Blood Cancers & Disorders Support Group | Page 27

@princess86 I was diagnosed in Dec 2024 and my hematologist doesn't call my ET with Jak2...

https://connect.mayoclinic.org/comment/1551193/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 11:51am

Hi @divaterry, Well, dare I say welcome? I’m sure the news of having ET or essential...

https://connect.mayoclinic.org/comment/1548555/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 12 9:24am

I have a question about side effects. I've been on HU for 2 1/2 years for...

https://connect.mayoclinic.org/comment/1552546/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 17 7:54am

Thanks @katgob. The second link article does show a strong connection between anemia and cognitive decline....

https://connect.mayoclinic.org/comment/1202026/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

Hello, I was just diagnosed with ET JAK2 2 weeks ago today. My platelets last labs...

https://connect.mayoclinic.org/comment/1550761/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 9:13pm

Thanks for the question. If the diagnosis is clear without punching around in the marrow, the...

https://connect.mayoclinic.org/comment/593688/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2021

Hi Lori, thanks for all your amazing support and information. My family is finding the articles...

https://connect.mayoclinic.org/comment/875908/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

really, no one wants plts with JAK2..and they rebuild so fast, it doesn't really help to...

https://connect.mayoclinic.org/comment/1047269/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...

https://connect.mayoclinic.org/comment/799775/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Hello @itsmepeggysue, welcome to Connect. It’s a mixed welcome because I’m happy you found us, though...

https://connect.mayoclinic.org/comment/840508/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Remember to breathe and stay connected to others on this site more than searching the internet...

https://connect.mayoclinic.org/comment/1162735/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

A hematologist should follow IPSET guidelines for ET clot prevention: JAK2+ and over 60 = platelet...

https://connect.mayoclinic.org/comment/796537/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

Don't assume your will have side effects from Hydrea. My platelets were 600s for 10 years...

https://connect.mayoclinic.org/comment/846829/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Hi I’m 62 male , was diagnosed 3 months ago with ET and JAK2 positive my...

https://connect.mayoclinic.org/comment/828785/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Hi, Flynn. I too understand your hesitancy to take the Hydrea. I am 81. I have...

https://connect.mayoclinic.org/comment/773870/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

I have PV secondary, Jak2 positive. I was on Hydroxyurea for about 8 months, but side...

https://connect.mayoclinic.org/comment/1195446/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

I have been on low dose HU since 2022 for ET JAK2. I am currently taking...

https://connect.mayoclinic.org/comment/1156193/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

A year and a half ago, I presented a hemoglobin of 7g with no evidence of...

https://connect.mayoclinic.org/comment/915865/

Discussion: Iron deficiency anemia without an apparent cause

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023

Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...

https://connect.mayoclinic.org/comment/870437/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023