Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,547 total results

Comments (1,465)

I was diagnosed with MGUS about 18 months ago (so far just high IGM and low...

https://connect.mayoclinic.org/comment/877845/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Olivia, welcome. I read through your post a couple of times, and I was a little...

https://connect.mayoclinic.org/comment/938647/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2023

@Tallyteresa, you are an inspiration! I appreciate your in depth research and following your hunches on...

https://connect.mayoclinic.org/comment/793620/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2023

@carolee888 How long between your diagnosis of MGUS to smoldering myeloma, please? Most people go for...

https://connect.mayoclinic.org/comment/806559/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

I was suffering fatigue a lot. Not sure I could completely link it to my MGUS...

https://connect.mayoclinic.org/comment/878309/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

My doctor just told me I have MGUS at 61.5 years old. My mind is spinning...

https://connect.mayoclinic.org/comment/904319/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2023

It helps to know the levels of immunoglobulins in the blood and urine, and free light...

https://connect.mayoclinic.org/comment/985335/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2023

I was diagnosed with MGUS, a plasma cell neoplasm, in 2017. Earlier this year, my blood...

https://connect.mayoclinic.org/comment/719891/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2022

I have MGUS and suffer of peripheral neuropathy (PN) for at least 5 years. My PN...

https://connect.mayoclinic.org/comment/899330/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@coug42, you may also be interested in these related discussions: - Diagnosed with MGUS/Amyloidosis https://connect.mayoclinic.org/discussion/diagnosed-with-mgusamyloidosis/ -...

https://connect.mayoclinic.org/comment/1103249/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 10 8:25pm

MGUS is a condition that involves an abnormal protein produced in the bone marrow by plasma...

https://connect.mayoclinic.org/comment/1135835/

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 3 10:18pm

That’s what my hematologist told me about my MGUS. She wants to recheck my labs every...

https://connect.mayoclinic.org/comment/908541/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

@rhody89 welcome to the forum. I can certainly echo the recommendations that have been voiced here....

https://connect.mayoclinic.org/comment/976317/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2023

Sorry to hear you’ve lost relatives to cancer. Cancer runs in my family also, however it’s...

https://connect.mayoclinic.org/comment/929260/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

ABSOLUTELY get a second opinion from a specialist familiar with MGUS/SMM/MM. My story is long, but...

https://connect.mayoclinic.org/comment/932455/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

My MGUS founded over 12 years ago. I'm 54 years old now. They haven't got any...

https://connect.mayoclinic.org/comment/1160030/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20 1:46pm

@dazlin, for the MGUS labs, were they using serum electrophoresis with immunofixation (SPEP/IFE), 24-hour urine electrophoresis...

https://connect.mayoclinic.org/comment/981778/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

@eulo Thank you for your kind words! Something your wife might try, is to use a...

https://connect.mayoclinic.org/comment/795490/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2023

Yes. Dealing with lame drs now as I search for a new specialist (care follow ups-no...

https://connect.mayoclinic.org/comment/1036755/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Mar 19 9:19pm

I am also jak 2 positive as of 2019 and mgus since 201 3, now smouldering...

https://connect.mayoclinic.org/comment/755881/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022