Blood Cancers & Disorders Support Group

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Comments (436)

I just went from blood work monthly to every three months. I think either God is...

https://connect.mayoclinic.org/comment/986088/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Some symptoms have included fatigue, suseptability to infections, minor bruising , anemia, and frequent pre cancer...

https://connect.mayoclinic.org/comment/50534/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

I was treated for high platelets for years,About three years I was diagnosed with myelofibroma by...

https://connect.mayoclinic.org/comment/132601/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2017

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Just so we're all on the same page, here's what yr referencing: Cytoreductive treatment with hydroxyurea...

https://connect.mayoclinic.org/comment/1297950/

Discussion: What’s the cost of Pegasys with good commercial insurance?

Support Group: Blood Cancers & Disorders

Posted: May 6 7:00am

I, too, have Myelofibrossis. I started Ojarra 100mg 4 months ago due to spleen discomfort. That...

https://connect.mayoclinic.org/comment/1252322/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7 8:04am

Are you seeing a hematologist? You should be seeing a specialist to get the best information....

https://connect.mayoclinic.org/comment/1362239/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 2 1:52pm

I had this for years. Scopes, turned up nothing. I finally got a hemotologist to look...

https://connect.mayoclinic.org/comment/1296301/

Discussion: Is this considered Anemia ?

Support Group: Blood Cancers & Disorders

Posted: May 4 9:38am

And complaining? Lol. Seriously, it Could be an enlarged spleen which sits above your stomach making...

https://connect.mayoclinic.org/comment/132651/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2020

I've been on anagrelide for 40 years with out a problem till this year & now...

https://connect.mayoclinic.org/comment/1102252/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

I had ET for over 17 years. I was diagnosed at age 45. After the first...

https://connect.mayoclinic.org/comment/957613/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Hello @jaylevel1, welcome to Connect. It is my understanding, and I am not a medical professional,...

https://connect.mayoclinic.org/comment/226228/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2018

When was his last blood test? Red platlet count ? White cell count? Where is pain...

https://connect.mayoclinic.org/comment/50521/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017

I agree that there are many unknowns about MF, even despite all the advances in research...

https://connect.mayoclinic.org/comment/957597/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

My first meeting with an oncologist after an accurate diagnosis of Primary Mylofibrosis was disturbing. She...

https://connect.mayoclinic.org/comment/1313191/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26 9:31am