Blood Cancers & Disorders Support Group

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Comments (1,104)

The WHO has designated ET with Jak2 is a chronic cancer. And HU is considered chemo,...

https://connect.mayoclinic.org/comment/901372/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

In the same boat. JAK2 negative. Now what? My stress and worry are getting the best...

https://connect.mayoclinic.org/comment/886799/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Jun 28, 2023

I met with new oncologist/hema this week. I will be getting a bone marrow biopsy, as...

https://connect.mayoclinic.org/comment/651545/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2021

Hello, many people choose not to have the bone marrow test. PV can be diagnosed solely...

https://connect.mayoclinic.org/comment/1156731/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2024

I have read the risks for AML with ET. It is low, but can happen. One...

https://connect.mayoclinic.org/comment/1022379/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

HU is short for hydroxyurea or Hydrea. It is in pill form and suppresses blood cells,...

https://connect.mayoclinic.org/comment/252000/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2019

Hello, dear people....good to meet you.... I'm newly diagnosed PV...and just trying to navigate all this....

https://connect.mayoclinic.org/comment/858478/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

Sorry for the delayed response, yes…tested for 25 mutations…I have 8.. including Jak2 and ASXL1 but...

https://connect.mayoclinic.org/comment/656013/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2021

Hi just a quick update on my treatment, I was diagnosed with two mutt Jak2 and...

https://connect.mayoclinic.org/comment/1347124/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

Hi @jola13 Headaches are so miserable and it sounds like you have a doozy. I looked...

https://connect.mayoclinic.org/comment/896933/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

A quick synopsis of my situation… In late 2020 I felt a minor dizziness and my...

https://connect.mayoclinic.org/comment/810809/

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

I am ET JAK2+ and 79 years old. I too have experienced the sharp, sudden headaches....

https://connect.mayoclinic.org/comment/1286785/

Discussion: How long you can live taking Hydrea (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 21 12:55pm

Welcome, @hudson2019. You’re certainly having your share of medical drama the past couple of years. Lyme...

https://connect.mayoclinic.org/comment/1242045/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 9:04am

I was officially diagnosed with PV in Dec22 after developing high BP when I attempted to...

https://connect.mayoclinic.org/comment/890803/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

I think it's important to have a complete blood workup and a bone marrow biopsy and...

https://connect.mayoclinic.org/comment/1162900/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

I have an appointment in a little over a week. I have already been diagnosed with...

https://connect.mayoclinic.org/comment/1152427/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2024

That's great that your doc sees you every three months at this beginning phase. Gives you...

https://connect.mayoclinic.org/comment/1117199/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

I also think the numbers aren’t extremely high! The symptoms are spot on with what I’ve...

https://connect.mayoclinic.org/comment/873183/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Good questions. I’m not a medical doctor. My career was at the diagnostic end (lab). Therefore,...

https://connect.mayoclinic.org/comment/981500/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Hi John, I am so glad to hear back from you and a big thanks to...

https://connect.mayoclinic.org/comment/999022/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024