Blood Cancers & Disorders Support Group

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Comments (1,035)

I have a diagnosis of MDS/MPN- RARS-T. My platelets have been too high. When I began...

https://connect.mayoclinic.org/comment/1183829/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

Hi Sharyn, with your MDS, your immune system is weakened. So, having an abscess and a...

https://connect.mayoclinic.org/comment/756028/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

My Onco/haema-tologist refuses to admit that Vexas is real. Only one.I have more diseases and disorders...

https://connect.mayoclinic.org/comment/1062004/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

As far as I know, ET with a positive JAK2 mutation normally suggests you have a...

https://connect.mayoclinic.org/comment/284525/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2019

Excellent advice - I needed to hear this today! I have officially told my nurse self...

https://connect.mayoclinic.org/comment/1368331/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 11, 2025

@twitt1949 @katgob In a similar situation with numbers being 'too good' to move forward for just...

https://connect.mayoclinic.org/comment/1555792/

Discussion: MDS and walking.

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

Hi Lori and thank you for your response. I was diagnosed with MDS about 3 months...

https://connect.mayoclinic.org/comment/1257092/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

My wife(75 years) was diagnosed CNS lymphoma 2.5 years ago and treated with M-RVP plus Cytarabine...

https://connect.mayoclinic.org/comment/895063/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Thank you for your input. I started with one dr who was recommended due to low...

https://connect.mayoclinic.org/comment/1341769/

Discussion: New Dr different diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2025

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2025

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Hi @mkt24 There are several discussions about cancer of the blood in this Blood Cancer and...

https://connect.mayoclinic.org/comment/1071669/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

Pixiesusan, so good to hear back from you. My first bone biopsy in Oct. of 21...

https://connect.mayoclinic.org/comment/1151293/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

I was recently diagnosed with MDS with anemia. I have been anemic for many years but...

https://connect.mayoclinic.org/comment/1363855/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

Hi Joyce, Welcome to Mayo Connect and thank you for sharing your experience with Myelodyplastic 5q...

https://connect.mayoclinic.org/comment/1380440/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2025

My husbands blasts in the blood were at 2% for several months, then went to 16%...

https://connect.mayoclinic.org/comment/1294674/

Discussion: Newly diagnosed with AML (FTL3 TKD)

Support Group: Blood Cancers & Disorders

Posted: May 2, 2025

Thank you so much for your kind reply. I will check out the link you provided....

https://connect.mayoclinic.org/comment/1418830/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

ITP is an autoimmune disease, also called idiopathic thrombocytopenia, that attacks the body’s platelets, so you...

https://connect.mayoclinic.org/comment/194331/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2019

The Government has acknowledged that the drinking water at Camp Lejeune was contaminated from 1954 to...

https://connect.mayoclinic.org/comment/194350/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019