Blood Cancers & Disorders Support Group

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Comments (760)

Hi @susan1000, welcome. You may wish to connect with others living with mantle cell lymphoma in...

https://connect.mayoclinic.org/comment/750557/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2022

Thanks so much for sharing your journey. You are very strong and a great example for...

https://connect.mayoclinic.org/comment/1250366/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 4 12:50pm

Reading this last message had me holding my breath! Your poor, sweet sister! That’s just crazy...

https://connect.mayoclinic.org/comment/1112890/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Lori, I have seen many posts from you, all seem to be so uplifting. My husband...

https://connect.mayoclinic.org/comment/1041638/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 28, 2024

There was a recent comment on paradox effect. Can't remember the focus. I have MDS/AML the...

https://connect.mayoclinic.org/comment/1243923/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 3:24pm

treehouse5437 Reading your post i wondered if you are at the very start of treatment or...

https://connect.mayoclinic.org/comment/1244913/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 7:23pm

I’m not a geneticist so I’m limiting my comments accordingly. The ASXL1 mutation appears in many...

https://connect.mayoclinic.org/comment/329373/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

I expect your sister is feeling a little more perky tonight after her transfusion today. I’m...

https://connect.mayoclinic.org/comment/1120359/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

@donnamae90 Fatigue is a problem with MDS. I too live alone. I have accepted that I...

https://connect.mayoclinic.org/comment/1193426/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Hi, I hope you don’t mind me commenting but I just had to share that my...

https://connect.mayoclinic.org/comment/1080466/

Discussion: Have you been able to reverse Anemia of Chronic Disease (ACD)?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

Hi! I’m Allison! Was just diagnosed on Monday with MDS Single Lineage Dysplasia. I have the...

https://connect.mayoclinic.org/comment/1346734/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Happy Birthday to you too, @janetlen. We’re both Classy Chassis, eh? 😉 Not sure I’m in...

https://connect.mayoclinic.org/comment/986993/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

Hi Lori, I didn’t want to post this in the other chat, but my brother who...

https://connect.mayoclinic.org/comment/1117789/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

The Bone Marrow procedure is a first step. He should also do a molecular panel to...

https://connect.mayoclinic.org/comment/328572/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020

Hi Bonnie, I’m saddened that you have been diagnosed with MDS/MPN-RS-T. I remember my original diagnosis...

https://connect.mayoclinic.org/comment/970297/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Thank you to all of you for your comments, suggestions (especially regarding attitude), and explanations. Although...

https://connect.mayoclinic.org/comment/928377/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

I am curious as well about the transplant. My husband has MDS (Myelodysplastic syndrome) another bone...

https://connect.mayoclinic.org/comment/771944/

Discussion: Anyone have bone marrow transplant for aplastic anemia?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 11, 2022

Hi, ı am a patient who does have a MF/MDS overlap with JAk2 and SBF31 mutations,...

https://connect.mayoclinic.org/comment/328555/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

huron Have you entered either of these 2 cancers above in the search. There are many...

https://connect.mayoclinic.org/comment/1276353/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7 10:48am

I too have MDS. Mainly my red blood cells are affected but he does watch my...

https://connect.mayoclinic.org/comment/801152/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023