Blood Cancers & Disorders Support Group

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Comments (847)

My husband was diagnosed with MDS about 8 months ago. Just had another biopsy to make...

https://connect.mayoclinic.org/comment/932918/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2023

I read several studies on BCMA levels and MGUS progression. sBCMA levels were noticed to increase...

https://connect.mayoclinic.org/comment/672449/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2022

Hello @dell060969, I apologize for the delay in my response. I would like to invite a...

https://connect.mayoclinic.org/comment/165777/

Discussion: has anybody used epoetin alfa (Procrit)

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2017

My husband has MDS. After several cycles of vidaza he was experiencing platelet counts in the...

https://connect.mayoclinic.org/comment/1090187/

Discussion: Has anyone had a low platelet count of just 1?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

@chzuck I would demand a repeat of the blood work in 90 days. If values are...

https://connect.mayoclinic.org/comment/1102819/

Discussion: Blood Test Results Concerning

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Honestly, if you told my husband his MDS was back I’m not sure what he would...

https://connect.mayoclinic.org/comment/980220/

Discussion: Relapsed AML: Anyone choosing no treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I was very fortunate. I was diagnosed with MDS in 2019 and only needed one transfusion...

https://connect.mayoclinic.org/comment/928051/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Oooooo that’s a good hematologyst question an lab reports an history you know ur body better...

https://connect.mayoclinic.org/comment/782544/

Discussion: Iron Deficiency Anemia: At what ferritin level do you get infusions?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Have you filed a lawsuit claim with the VA yet? You may be entitled to medical...

https://connect.mayoclinic.org/comment/194353/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2020

Healthy64. The best part of your story is what hospital you are at and you advocating...

https://connect.mayoclinic.org/comment/1222627/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 9:14pm

Thank you everyone. I have CCUS or MDS. I am not entirely sure, but we are...

https://connect.mayoclinic.org/comment/1086927/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

I was diagnosed in July with MDS, but low Neutrophils counts and high blood cells volume...

https://connect.mayoclinic.org/comment/996239/

Discussion: Long awaited Drug for myelofibrosis (MF) has been released

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

I am on Hydro 500 mg, twice a day. Also Anagrelide HCL at 0.5 mg. These...

https://connect.mayoclinic.org/comment/798411/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

I'm sorry to hear that you haven't shared this diagnosis with your children. I think perhaps...

https://connect.mayoclinic.org/comment/755895/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

I also was recently diagnosed with aplastic anemia, but was told that it was likely age...

https://connect.mayoclinic.org/comment/848839/

Discussion: Aplastic Anemia and vaccine influences

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Did they do a molecular panel to determine which genes have mutated? The reason I ask...

https://connect.mayoclinic.org/comment/194333/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2019

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

Also looking for Rytelo information. It’s so new we may not get much for experience on...

https://connect.mayoclinic.org/comment/1199195/

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

I was diagnosed with MDS IB2 March 2024 age 76. I was told by my hematologist...

https://connect.mayoclinic.org/comment/1265906/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 24 2:29pm

Brenda, I moved your recent post to your existing discussion about living with MDS (myelodysplastic syndromes)....

https://connect.mayoclinic.org/comment/953178/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023