Blood Cancers & Disorders Support Group

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Comments (951)

My platelets numbers were similar to yours in January, plus blood work identified a Jak2 mutation....

https://connect.mayoclinic.org/comment/988747/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

My brother and I both have the mutation courtesy of the JAK2 which resulted in no...

https://connect.mayoclinic.org/comment/1047855/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

I have ET with JAK2 mutation. It took 22 weeks taking 500mg HU once daily to...

https://connect.mayoclinic.org/comment/1036856/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

I was diagnosed with MDS in 2021. In March 2023 my platelets shot up to over...

https://connect.mayoclinic.org/comment/846781/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

My Polycythemia Vera and JAK2 positive test and diagnosis was on Nov. 25, 2022. After starting...

https://connect.mayoclinic.org/comment/803537/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

I am 71 yo female, reasonably active, recently diagnosed with Jak2, with platelets rising to 750...

https://connect.mayoclinic.org/comment/887265/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

You may find that despite having the JAK2 mutation, your life may not be any noticeably...

https://connect.mayoclinic.org/comment/194269/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

I was diagnosed PV in April ‘22, with JAK2 gene. Bloodlettings and Hydroxurea were prescribed. The...

https://connect.mayoclinic.org/comment/793807/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Hi @tokyolin, I am following up on Lori’s comments to you. I was diagnosed a year...

https://connect.mayoclinic.org/comment/882028/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

I’m 57 Jak2+ with PV and no other risks factors for clotting thus far so that’s...

https://connect.mayoclinic.org/comment/1025967/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Hi Kevin -- Recently diagnosed with ET with numbers close to yours. Have you had genetic...

https://connect.mayoclinic.org/comment/1039634/

Discussion: Im 64 and my blood platelets have been in the low 530-550 range for yr

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

The more research I do regarding my wife (Becky’s) ET diagnosis the more I’m wondering about...

https://connect.mayoclinic.org/comment/1154205/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

Hi, I've been following along, interested because I've had ET w/Jak2 for almost 2 years. Earlier...

https://connect.mayoclinic.org/comment/1174348/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2024

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

My experience was the best possible. I arrived, was put in a gown, and given a...

https://connect.mayoclinic.org/comment/1166063/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

My husband was just told by the hematologist he was referred to that he has Jak2...

https://connect.mayoclinic.org/comment/328590/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

@misty45 Thank you so very much for sharing your ET experience. My daughter ( age 39)...

https://connect.mayoclinic.org/comment/194272/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

I’m 56 and started in Nov with one pill a day. When I reached 842 that...

https://connect.mayoclinic.org/comment/1014323/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Good morning, @paisleyshakell. From my personal experience of having an aggressive form of leukemia with three...

https://connect.mayoclinic.org/comment/1122731/

Discussion: Thrombocythemia JAK2 - is it ok to have an MRI with dye?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

Slightly different scenario but thought I'd pass it along. My 72 year old wife had a...

https://connect.mayoclinic.org/comment/1200307/

Discussion: Has anyone had a total knee replacement that also has JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2024