Blood Cancers & Disorders: Discussions | Page 2

https://connect.mayoclinic.org/comment/1385152/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2 2:33pm

I was diagnosed with MDS over two years ago. My Hgb was at 7 at that...

https://connect.mayoclinic.org/comment/1142396/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

Hi Linda, I am not familiar with Decetabine. I was on Vidaza and Venclexta. Congratulations on...

https://connect.mayoclinic.org/comment/890447/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Our doctor said he has had patients do well on Vidaza for many years.

https://connect.mayoclinic.org/comment/251920/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

@pinch, welcome. Have you started treatment with azacitidine (Vidaza)? How is it going so far?

https://connect.mayoclinic.org/comment/1187051/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2024

Just make sure while you are getting your monthly Vidaza treatments to take Ondansetron for nausea....

https://connect.mayoclinic.org/comment/1328457/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16 1:24pm

Hello @dchavian, welcome to Connect. I invite you to look at the following discussion in addition...

https://connect.mayoclinic.org/comment/251917/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2019

Hello @justmeb5 Did you mean Vidaza and not Livaza? From my understanding, epoetin and Vidaza aren’t...

https://connect.mayoclinic.org/comment/1282886/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 11:29pm

Diagnosed with MDS. I am very interested if there are other drugs than Vidaza? And if...

https://connect.mayoclinic.org/comment/1283488/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 4:12pm

Hi @jonkerri, I'm tagging a few members who have experience with azacitidine (Vidaza) like @encb27 @tampakaren...

https://connect.mayoclinic.org/comment/1232595/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 8 8:28pm

I am on my 37th Cycle with Vidaza (that's over 3 years) and have not had...

https://connect.mayoclinic.org/comment/1328437/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16 1:05pm

I use ventoclax 7 days at 400 mg with vidaza 3 days seems to be my...

https://connect.mayoclinic.org/comment/1176765/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

There was a recent comment on paradox effect. Can't remember the focus. I have MDS/AML the...

https://connect.mayoclinic.org/comment/1243923/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 3:24pm

Jeffrey, I can tell you my husband’s experience with treatment and what we’ve learned from doctors....

https://connect.mayoclinic.org/comment/1300991/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: May 10 9:26am

I am 76. I have been on Vidaza for over three years with no side effects....

https://connect.mayoclinic.org/comment/1328440/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16 1:07pm

We're going to start with what the doctor advises: 1 week of the Vidaza, then 3...

https://connect.mayoclinic.org/comment/1385949/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 3 3:56pm

It took a few months for the vidaza to kick in….you will be fine…good health to...

https://connect.mayoclinic.org/comment/1328642/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16 6:50pm

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Hi @tawakol, It’s been several months since we’ve spoken. I just wanted to check in with...

https://connect.mayoclinic.org/comment/1364812/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 6 8:55am

Your hematologist oncologist would be the person to set the dosages for you with these meds....

https://connect.mayoclinic.org/comment/1332069/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jun 21 2:02pm

Blood Cancers & Disorders Support Group