Blood Cancers & Disorders Support Group

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Comments (697)

Brenda, I moved your recent post to your existing discussion about living with MDS (myelodysplastic syndromes)....

https://connect.mayoclinic.org/comment/953178/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

Hi @deemcrae Welcome to Connect. You’re doing everything just right and in the perfect support group...

https://connect.mayoclinic.org/comment/829704/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Hi @nbadry, I'm tagging fellow members like @jrsav @gingerw @tristram @coynelane @darlaburley @janetlen @5qdeletion @marco88, who...

https://connect.mayoclinic.org/comment/1159672/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

Hello @bdglass, @marco88, @kgerbitz and @dabls6 I did a little research online to see if there...

https://connect.mayoclinic.org/comment/871680/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2023

osm- Did you read the 2 links Lori posted above? I know Mayo has many published...

https://connect.mayoclinic.org/comment/1201820/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1 1:06pm

Hello, I've been dealing with Low-risk MDS for over 5 years, and at almost 70, feel...

https://connect.mayoclinic.org/comment/1027777/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 5, 2024

Hello, I am new to Mayo and transferred from City of Hope (long story). I am...

https://connect.mayoclinic.org/comment/946326/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 12, 2023

I was diagnosed with MDS in 2021. In March 2023 my platelets shot up to over...

https://connect.mayoclinic.org/comment/846781/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Hi renee12345 I went from normal platelets and high monocytes to low platelets in a couple...

https://connect.mayoclinic.org/comment/778948/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

My wife Nancy was diagnosed with MDS in June of 2023 at age 78. She was...

https://connect.mayoclinic.org/comment/1271616/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Apr 1 9:42am

That's a hard one to control.... but....You're not alone! My husband's cognitive decline is slow but...

https://connect.mayoclinic.org/comment/870556/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

Good morning, Kat. Your numbers may fluctuate for a long time to come and you’re still...

https://connect.mayoclinic.org/comment/1129232/

Discussion: My PDW is 13.7 fl. What is the normal range? What could this indicate?

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2024

Hello @jrwilli1 and welcome to Mayo Clinic Connect. It sounds like your husband has been through...

https://connect.mayoclinic.org/comment/764542/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Yes, my husband has MDS and he has had a rash on his face, neck, back,...

https://connect.mayoclinic.org/comment/1069372/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

I have MDS, diagnosed last summer. My ferratin levels are consistently 800-1000. By January of this...

https://connect.mayoclinic.org/comment/898261/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

Hi, @pmlind4. I’m sorry I missed your post earlier this month. As a refresher, here is...

https://connect.mayoclinic.org/comment/1268261/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 27 8:06pm

Yes recently diaganosed with MDS and having a bine biopsy this week. Its my platletelets that...

https://connect.mayoclinic.org/comment/1055059/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2024

Hi @bdglass Welcome to Mayo Connect. You jumped right into the perfect conversation to ‘connect’ with...

https://connect.mayoclinic.org/comment/833583/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2023

I am stressed. I don’t like the “watch and wait”. I now get blood checked monthly....

https://connect.mayoclinic.org/comment/1025891/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024