Blood Cancers & Disorders Support Group

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Comments (912)

As a note about what is happening, I am on active "Watch & Wait" protocol and...

https://connect.mayoclinic.org/comment/1317873/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

I'm 80 years young, was diagnosed with CLL in 2004 and was under Dr P. Kaywin...

https://connect.mayoclinic.org/comment/113600/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2017

@gails53 Thank you so much for shattering your experience. We’ll definitely request the hematologist to pay...

https://connect.mayoclinic.org/comment/1549645/

Discussion: Please Share Your Experience With Obinutuzumab Infusion

Support Group: Blood Cancers & Disorders

Posted: 10 hours ago

It has been a long time since I have added anything to this site mainly because...

https://connect.mayoclinic.org/comment/1013720/

Discussion: CLL: Has anyone experienced symptoms at Stage 0?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

I've been on Brukinsa since June'24. No side effects so far. I take 2 pills twice...

https://connect.mayoclinic.org/comment/1398199/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

@elainejarrett I am on watch and wait with CLL/SLL; diagnosed Jan 2023. MRI/CT scan show enlarged...

https://connect.mayoclinic.org/comment/825813/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

@ssid Hi Cindy, my husband has CLL that was diagnosed in 2023, his WBC is 127...

https://connect.mayoclinic.org/comment/1455323/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

Yes, l was diagnosed in January of this year with CLL/SLL. Still working with the oncologist...

https://connect.mayoclinic.org/comment/1278517/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2025

@jmds66 Are you having treatment or wait and watch? I am 62 yrs and I was...

https://connect.mayoclinic.org/comment/842439/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

I was diagnosed in 2021 and my hematologist/oncologist guessed I had probably had it for at...

https://connect.mayoclinic.org/comment/965569/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023

Good morning, @mcconachie. You seem very positive and disciplined, which is really giving you some healthy...

https://connect.mayoclinic.org/comment/1400955/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2025

I was diagnosed with CLL about 10 years ago and up to now I have had...

https://connect.mayoclinic.org/comment/989802/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Hi @gg17, I'd like to bring @wolfbauer @engelee and @hanark0068 into this discussion as they also...

https://connect.mayoclinic.org/comment/304661/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2020

@hgoerzen, I hope you saw the helpful post from @minnesotajim. CLL is a slow growing leukemia...

https://connect.mayoclinic.org/comment/1460878/

Discussion: CLL diagnosis: Anyone on watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2025

I am inclined to think my bad back pain, fatigue, and numbness in finger tips is...

https://connect.mayoclinic.org/comment/860828/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2023

Trying again. I saw that a second bivalent Covid vaccine is nearing approval for us. That...

https://connect.mayoclinic.org/comment/845670/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

I am being treated for acute hemolytic anemia with Rituxan (I've had 4 infusions) and will...

https://connect.mayoclinic.org/comment/304670/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 27, 2020

Thats so great and encouraging to hear! I also have osteopenia.....I have a PET scan this...

https://connect.mayoclinic.org/comment/832044/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

I'm one the 1% who have CLL, which is considered chronic, incurable, go into what is...

https://connect.mayoclinic.org/comment/946358/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

Hi @wmisyr, Chronic Lymphatic Leukemia (CLL) is generally a slowly developing blood disease. So it’s not...

https://connect.mayoclinic.org/comment/765480/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022