Blood Cancers & Disorders Support Group

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Comments (896)

I was diagnosed with CLL at age 54 & I’m now 82. It is a watch...

https://connect.mayoclinic.org/comment/1098525/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

has anyone discussed the green tea extract-(10,000 mg daily) massive effect on cll ? 7 years-...

https://connect.mayoclinic.org/comment/777453/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2022

Actually my labs were better this time. I did start taking magnesium. I have CLL. I...

https://connect.mayoclinic.org/comment/1175941/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2024

Hey there @terlato I am so glad to find your post. I was recently diagnosed with...

https://connect.mayoclinic.org/comment/1070574/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

@bochos Hi. It is interesting that you have light night sweats. So do I. I have...

https://connect.mayoclinic.org/comment/1518090/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 5:34pm

@sveta25 Oh so sorry I have never heard of CLL on the brain, only blood &...

https://connect.mayoclinic.org/comment/1486777/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 5:57pm

Hi Carol! I’d say that’s some gooder news with the steroid injections! In fact I’d change...

https://connect.mayoclinic.org/comment/1081416/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

You mean this does not make sense (from my FISH)? I focused on the 2nd and...

https://connect.mayoclinic.org/comment/950464/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

Hello, I have had CLL for 3/4 years. The first 3 years it was dormant if...

https://connect.mayoclinic.org/comment/1398544/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Why are people so stubborn to get diagnosed. It’s just better to find out so it...

https://connect.mayoclinic.org/comment/1081902/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Let us know what treatment he will be getting?? My husband recently diagnosed with CLL leukemia,...

https://connect.mayoclinic.org/comment/716164/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2022

Congratulations!!! My husband was diagnosed with CLL 3 years ago, his WBC is 127 now versus...

https://connect.mayoclinic.org/comment/1458897/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

Hi! I’ve been that route. The rituxan worked actually too good for me. My marrow stopped...

https://connect.mayoclinic.org/comment/304671/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 27, 2020

Hi Kellim, I am 84 and diagnosed w CLL just over 2 years and have been...

https://connect.mayoclinic.org/comment/790604/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

Welcome to Connect, @mylove. Your @name is so sweet. I’m thinking you and your husband may...

https://connect.mayoclinic.org/comment/1061974/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Dr. Chanan Khan, at Mayo, has done a huge amount of research on CLL. He is...

https://connect.mayoclinic.org/comment/113633/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2018

I would hope that all of us with CLL have had either a chromosome test or...

https://connect.mayoclinic.org/comment/1290117/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2025

Dear Boocat, I have CLL and want to take the EGCG. I have read somewhere that...

https://connect.mayoclinic.org/comment/799205/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2023

CLL was a shocker to me, too. But, I'm in stage Zero where it's just watched....

https://connect.mayoclinic.org/comment/739400/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2022

Hi @cormac, I’m tagging @bullwinkle who had mentioned, "I may be in a trial which would...

https://connect.mayoclinic.org/comment/211171/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2020