Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

751 total results

Comments (697)

Hi @shels93 It’s good to see you pop up again. The last time we spoke was...

https://connect.mayoclinic.org/comment/950192/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

My husband was just diagnosed with MDS, and probably needless to say we are at a...

https://connect.mayoclinic.org/comment/757101/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Hi There... Was diagnosed about a month ago with MDS. I also have a DDX41 mutation...

https://connect.mayoclinic.org/comment/1188060/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2024

I have been diagnosed with CCUS, too. I don't really know anything about how genes are...

https://connect.mayoclinic.org/comment/1135342/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2024

Hi there, I have MDS/MPN overlap. I have the JAK2 mutation and have been on 500...

https://connect.mayoclinic.org/comment/1027326/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2024

Hi Lori, I had a bone marrow was biopsy in 2017 and was diagnosed with MDS...

https://connect.mayoclinic.org/comment/1248526/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 8:58am

Good afternoon, I am recently new to this support group as of today. I happened to...

https://connect.mayoclinic.org/comment/1254805/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:45pm

I am in the early stages of MDS and and looking for any help I can...

https://connect.mayoclinic.org/comment/1250678/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 4 11:18pm

Hi @cherbarn. I’m sure this is shock for you coming on the heels of your back...

https://connect.mayoclinic.org/comment/1095046/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Hi Kat! Wow, 52 days already? That’s crazy how fast the time has flown. Congratulations on...

https://connect.mayoclinic.org/comment/1078942/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 1, 2024

Hello @jag11, Welcome to Connect. Sorry to see that you haven't had any responses yet. There...

https://connect.mayoclinic.org/comment/1190946/

Discussion: Anyone dealing with Paroxysmal nocturnal hemoglobinuria (PNH)?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Receiving guidance on pregnancy/infertility is a good idea — with your Hematologist-Oncologist and GYN. From the...

https://connect.mayoclinic.org/comment/864174/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

Anne-Marie you are so very kind to have shared your experiences with me. I feel better...

https://connect.mayoclinic.org/comment/961270/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

hlmcneely, I am glad you posted. I do not have MDS, but i was reminded from...

https://connect.mayoclinic.org/comment/956062/

Discussion: Blood work question: Abnormal lymphocyte and Large Platelets?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2023

First time post here. We live on the Sunshine Coast an hour north of Brisbane in...

https://connect.mayoclinic.org/comment/1265364/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 24 4:40am

Welcome, @terdor! MDS treatments aren’t “one size fits all” because there are variables with each person....

https://connect.mayoclinic.org/comment/1286328/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

Your experience is similar to my husband’s, though he has MDS 5q deletion, not MM. The...

https://connect.mayoclinic.org/comment/1199190/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Hi Howard, I looked up the classification for your MDS-EB2 diagnosis. The EB-2 is the staging...

https://connect.mayoclinic.org/comment/821146/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

Do you remember the good old days when our big decisions were, “OH i have a...

https://connect.mayoclinic.org/comment/622599/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2021

Hi Lori, I am new here and thankful for all you do. My husband who was...

https://connect.mayoclinic.org/comment/1286105/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20 12:47pm