Blood Cancers & Disorders Support Group

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Comments (525)

I treat my CLL related itch with an antihistamine called cetrine which works brilliantly. For some...

https://connect.mayoclinic.org/comment/960431/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

I've been on Jakafi since December 2022 and the only thing I experienced initially was an...

https://connect.mayoclinic.org/comment/908466/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

I walk about 2 miles a day, not all at once though because it hurts too...

https://connect.mayoclinic.org/comment/843128/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

I itch on my left arm all the time it drives me crazy NO creams etc...

https://connect.mayoclinic.org/comment/820106/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2023

I totally understand your angst. As a 76 year old female, I felt great before the...

https://connect.mayoclinic.org/comment/1520763/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 6 8:06am

@loribmt Dr. Rashid noticed it when he sat down to talk to me before my botox...

https://connect.mayoclinic.org/comment/1458508/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

Well, hopefully a lower dosage when you hit your target platelet level will stop the itch!...

https://connect.mayoclinic.org/comment/1307142/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Interested in this discussion. My skin mostly, arms and legs, also itch at night. I have...

https://connect.mayoclinic.org/comment/1191125/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Hey @katgob! Can you believe it’s day 115 already?? When you’re at Day 0, anything past...

https://connect.mayoclinic.org/comment/1116881/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 3, 2024

MY LV started in Jan 2019 and I know many of you have been dealing with...

https://connect.mayoclinic.org/comment/52586/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

@loribmt I’m happy to hear you had a good result with your bone marrow transplant. Thank...

https://connect.mayoclinic.org/comment/1524587/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:47am

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

I have been living with this condition now for over 10 years. It is progressively worse...

https://connect.mayoclinic.org/comment/1011986/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Thank you. We have been to three dermatologist, oncologist, allergist, now heading to hematologist. No medications...

https://connect.mayoclinic.org/comment/993409/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

I usually itch right after my bath, I use dove soap and will use various oils...

https://connect.mayoclinic.org/comment/946592/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

I’m going on two years now on hydroxyurea (500mg) with pretty much no side effects except...

https://connect.mayoclinic.org/comment/940886/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Hi all! Brand new MGUS IgA here, with severe neuropathic foot itch (bottom balls of feet)...

https://connect.mayoclinic.org/comment/931576/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2023

Just wondering about intense itchiness along with all the other things? It happens mostly at night...

https://connect.mayoclinic.org/comment/906937/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

I wish I had good advise about the itchy. My itch is after I shower, my...

https://connect.mayoclinic.org/comment/895756/

Discussion: Polycythemia Vera (PV) and fatigue: What helps?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

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