Blood Cancers & Disorders Support Group

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Comments (1,035)

Where do you get your energy? 😅 Working with 3-5 year olds would drain me completely...

https://connect.mayoclinic.org/comment/1259235/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

I will be having a BMT in a few months for MDS. Is there any advice...

https://connect.mayoclinic.org/comment/1001115/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 21, 2024

I also have MDS/MPN with RS and T. My platelets shot up to 1,100 in March....

https://connect.mayoclinic.org/comment/863279/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 20, 2023

@mydadhas2024, you are asking a lot of great questions. I know this can be very confusing...

https://connect.mayoclinic.org/comment/1290898/

Discussion: MPNs - I have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2025

@mjpm2406 the only mutation I can relate to at this point is the newly found SF3B1...

https://connect.mayoclinic.org/comment/1551301/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 2:31pm

Hi sue, Thankyou for your reply. I have had MDS for about 18 months, my specialist...

https://connect.mayoclinic.org/comment/755789/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2022

@asarnesejr I was diagnosed with MDs in Nov 2020. I have similar numbers. Platelets as low...

https://connect.mayoclinic.org/comment/1442966/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2025

I had a platelet count of 847,000 a d was told I had ET and was...

https://connect.mayoclinic.org/comment/252023/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2019

Good morning, @kgerbitz Myelodyplastic syndrome is a group of blood disorders that can occur when the...

https://connect.mayoclinic.org/comment/856307/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Hi. I saw your post on FB too, and believe me, I know how you feel....

https://connect.mayoclinic.org/comment/1402529/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

Welcome to Connect, @cancerwarrior. There are quite a few conversations in the forum for situations just...

https://connect.mayoclinic.org/comment/1015517/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2024

Lindak123, I don’t know anything about MDS, but I do know that stress causes physical damage!...

https://connect.mayoclinic.org/comment/1479009/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Jan 10 2:15pm

Diagnosed in may 2023 with MDS/AML blasts of 26% forced me into hospital for first treatment...

https://connect.mayoclinic.org/comment/1206679/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

Hi Golddust Have you put hemochromatosis in the search bar above? I was a platelet donor...

https://connect.mayoclinic.org/comment/1421201/

Discussion: Anyone have MDS + Hemochromatosis? Who specializes in both?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

My mom is soon to be 88 with MDS, diagnosed 5-6 months ago… she is choosing...

https://connect.mayoclinic.org/comment/1266406/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025

I have mds... leukocytosis and have been taking ydroxyurea since sept.of 2003 to keep my white...

https://connect.mayoclinic.org/comment/50501/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2011

Thanks @katgob. The second link article does show a strong connection between anemia and cognitive decline....

https://connect.mayoclinic.org/comment/1202026/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

@shels93, You’re most certainly not a hypochondriac. You saw the urgency in your husband’s condition and...

https://connect.mayoclinic.org/comment/758623/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2022

Hi I am new to this site, but I was diagnosed with MDS, specifically RARS in...

https://connect.mayoclinic.org/comment/253117/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

My husband had low white counts since 2017 and we had no idea about MGUS and...

https://connect.mayoclinic.org/comment/962551/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023