Blood Cancers & Disorders Support Group

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Comments (896)

I was diagnosed in 2021 and my hematologist/oncologist guessed I had probably had it for at...

https://connect.mayoclinic.org/comment/965569/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023

@hgoerzen, I hope you saw the helpful post from @minnesotajim. CLL is a slow growing leukemia...

https://connect.mayoclinic.org/comment/1460878/

Discussion: CLL diagnosis: Anyone on watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2025

Good morning, @mcconachie. You seem very positive and disciplined, which is really giving you some healthy...

https://connect.mayoclinic.org/comment/1400955/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2025

I was diagnosed with CLL about 10 years ago and up to now I have had...

https://connect.mayoclinic.org/comment/989802/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Hi @gg17, I'd like to bring @wolfbauer @engelee and @hanark0068 into this discussion as they also...

https://connect.mayoclinic.org/comment/304661/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2020

Hi, I am interested in learning more about your infusions; are they beneficial in helping your...

https://connect.mayoclinic.org/comment/165743/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2018

Thats so great and encouraging to hear! I also have osteopenia.....I have a PET scan this...

https://connect.mayoclinic.org/comment/832044/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

I am inclined to think my bad back pain, fatigue, and numbness in finger tips is...

https://connect.mayoclinic.org/comment/860828/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2023

Trying again. I saw that a second bivalent Covid vaccine is nearing approval for us. That...

https://connect.mayoclinic.org/comment/845670/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

I am being treated for acute hemolytic anemia with Rituxan (I've had 4 infusions) and will...

https://connect.mayoclinic.org/comment/304670/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 27, 2020

Hi @wmisyr, Chronic Lymphatic Leukemia (CLL) is generally a slowly developing blood disease. So it’s not...

https://connect.mayoclinic.org/comment/765480/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

I'm one the 1% who have CLL, which is considered chronic, incurable, go into what is...

https://connect.mayoclinic.org/comment/946358/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

Funny, I have cll and pv, was being treated for pv with hu but when i...

https://connect.mayoclinic.org/comment/737663/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

My Dad was diagnosed in his 70's with CLL and has been taking Imbruvica 140mg every...

https://connect.mayoclinic.org/comment/1312958/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

CLL diagnosis- After a diagnosis of any type of cancer most, including myself, search for life...

https://connect.mayoclinic.org/comment/1324785/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

@gmack, good luck Gary .. The Imbruvica has ABSOLUTELY been life changing for my husband .....

https://connect.mayoclinic.org/comment/113599/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2017

Thank you I have CLL and the Oncologist spent an hour explaining that I’m ok and...

https://connect.mayoclinic.org/comment/1281005/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Good morning, @pike70 Chronic Lymphocytic Leukemia (CLL) is a cancer of the blood in a group...

https://connect.mayoclinic.org/comment/695487/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2022

Welcome to Connect, @dhamra. We can drive ourselves crazy trying to figure out when, how, or...

https://connect.mayoclinic.org/comment/1094363/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

B-PLL no longer exists per the upcoming 5th edition of the World Health Organization Classification of...

https://connect.mayoclinic.org/comment/756812/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022