Blood Cancers & Disorders: Discussions | Page 1

Thank you for responding back to me. I started out with a Hematologist that said I...

https://connect.mayoclinic.org/comment/761323/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

It depends on a number of things on what comes next. In hindsight i may have...

https://connect.mayoclinic.org/comment/1249796/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 3 7:20pm

I’m not sure about that, but I don’t get tired or have fatigue. I do work...

https://connect.mayoclinic.org/comment/1259061/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 12:55am

I don't have a local hematologist-oncologist. I don't know if they have estimated the risk for...

https://connect.mayoclinic.org/comment/1136610/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2024

There's some research that indicates that the driver mutation can be detected years or even decades...

https://connect.mayoclinic.org/comment/893249/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Bonnieshaffer. So, you have not had a bone marrow transplant? If not, more testing is likely...

https://connect.mayoclinic.org/comment/1112786/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Katgob, you are amazing and your recovery is stellar, I’d say! You were wise in pursuing...

https://connect.mayoclinic.org/comment/1085441/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 12, 2024

I got my bone marrow aspiration & bone biopsy Nov 1st. I just got back the...

https://connect.mayoclinic.org/comment/777892/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Good morning, Well I have been diagnosed by Mayo Drs this week and it turns out...

https://connect.mayoclinic.org/comment/764026/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

Hi Lori, Do you know of anyone who has AML with the mutation RPN1(GATA2)MECOM fusion, inv(3)?...

https://connect.mayoclinic.org/comment/1156671/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

I had high monocytes for a number of years and then low platelettes (not terribly) and...

https://connect.mayoclinic.org/comment/1031603/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Anne-Marie, My husband was diagnosed with MDS last October and same thing, was told it was...

https://connect.mayoclinic.org/comment/962328/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

I take a 500mg Hydrea tablet 5 days per week and two 500mg tablets on Tuesdays...

https://connect.mayoclinic.org/comment/863227/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 20, 2023

Good morning, Jacklyn. I think the medication you’re referring to is Azacitidine (Vidaza). There are two...

https://connect.mayoclinic.org/comment/1098464/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Thank you. In Australia our government Pharmaceutical Benefits Scheme will subsidise lenalidomide for someone with MDS...

https://connect.mayoclinic.org/comment/1159692/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

I was in Mayo yesterday getting my Bone Marrow aspiration. I really don't have any firm...

https://connect.mayoclinic.org/comment/768432/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2022

Good Morning all, yep the wait and watch can be unnerving but it is not a...

https://connect.mayoclinic.org/comment/1242808/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 8:19am

My husband was diagnosed with MDS in October, 2023. It is high risk; close to AML....

https://connect.mayoclinic.org/comment/1264743/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 9:39am

Sally, I had my transplant with a 10/10 donor in April. My hair had just hit...

https://connect.mayoclinic.org/comment/1223489/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 28 12:14am

I’d like to ask any of you if you’ve had this happen. I apologize for not...

https://connect.mayoclinic.org/comment/1172169/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Blood Cancers & Disorders Support Group