Blood Cancers & Disorders Support Group

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Comments (2,297)

Yeah it’s sobering to hear that- since I have MGUS too. But we aren’t statistics and...

https://connect.mayoclinic.org/comment/874716/

Discussion: Anyone been denied life insurance based on your MGUS dx?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2023

Are you comfortable stating where you are getting your treatment? I have free kappa MGUS and...

https://connect.mayoclinic.org/comment/804415/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2023

@pmm WOW!!! GREAT resource, though, for information on how MGUS is something that CAN and SHOULD...

https://connect.mayoclinic.org/comment/1422486/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

Has anyone been diagnosed with MGUS (monoclonal gammopathy of undetermined significance) and developed neuropathy? My doctors...

https://connect.mayoclinic.org/comment/1452565/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

Hello all, I was diagnosed with MGUS in 2023 due to iron depletion. I had a...

https://connect.mayoclinic.org/comment/1184192/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2024

I have just been diagnosed with MGUS and have been reading up on it before my...

https://connect.mayoclinic.org/comment/776793/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2022

I have nothing to add. Just thanking you for this information. My husband was diagnosed with...

https://connect.mayoclinic.org/comment/1353538/

Discussion: MGUS and Non-Hematologic Malignancy

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

@pmm Thank you for that link. That was very informative and a bit scary. That’s probably...

https://connect.mayoclinic.org/comment/1570687/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 9 1:53pm

@melbye Neuropathy can come with MGUS (it was how mine was diagnosed 10 years ago). If...

https://connect.mayoclinic.org/comment/1575867/

Discussion: Recurring severe mouth ulcers and MGUS

Support Group: Blood Cancers & Disorders

Posted: May 16 10:28am

Welcome to Connect, @ilovebirbs It’s really scary getting a new diagnosis out of the blue and...

https://connect.mayoclinic.org/comment/934202/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2023

Don't assume I have any medical knowledge about MGUS or anything else. I don't even fully...

https://connect.mayoclinic.org/comment/1180120/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

I as well have mGus and also was told that an extremely small percentage of mGus...

https://connect.mayoclinic.org/comment/1168679/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Your MGUS in terms of M-spike numbers are low(.08), my hemanoc said 1.5 is considered SMM...

https://connect.mayoclinic.org/comment/1298160/

Discussion: M-spike dropped from .13 to .08.

Support Group: Blood Cancers & Disorders

Posted: May 6, 2025

@crazbound Welcome to Mayo Clinic Connect! So many of us can definitely relate to having a...

https://connect.mayoclinic.org/comment/717696/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2022

To all those reading my other post, let me explain in more detail what’s going to...

https://connect.mayoclinic.org/comment/733543/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2022

@leslie2121 Wow! I don’t know about you, but I celebrate any lab work results that move...

https://connect.mayoclinic.org/comment/1029210/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

Greetings! I am checked quarterly to monitor my MGUS and see a hematologist/oncologist who specializes in...

https://connect.mayoclinic.org/comment/822862/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

I found this information which I believe is credible. The article source is attached. https://pmc.ncbi.nlm.nih.gov/articles/PMC1895159/ “MGUS...

https://connect.mayoclinic.org/comment/1272777/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

MGUS is (supposed to be) asymptomatic. My kappa is about 300 and kappa/lambda is 29 (8...

https://connect.mayoclinic.org/comment/1157315/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2024

I was seeing a rheumatologist for misdiagnosed bone pain when I was diagnosed with MGUS. I...

https://connect.mayoclinic.org/comment/1013109/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2024

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