Blood Cancers & Disorders Support Group

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Comments (916)

I am being treated for acute hemolytic anemia with Rituxan (I've had 4 infusions) and will...

https://connect.mayoclinic.org/comment/304670/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 27, 2020

Thats so great and encouraging to hear! I also have osteopenia.....I have a PET scan this...

https://connect.mayoclinic.org/comment/832044/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

Hi, I am interested in learning more about your infusions; are they beneficial in helping your...

https://connect.mayoclinic.org/comment/165743/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2018

Hi @wmisyr, Chronic Lymphatic Leukemia (CLL) is generally a slowly developing blood disease. So it’s not...

https://connect.mayoclinic.org/comment/765480/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

I'm one the 1% who have CLL, which is considered chronic, incurable, go into what is...

https://connect.mayoclinic.org/comment/946358/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

My Dad was diagnosed in his 70's with CLL and has been taking Imbruvica 140mg every...

https://connect.mayoclinic.org/comment/1312958/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Funny, I have cll and pv, was being treated for pv with hu but when i...

https://connect.mayoclinic.org/comment/737663/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

@gmack, good luck Gary .. The Imbruvica has ABSOLUTELY been life changing for my husband .....

https://connect.mayoclinic.org/comment/113599/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2017

Thank you I have CLL and the Oncologist spent an hour explaining that I’m ok and...

https://connect.mayoclinic.org/comment/1281005/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

CLL diagnosis- After a diagnosis of any type of cancer most, including myself, search for life...

https://connect.mayoclinic.org/comment/1324785/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

I feel for you. Chemo is tough in general, and at your age, even harder. Your...

https://connect.mayoclinic.org/comment/1472162/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 12:24pm

@colleenyoung yes. I was diagnosed in 2000 by a neurologist with HNPP. It was the last...

https://connect.mayoclinic.org/comment/1525858/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey

Support Group: Blood Cancers & Disorders

Posted: Mar 13 9:25am

has anyone discussed the green tea extract-(10,000 mg daily) massive effect on cll ? 7 years-...

https://connect.mayoclinic.org/comment/777453/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2022

Actually my labs were better this time. I did start taking magnesium. I have CLL. I...

https://connect.mayoclinic.org/comment/1175941/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2024

B-PLL no longer exists per the upcoming 5th edition of the World Health Organization Classification of...

https://connect.mayoclinic.org/comment/756812/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

I was diagnosed with CLL at age 54 & I’m now 82. It is a watch...

https://connect.mayoclinic.org/comment/1098525/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Welcome to Connect, @dhamra. We can drive ourselves crazy trying to figure out when, how, or...

https://connect.mayoclinic.org/comment/1094363/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Good morning, @pike70 Chronic Lymphocytic Leukemia (CLL) is a cancer of the blood in a group...

https://connect.mayoclinic.org/comment/695487/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2022

@bochos Hi. It is interesting that you have light night sweats. So do I. I have...

https://connect.mayoclinic.org/comment/1518090/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 5:34pm

@sveta25 Oh so sorry I have never heard of CLL on the brain, only blood &...

https://connect.mayoclinic.org/comment/1486777/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 5:57pm