Blood Cancers & Disorders Support Group

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Comments (634)

Good morning, @jerrysgirl3. Let’s get you in contact with Mayo. Here’s a link to get you...

https://connect.mayoclinic.org/comment/925030/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2023

Welcome to Connect, @gabadoo24. I also had to look up NXG as I’m not familiar with...

https://connect.mayoclinic.org/comment/991300/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2024

@elissams143 I had a right lymph node biopsy in jan/23 giving me the CLL/SLL diagnosis; im...

https://connect.mayoclinic.org/comment/847596/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

I had a fast moving version of CLL. I was told I would die if I...

https://connect.mayoclinic.org/comment/113628/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

I can appreciate your comment on "not comfortable, but tolerable" and wanted to add that it...

https://connect.mayoclinic.org/comment/654578/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

Hi everyone, it has been 2 days short of a year since I found this group....

https://connect.mayoclinic.org/comment/1106316/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

diagnosed with cll in april 2016- age 62- began immediate green tea extract supplement of 5,000...

https://connect.mayoclinic.org/comment/719405/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2022

I know taking medication is very risky. I carry my card with me all the time....

https://connect.mayoclinic.org/comment/647851/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2021

Hi @aleeab! I just spoke to another member this morning who has a different blood condition...

https://connect.mayoclinic.org/comment/864146/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

I do hope you remain stable and I also hope the NP knows when to refer...

https://connect.mayoclinic.org/comment/1177169/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

@dani349. I’m a firm believer that knowledge is power. The article I recommended is a good...

https://connect.mayoclinic.org/comment/1043133/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2024

Hi Justin, Thank you for the links. I will read them right away. Yes, I am...

https://connect.mayoclinic.org/comment/296623/

Discussion: Can CLL be hereditary?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2020

Hi @vero210, mom’s are notorious for ‘I’m fine, nothing’s wrong’… She’s lucky to have an attentive...

https://connect.mayoclinic.org/comment/828374/

Discussion: What are Smudge Cells? Do they indicate CLL?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

Hi @joeeduffy, I know you’re desperately seeking advice about your husband’s potential diagnosis of CLL. What...

https://connect.mayoclinic.org/comment/1020570/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2024

Welcome to Connect, @lambo1 You sure jumped in with both feet having all this medical excitement...

https://connect.mayoclinic.org/comment/947474/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2023

Now 8 or 9 years at level 0 and though I get a little tired at...

https://connect.mayoclinic.org/comment/864401/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2023

Hi @kayabbott. I’m going nudge you over to this discussion in the Osteoporosis Support group to...

https://connect.mayoclinic.org/comment/1025953/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Thanks so much. Yes, I’m in active surveillance with my local hemo/onc, with a standing invitation...

https://connect.mayoclinic.org/comment/914124/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Hello & Happy Friday. I just got off the call with my doctor and will start...

https://connect.mayoclinic.org/comment/785611/

Discussion: Pending testing to confirm type of lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

Hey ! That is awesome ! I can understand why your sister refuses! It could change...

https://connect.mayoclinic.org/comment/1081432/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024