Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,118 total results

Comments (1,031)

I have ITP and MDS. The ITP is what affects my platelets. I have had this...

https://connect.mayoclinic.org/comment/852550/

Discussion: What foods or supplements help increase Low platelets?

Support Group: Blood Cancers & Disorders

Posted: May 1, 2023

I was diagnosed with MDS with ring sideblasts in December 2024. I was on the mend...

https://connect.mayoclinic.org/comment/1249735/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

Hi Robin. Welcome to Mayo Connect. I’m trying to recollect a member who has both MDS...

https://connect.mayoclinic.org/comment/1480360/

Discussion: Myelodysplastic/Myeloproliferative Neoplasm with Ring Sideroblasts

Support Group: Blood Cancers & Disorders

Posted: Jan 12 9:38am

Hi @statmatics The causes of Blood cancers and conditions can be difficult to pinpoint. Many are...

https://connect.mayoclinic.org/comment/1311763/

Discussion: What Caused MDS in My Case?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2025

Was diagnosed with MDS last March ater a bone marrow biopsy. Have plaitletes that hover around...

https://connect.mayoclinic.org/comment/1055505/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2024

Hi @julie212, in addition to this discussion about MDS, you may also be interested in joining...

https://connect.mayoclinic.org/comment/935081/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2023

Hi, some positive messages have raised my spirits. My mum who is 72, has just been...

https://connect.mayoclinic.org/comment/1337266/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

Roywalton, Thank you for your note. Yes, my care team is looking for a match. Good...

https://connect.mayoclinic.org/comment/1315727/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 29, 2025

Hi all I just joined and I have MDS. It is believed that I may have...

https://connect.mayoclinic.org/comment/1069902/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

Actually my Dr just ordered the EPO bloodwork for me. I have MDS/MPN-RS-T with jak2 mutation....

https://connect.mayoclinic.org/comment/595082/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2021

As a person who has MDS (and many other things) I want to thank you for...

https://connect.mayoclinic.org/comment/1099641/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

I also have MDS del 5q Currently my haemoglobin is sitting around 90. When I need...

https://connect.mayoclinic.org/comment/1088910/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Hi @pathilt. Welcome to Mayo Connect! Myelodyplastic Syndromes or MDS are a group of bone marrow...

https://connect.mayoclinic.org/comment/1111910/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Lindagi, I just read this today 3/28, and it's great information for my husband who was...

https://connect.mayoclinic.org/comment/1041861/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Cheryl I have such a heavy heart reading your post. I will ask my ladies in...

https://connect.mayoclinic.org/comment/882318/

Discussion: I have anemia and low blood Platelets due to previous drinking.

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2023

Mom has myelodysplastic syndromes (MDS) with deletion 5q and started 5mg of Revlimid this week. One...

https://connect.mayoclinic.org/comment/617192/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2021

Hello @kmak1939stuart. I wanted to drop by to see how you’re doing. Last time we spoke...

https://connect.mayoclinic.org/comment/1097816/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

Thanks for your reply. The doctor suspects MDS but I also have CIPO and Sjogren's and...

https://connect.mayoclinic.org/comment/274263/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

Diagnosed with "MDS" Aug of 2024...I have been getting the Retacrit injection weekly to generate more...

https://connect.mayoclinic.org/comment/1176999/

Discussion: Retacrit + Venofer for B-thalassemia

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in...

https://connect.mayoclinic.org/comment/951872/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023