Blood Cancers & Disorders Support Group

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Comments (847)

Welcome to Connect @afieldcrow…Alison. I love crows so I can’t help but admire your @name! Just...

https://connect.mayoclinic.org/comment/1346758/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 12 5:18pm

Hi Lori - I told you I would let you know my bone marrow biopsy results....

https://connect.mayoclinic.org/comment/1262156/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 19 5:26pm

Hi @auntsue303, I'm tagging a few members like @jelilien @jrwilli1 @momz who have experience with MDS...

https://connect.mayoclinic.org/comment/1000878/

Discussion: Anyone taking retacrit and releuko injections for MDS

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

Oh my. My first thought was a 2nd opinion. More with more experience will respond soon,...

https://connect.mayoclinic.org/comment/1395690/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

Welcome to Connect, @smetzing I can surely understand the anxiety you and your husband are experiencing...

https://connect.mayoclinic.org/comment/933074/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2023

My little sister (age 63) was diagnosed with MDS a little over 3 years ago. She...

https://connect.mayoclinic.org/comment/1111831/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Kathy I am so very sorry for your terrible loss. My husband was diagnosed with MDS...

https://connect.mayoclinic.org/comment/1103818/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Hi @bharty615 Generally, a bone marrow transplant is reserved for extreme conditions such as leukemia, MDS,...

https://connect.mayoclinic.org/comment/1079339/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 2, 2024

VP- genetic test determined I have Variegated porphyria after dealing with symptoms for 19 years. I...

https://connect.mayoclinic.org/comment/1381959/

Discussion: Treatment for mild porphyria

Support Group: Blood Cancers & Disorders

Posted: Aug 29 11:27am

Good morning, @atsfmojj. There are different subtypes of MDS. Each have their own characteristics with varying...

https://connect.mayoclinic.org/comment/1248573/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 9:48am

My hemotologist has me on the Hydro and Anagrelide plus a low dose aspirin. I tell...

https://connect.mayoclinic.org/comment/800332/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

You are a perfect example of the power of positivity. When I was first diagnosed with...

https://connect.mayoclinic.org/comment/1364327/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 5 1:54pm

Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...

https://connect.mayoclinic.org/comment/1043541/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

I have MDS/MPN overlap with Thrombocytosis and MF and I've been on Hydrea to reduce my...

https://connect.mayoclinic.org/comment/146301/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2020

All I can say is that I was never treated for CLL, My CLL turned into...

https://connect.mayoclinic.org/comment/101825/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

@asarnesejr You are on a rollercoaster! Those are vastly different diagnoses. You wondered why you had...

https://connect.mayoclinic.org/comment/1382514/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 30 9:00am

I can definitely relate to your current predicament… I wanted to learn as much as possible...

https://connect.mayoclinic.org/comment/1385908/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 3 3:00pm

I was diagnosed with MDS-IB2 on April 11, 2024. I signed a consent form to begin...

https://connect.mayoclinic.org/comment/1063768/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2024

My husband also has mDS. He was considered mild but his levels are very low(platelets 24)...

https://connect.mayoclinic.org/comment/1053717/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Please get you a good hematologist and then if any unusual symptoms come up you should...

https://connect.mayoclinic.org/comment/888019/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023