Blood Cancers & Disorders: Discussions | Page 23

I have MDS with Thrombocytosis. My platelets were in the millions. Started Hydroxyurea at 1000 mg...

https://connect.mayoclinic.org/comment/895518/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Hi Howard, even though this MDS is the diagnosis you were expecting it’s still a shock...

https://connect.mayoclinic.org/comment/819458/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

Hi - I am going through a transplant now. Such a hard decision, but after communicating...

https://connect.mayoclinic.org/comment/1379679/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 26 10:29am

Good Day Lori, Thank you for sharing your journey with us. I was feeling a little...

https://connect.mayoclinic.org/comment/1330985/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 20 5:41am

So another question has popped into my brain… So Mom has 10% blasts based on bone...

https://connect.mayoclinic.org/comment/1193343/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

So I had high WBC and platelet numbers and went to Sloan Cancer Center. They performed...

https://connect.mayoclinic.org/comment/298974/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2020

Thanks Lori for responding. He's a frequent flier at Mayo Jax, Hematology since 2018 and other...

https://connect.mayoclinic.org/comment/1338826/

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Jun 30 8:21pm

rbhawk48 A 2nd opinion would be helpful. Can you file for benefits under the Pact Act?...

https://connect.mayoclinic.org/comment/1162546/

Discussion: Vietnam Vet and exposure to Benzene

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Hi! My husband was just dx Today with MDS.The ref matl we received is scary. It’s...

https://connect.mayoclinic.org/comment/1282841/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 15 8:28pm

Hi @statmatics, If Rachel’s CBC numbers have been consistently false for 18 months, one would expect...

https://connect.mayoclinic.org/comment/1350684/

Discussion: Can Blood Counting Machines Be Wrong?

Support Group: Blood Cancers & Disorders

Posted: Jul 17 11:10pm

Thanks so much for sharing your journey. You are very strong and a great example for...

https://connect.mayoclinic.org/comment/1250366/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 4 12:50pm

Reading this last message had me holding my breath! Your poor, sweet sister! That’s just crazy...

https://connect.mayoclinic.org/comment/1112890/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

It does appear that Vidaza is no longer working. However, my doctor started a high dose...

https://connect.mayoclinic.org/comment/1234512/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 1:10pm

I started showing signs almost two years ago and was diagnosed over a year ago with...

https://connect.mayoclinic.org/comment/1255408/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:29am

jseeker. Have you message The Moffitt center or her current dr for help with this symptom?...

https://connect.mayoclinic.org/comment/1210759/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 3:37pm

HALFWAY TREATMENT? I saw the hematologist a few days ago. He diagnosed me with "MDS with...

https://connect.mayoclinic.org/comment/1325787/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 12 2:58pm

Hi to all I have MDs an have 1 round of chemo using Inqovi but drug...

https://connect.mayoclinic.org/comment/844954/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Hi @susan1000, welcome. You may wish to connect with others living with mantle cell lymphoma in...

https://connect.mayoclinic.org/comment/750557/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2022

@statmatics I hope your Dr told you that the excess blasts puts you at a higher...

https://connect.mayoclinic.org/comment/1326243/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 13 8:56am

Lori, I have seen many posts from you, all seem to be so uplifting. My husband...

https://connect.mayoclinic.org/comment/1041638/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 28, 2024

Blood Cancers & Disorders Support Group