Blood Cancers & Disorders Support Group

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Comments (916)

@cgirl0721, I’d like to invite @auntieoakley into this discussion. She has been a caregiver to a...

https://connect.mayoclinic.org/comment/707219/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2022

I don’t know anything about MDS but my hubby (who has multiple myeloma) has taken revlomid...

https://connect.mayoclinic.org/comment/1397869/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

Yes, it will take more of your time but having the "correct attitude is VERY important."...

https://connect.mayoclinic.org/comment/1108183/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024

I have kappa light chain MGUS. My IgA, IgM, IgG and other bloodwork have been ramping...

https://connect.mayoclinic.org/comment/932979/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2023

I've had IgA Kappa Light Chain MGUS for 8 years (70 yo) and my Kappa is...

https://connect.mayoclinic.org/comment/1193967/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

I found this information which I believe is credible. The article source is attached. https://pmc.ncbi.nlm.nih.gov/articles/PMC1895159/ “MGUS...

https://connect.mayoclinic.org/comment/1272777/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

I have IgA Kappa free light chain smouldering multiple myeloma (SMM) (my MGUS [monoclonal gammopathy of...

https://connect.mayoclinic.org/comment/1545506/

Discussion: What do elevated Iga mean?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 8:59am

Hi Deborah, what kind of practice are you working with now to have your bloodwork monitored?...

https://connect.mayoclinic.org/comment/813340/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

@nancyworld Even the specialists seem to be very specialized. I poked around until I found someone...

https://connect.mayoclinic.org/comment/987752/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Hi, I am new to this group and to Multiple Myeloma. Currently I am diagnosed as...

https://connect.mayoclinic.org/comment/797821/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

Good morning, @tristram, Zometa is a medication which can help prevent bone damage for patients with...

https://connect.mayoclinic.org/comment/839806/

Discussion: Zometa Experiences

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2023

@skipmon Welcome to Mayo Connect. I am sure you want answers quickly. You can either self...

https://connect.mayoclinic.org/comment/1423312/

Discussion: How do I make an appointment with Oncology?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2025

@cgirl0721 It is good to see you are looking in to this, as a family member...

https://connect.mayoclinic.org/comment/705336/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2022

@gingerw Weird thing. I was in a car accident. I swerved to avoid a deer and...

https://connect.mayoclinic.org/comment/1521210/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6 5:31pm

I've been following your post about MGUS, which I also have. If you don't mind me...

https://connect.mayoclinic.org/comment/996841/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Please try to stay positive for your sons' sakes. Try to live a normal life. You...

https://connect.mayoclinic.org/comment/900324/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

@laurie6 Welcome to Mayo Clinic Connect. Great attitude! In the end, we need to be our...

https://connect.mayoclinic.org/comment/854314/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: May 4, 2023

https://www.facebook.com/photo?fbid=488680226637801&set=pb.100064874824712.-2207520000. Please call this number to find your nearest qualified Multiple Myeloma specialist. Ask the person...

https://connect.mayoclinic.org/comment/764870/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2022

I have just been found to have MGUS, after asking my PCP for recommendations after 60...

https://connect.mayoclinic.org/comment/1357219/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

I too had a recent lab test which revealed an elevated light chain issue, and the...

https://connect.mayoclinic.org/comment/830335/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

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