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Polycythemia causing enlarged spleen
My doctor (oncologist) had me have an ultrasound to check the size of my spleen and it showed it to be enlarged at 18cm with normal being about 12cm.
I was diagnosed with PV three years ago and have been on hydroxyurea with periodic phlebotomies since then. My red and white blood cells and platelet #’s are consistently above normal. They have remained stable and I have not needed a phlebotomy for a year. Next visit with my doctor is next month. I don’t have any discomfort or pain from this and I’m taking the hydroxy 4x week @ 500mg.
Anyone here dealing with this? Not finding much info as to what my treatment options might be. Thanks!
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After many years of dealing with MDS and MF my spleen was Huge. I had a good deal of pain and could not eat very much at a time. The doctor started me on VONJO, and my spleen shrank back down very quickly! I've been on VONJO for the past couple years and the Spleen has not enlarged again.
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2 ReactionsI have PV, now for 4 years, extremely high PLT counts, high WBC and many other anomalies but my spleen is in good shape. No enlargement, no distress at all. My diet is very good, lots of fruits and vegetables, no processed meats and almost no processed foods at all plus a limited amount of sweets. Actually, I feel rather good and not really suffering from this blood disease. Your body is an organic machine, take care of it by supplying it with high quality fuels.
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2 ReactionsThanks! I’ll look into that