Blood Cancers & Disorders Support Group

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Comments (847)

Hi @eibsee1948, Welcome to Connect. My goodness, you have a platelet level of 3? That’s dangerously...

https://connect.mayoclinic.org/comment/758584/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2022

Lori, my MDS treatment was watch and wait from April 2022 from a local private oncologist....

https://connect.mayoclinic.org/comment/1155888/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2024

kva111, I agree is not deep diving. The doctor i first say sent me for a...

https://connect.mayoclinic.org/comment/1064008/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2024

Hi Bonnie, The Koch procedure looks for viruses and/or microorganisms in your blood. The results were...

https://connect.mayoclinic.org/comment/982877/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Hi @rockitman Well, I guess some good news is that your results are negative for any...

https://connect.mayoclinic.org/comment/777921/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

My apologies @jzier. Here's info specific to chronic myelomonocytic leukemia (CMML) from Cancer Research UK http://www.cancerresearchuk.org/about-cancer/cancers-in-general/cancer-questions/chronic-myelomonocytic-leukaemia-cmml...

https://connect.mayoclinic.org/comment/101838/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 23, 2016

I, too, have MDS and have 2 bags of blood every 4 weeks by transfusion. The...

https://connect.mayoclinic.org/comment/1211510/

Discussion: Anemia and exercise

Support Group: Blood Cancers & Disorders

Posted: Jan 14 4:18pm

Good Morning. My platelets bounce from 55000 to 72000. At 55 did bone marrow and diagnosed...

https://connect.mayoclinic.org/comment/1232876/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 10:12am

Welcome, @madhornet. I'm tagging a few other members who have experience with chronic myelomonocytic leukemia (CMML)...

https://connect.mayoclinic.org/comment/1040274/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

Oh my goodness, your mom is 106 years young?? That’s amazing. I hope she’s still doing...

https://connect.mayoclinic.org/comment/1328243/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16 9:34am

I told my Oncologist that I would not go through a stem cell transplant after 80....

https://connect.mayoclinic.org/comment/870265/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

My Dr does not have good bedside demeanor. Very short on details from my questions. It...

https://connect.mayoclinic.org/comment/1195327/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Hi @pixiesusan You have some very good questions that deserve answers. Both CCUS and MDS are...

https://connect.mayoclinic.org/comment/1147249/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

As a MDS person I feel compeled to mention what my Dr. (Oncologist) has tried for...

https://connect.mayoclinic.org/comment/1099658/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Thank you for this post. It is very helpful to me. My husband was diagnosed with...

https://connect.mayoclinic.org/comment/995350/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 11, 2024

I was diagnosed low risk MDS two years ago. My platelets have been steadily rising since...

https://connect.mayoclinic.org/comment/827434/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

I am a 76 year old male who is now living with Myelodysplastic syndrome, ringed sidero...

https://connect.mayoclinic.org/comment/926981/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Welcome to Connect, @camacho. I’m sure with your wife’s recent diagnosis of MDS (myelodyplastic syndrome) you...

https://connect.mayoclinic.org/comment/924707/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

I was diagnosed with MDS - MLD (Multi-lineage dysplasia) by BMB in 2020, but 2 other...

https://connect.mayoclinic.org/comment/1056458/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

Been on watch and wait for over 5 years. Vitamin b-12 shots help for only afew...

https://connect.mayoclinic.org/comment/934545/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2023