Blood Cancers & Disorders Support Group

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Comments (525)

Good morning talmadge81! Thank you for sharing your journey. I’m so sorry you had to go...

https://connect.mayoclinic.org/comment/743790/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2022

Hi Becky, I moved your message to this existing discussion about light-chain MGUS to this existing...

https://connect.mayoclinic.org/comment/731453/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

Hmm, I’ve had some rashes from the meds I was on and usually it’s just ‘grin...

https://connect.mayoclinic.org/comment/706333/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2022

My Fiance was recently diagnosed with Langerhans cell Histiocytosis. We are in search of a second...

https://connect.mayoclinic.org/comment/639606/

Discussion: Adult Langerhans cell Histiocytosis and CMML

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2021

My doctor said is was probably caused by a chemical. When I mentioned I had been...

https://connect.mayoclinic.org/comment/1522514/

Discussion: Myelodysplastic syndromes and stomach problem?

Support Group: Blood Cancers & Disorders

Posted: Mar 8 1:23pm

I received relief when I finally saw my dermatologist who prescribed a script for an anti-itch...

https://connect.mayoclinic.org/comment/1431015/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2025

Re peppermint oil: I have a mentholated gel I use on legs for restless leg. Vicks...

https://connect.mayoclinic.org/comment/1302268/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2025

I have had great success using CereVe Itch Relief which contains pramoxine hydrocholoride and three essential...

https://connect.mayoclinic.org/comment/1248047/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Mar 1, 2025

I developed a rash when I began taking 10 mgs Revlimid. It covered my arms and...

https://connect.mayoclinic.org/comment/1160031/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

After I was diagnosed with Cutaneous T Cell Lymphoma, Mycosis Fungoides in November 2022, my dermatologist...

https://connect.mayoclinic.org/comment/1098081/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

Hi...my name is Claire and I have jak2 mutant. Diagnosed in November 1918 and was given...

https://connect.mayoclinic.org/comment/256905/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2019

Not sure if this is still an active blog. I'm 23 years old and was diagnosed...

https://connect.mayoclinic.org/comment/52567/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2018

I am a 58yr old male that was diagnosed wit CTCL last June. This after many...

https://connect.mayoclinic.org/comment/1078425/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2024

How to manage the itch related to Jak-2 Mutation

https://connect.mayoclinic.org/comment/1036859/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

Hello, I have PV as well. Sometimes it feels like a spider crawling on my skin...

https://connect.mayoclinic.org/comment/907811/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023

in reply to @jerrlin It doesn't matter what time of the day, I itch. It has...

https://connect.mayoclinic.org/comment/897996/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

I was diagnosed with LCH at Mayo Clinic in 2016. I have skin only. After several...

https://connect.mayoclinic.org/comment/641408/

Discussion: Adult Langerhans cell Histiocytosis and CMML

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2021

Have you ever had the lesions on your scalp biopsies? I had a very itchy rash...

https://connect.mayoclinic.org/comment/337176/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

Good morning @trillium, @claire39. I just realized that I might have a solution for your scalp...

https://connect.mayoclinic.org/comment/337174/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

I use Eucerin or similar creams. Heavily oat them at night and wear cotton socks. I...

https://connect.mayoclinic.org/comment/146322/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

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