Blood Cancers & Disorders Support Group

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Comments (634)

Hi @dringge, I know that first appointment clipped you off at the knees. Anytime we get...

https://connect.mayoclinic.org/comment/798310/

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Hello, I have been diagnosed in 2016 with MBL and after a Lymph nodes biopsy in...

https://connect.mayoclinic.org/comment/113638/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2020

@joeeduffy I want to reach through this computer and give you a hug… My goal is...

https://connect.mayoclinic.org/comment/1011309/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

Hello @mena2020. Colleen shared some links with you with more information on CAR-T cell therapy. FDA...

https://connect.mayoclinic.org/comment/164154/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 22, 2020

My husband had CLL for many years with no symptoms, it was just watch and wait...

https://connect.mayoclinic.org/comment/1102116/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

I was diagnosed with pv and put on hu plus baby asprin. Had a few phlebotomy...

https://connect.mayoclinic.org/comment/952262/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

Gerry You may never feel poorly. I would not trade my health with most 70 year...

https://connect.mayoclinic.org/comment/113588/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2016

Side effects are minimal and include fatigue, dry skin (my palms itch like crazy at times...

https://connect.mayoclinic.org/comment/1091143/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Welcome to Connect and a huge thank you for sharing your experience with CLL and your...

https://connect.mayoclinic.org/comment/1056428/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I was diagnosed 2 yrs ago after a routine mammogram with stage 4 CLL Lymphoma. Blood...

https://connect.mayoclinic.org/comment/848398/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

There are no symptoms. So far, ,every year we do general test and till 2021 every...

https://connect.mayoclinic.org/comment/750742/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

Hi @colleenyoung , Thank you for responding. He did have melanoma about 35 years ago (which...

https://connect.mayoclinic.org/comment/335646/

Discussion: Leptomeningeal Disease and CLL

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2021

I am so sorry to hear as I have had cll plus two other lymphomas. Because...

https://connect.mayoclinic.org/comment/252084/

Discussion: Coping with long term cancers

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2019

Hi econnor, This site has many people who are more qualified to answer your query than...

https://connect.mayoclinic.org/comment/298970/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2020

I was recently diagnosed with CLL. I haven't had any treatment yet. However, in the last...

https://connect.mayoclinic.org/comment/1094480/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

I also had a rash in 2015 that they couldn’t explain. Just it me on mega...

https://connect.mayoclinic.org/comment/996650/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Hi @layala, welcome. That does sound confounding to hear that you are in the early stages...

https://connect.mayoclinic.org/comment/801580/

Discussion: Concerned: CLL in remission, but feel lousy, what to do?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Hi jlh1, In my case, after 6 months and many tests, I ended up being diagnosed...

https://connect.mayoclinic.org/comment/1166662/

Discussion: Waldenstrom's, CLL or MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2024

I have had CLL since 2017 and now another non-hodgkin lymphoma. My back hurts all the...

https://connect.mayoclinic.org/comment/860825/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2023

Keeping in mind when you read the conversations that not all will apply to you. We...

https://connect.mayoclinic.org/comment/843285/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023