Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

751 total results

Comments (697)

My hemotologist has me on the Hydro and Anagrelide plus a low dose aspirin. I tell...

https://connect.mayoclinic.org/comment/800332/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

I was diagnosed with MDS-IB2 on April 11, 2024. I signed a consent form to begin...

https://connect.mayoclinic.org/comment/1063768/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2024

My husband also has mDS. He was considered mild but his levels are very low(platelets 24)...

https://connect.mayoclinic.org/comment/1053717/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Please get you a good hematologist and then if any unusual symptoms come up you should...

https://connect.mayoclinic.org/comment/888019/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

Hi @eibsee1948, Welcome to Connect. My goodness, you have a platelet level of 3? That’s dangerously...

https://connect.mayoclinic.org/comment/758584/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2022

Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...

https://connect.mayoclinic.org/comment/1043541/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

I have MDS/MPN overlap with Thrombocytosis and MF and I've been on Hydrea to reduce my...

https://connect.mayoclinic.org/comment/146301/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2020

All I can say is that I was never treated for CLL, My CLL turned into...

https://connect.mayoclinic.org/comment/101825/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

I told my Oncologist that I would not go through a stem cell transplant after 80....

https://connect.mayoclinic.org/comment/870265/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

My husband was 69 at the time of his diagnosis for MDS and after his first...

https://connect.mayoclinic.org/comment/1267584/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 26 6:55pm

My Dr does not have good bedside demeanor. Very short on details from my questions. It...

https://connect.mayoclinic.org/comment/1195327/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Hi @pixiesusan You have some very good questions that deserve answers. Both CCUS and MDS are...

https://connect.mayoclinic.org/comment/1147249/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

As a MDS person I feel compeled to mention what my Dr. (Oncologist) has tried for...

https://connect.mayoclinic.org/comment/1099658/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Thank you for this post. It is very helpful to me. My husband was diagnosed with...

https://connect.mayoclinic.org/comment/995350/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 11, 2024

I was diagnosed low risk MDS two years ago. My platelets have been steadily rising since...

https://connect.mayoclinic.org/comment/827434/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

I am a 76 year old male who is now living with Myelodysplastic syndrome, ringed sidero...

https://connect.mayoclinic.org/comment/926981/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Welcome to Connect, @camacho. I’m sure with your wife’s recent diagnosis of MDS (myelodyplastic syndrome) you...

https://connect.mayoclinic.org/comment/924707/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

@chzuck I would demand a repeat of the blood work in 90 days. If values are...

https://connect.mayoclinic.org/comment/1102819/

Discussion: Blood Test Results Concerning

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Honestly, if you told my husband his MDS was back I’m not sure what he would...

https://connect.mayoclinic.org/comment/980220/

Discussion: Relapsed AML: Anyone choosing no treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I was very fortunate. I was diagnosed with MDS in 2019 and only needed one transfusion...

https://connect.mayoclinic.org/comment/928051/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023