Blood Cancers & Disorders Support Group | Page 25

Hi Sophie, I started on Hydroxyurea 4 months ago. I was scared to take it because...

https://connect.mayoclinic.org/comment/1352607/

Discussion: F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2025

Hi, My BMB was on 2/4/25 and was painless with only the local the NP gave...

https://connect.mayoclinic.org/comment/1282148/

Discussion: CT guided Bone Marrow Biopsy: Your experiences?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2025

Hi @dunewalker. Welcome to Connect. Your @name brings images of walking along some of my favorite...

https://connect.mayoclinic.org/comment/1253085/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2025

Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...

https://connect.mayoclinic.org/comment/1076631/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...

https://connect.mayoclinic.org/comment/912090/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Does anyone here have experience with 5q deletion? A little background: My age 77 husband was...

https://connect.mayoclinic.org/comment/226237/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

Posted by wiggins32 @wiggins32, We are rare; so it doesn't matter, we are skipped, ignored and...

https://connect.mayoclinic.org/comment/800143/

Discussion: Need Help - Hematology won't do testing

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Good morning, @miguy Your friend has a bit of a blood cancer journey ahead of him...

https://connect.mayoclinic.org/comment/697411/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2022

Hi ideachaser1, Thank you for sharing. My BMB says what you posted about yours. I am...

https://connect.mayoclinic.org/comment/1259636/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

I was diagnosed with ET in May 2015. A good doctor in Venezuela South America diagnosed...

https://connect.mayoclinic.org/comment/792319/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

My husband is 65 years old and was diagnosed with MDS over lapping Mylofibrosis. His been...

https://connect.mayoclinic.org/comment/1605308/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 24 11:43am

@hanya I have been put on jakafi for 18 days for AML with mylofibrosis in my...

https://connect.mayoclinic.org/comment/1595411/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jun 10 8:05pm

@loribmt Yes I am. They wanted to start the vidaza again and add hydroxy and my...

https://connect.mayoclinic.org/comment/1604877/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jun 23 9:06pm

Good morning, @pinkflamingo. Your @name made me smile and think fondly of Florida this spring morning....

https://connect.mayoclinic.org/comment/836087/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

I have gotten my platelets down to 388,000 but it has take a long time and...

https://connect.mayoclinic.org/comment/792897/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Hi doreen78, First off, no, I have not been told I am in remission from any...

https://connect.mayoclinic.org/comment/1292137/

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2025

It took me several days, but finally found good questions for my PV and Myelofibrosis (9...

https://connect.mayoclinic.org/comment/802843/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Jan 28, 2023

Hello, are you still discussing myelofibrosis? I was diagnosed in 2011. Presumably, it was already in...

https://connect.mayoclinic.org/comment/132611/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2020

@1995victoria My hope is that the drug will reduce the percentage of the vaf, so that...

https://connect.mayoclinic.org/comment/1557352/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 23 7:19am