story I was diagnosed at 39 and was put on HU and...

https://connect.mayoclinic.org/comment/1354755/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2025

I was very hesitant to begin taking hydroxyurea when I was diagnosed with ET. At my...

https://connect.mayoclinic.org/comment/1277310/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

I am sorry that you are not doing well . I have myelofibtosis and still on...

https://connect.mayoclinic.org/comment/1251826/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Has anybody had any eye issues with?myelofibrosi?

https://connect.mayoclinic.org/comment/1164296/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024

Hi @wellness3070, Unfortunately, research shows that muscle weakness can be one of the side effects; however,...

https://connect.mayoclinic.org/comment/132605/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

I was recently diagnosed with Mylofibrosis also. My hematologist has recommended that I have a Stem...

https://connect.mayoclinic.org/comment/1103286/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

I took Vonjo for my enlarged spleen which was seconday to my myelodysplasia with myeloftbrosis. Really...

https://connect.mayoclinic.org/comment/1082842/

Discussion: My mother diagnosed with Myelofibrosis: Episodes of abdominal pain

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

I worked for 40 + years in Cytogenetics. In our field chromosomes are listed as “normal”...

https://connect.mayoclinic.org/comment/1074264/

Discussion: Chromosomes positive

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

I just went from blood work monthly to every three months. I think either God is...

https://connect.mayoclinic.org/comment/986088/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were...

https://connect.mayoclinic.org/comment/795740/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Myleofibrosis turned into LeukemiaAny survivors ? Share your story with me

https://connect.mayoclinic.org/comment/1430263/

Discussion: When to start worrying about blast percentage changes?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Are you seeing a hematologist? You should be seeing a specialist to get the best information....

https://connect.mayoclinic.org/comment/1362239/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025

Just so we're all on the same page, here's what yr referencing: Cytoreductive treatment with hydroxyurea...

https://connect.mayoclinic.org/comment/1297950/

Discussion: What’s the cost of Pegasys with good commercial insurance?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2025

I had this for years. Scopes, turned up nothing. I finally got a hemotologist to look...

https://connect.mayoclinic.org/comment/1296301/

Discussion: Is this considered Anemia ?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Some symptoms have included fatigue, suseptability to infections, minor bruising , anemia, and frequent pre cancer...

https://connect.mayoclinic.org/comment/50534/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

I was treated for high platelets for years,About three years I was diagnosed with myelofibroma by...

https://connect.mayoclinic.org/comment/132601/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2017

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