Blood Cancers & Disorders Support Group

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Comments (236)

Diagnosed with MDS. I am very interested if there are other drugs than Vidaza? And if...

https://connect.mayoclinic.org/comment/1283488/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Our doctor said he has had patients do well on Vidaza for many years.

https://connect.mayoclinic.org/comment/251920/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

Hello @dchavian, welcome to Connect. I invite you to look at the following discussion in addition...

https://connect.mayoclinic.org/comment/251917/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2019

Hi Linda, I am not familiar with Decetabine. I was on Vidaza and Venclexta. Congratulations on...

https://connect.mayoclinic.org/comment/890447/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

I was diagnosed with MDS over two years ago. My Hgb was at 7 at that...

https://connect.mayoclinic.org/comment/1142396/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

I am on my 37th Cycle with Vidaza (that's over 3 years) and have not had...

https://connect.mayoclinic.org/comment/1328437/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Hello @justmeb5 Did you mean Vidaza and not Livaza? From my understanding, epoetin and Vidaza aren’t...

https://connect.mayoclinic.org/comment/1282886/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2025

Hi @jalan00 You’re not rambling at all! You’re being very proactive in trying to find information...

https://connect.mayoclinic.org/comment/1483725/

Discussion: How long can you be on azacitidine/vidaza?

Support Group: Blood Cancers & Disorders

Posted: Jan 16 9:51am

Just make sure while you are getting your monthly Vidaza treatments to take Ondansetron for nausea....

https://connect.mayoclinic.org/comment/1328457/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

I use ventoclax 7 days at 400 mg with vidaza 3 days seems to be my...

https://connect.mayoclinic.org/comment/1176765/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

Hi @jonkerri, I'm tagging a few members who have experience with azacitidine (Vidaza) like @encb27 @tampakaren...

https://connect.mayoclinic.org/comment/1232595/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025

Jeffrey, I can tell you my husband’s experience with treatment and what we’ve learned from doctors....

https://connect.mayoclinic.org/comment/1300991/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025

Five days of vidaza.. once a month...every day take one venetoclax..this has worked for me ...but...

https://connect.mayoclinic.org/comment/1500786/

Discussion: Anyone take Vidaza and Venetoclax for Acute Myeloid Leukemia (AML)?

Support Group: Blood Cancers & Disorders

Posted: Feb 8 10:09am

I am 76. I have been on Vidaza for over three years with no side effects....

https://connect.mayoclinic.org/comment/1328440/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Hi @n1128q Welcome to Connect. Vidaza is a frontline medication for patients with MDS. I can...

https://connect.mayoclinic.org/comment/1565652/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 3 1:51pm

There was a recent comment on paradox effect. Can't remember the focus. I have MDS/AML the...

https://connect.mayoclinic.org/comment/1243923/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

husband has been on hold for cycle 3 due to low neutrophils and platelets. he is...

https://connect.mayoclinic.org/comment/1377280/

Discussion: Side effects of Vidaza injections

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2025

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Weekly labs being done. Hgb remaining around 9.9 and Hct around 30. Not seeing MD for...

https://connect.mayoclinic.org/comment/1399683/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025

It took a few months for the vidaza to kick in….you will be fine…good health to...

https://connect.mayoclinic.org/comment/1328642/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

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