Blood Cancers & Disorders: Discussions | Page 2

Welcome to Connect, @dax1million. Myelofibrosis is one of several conditions that is associated with MPNs…myeloproliferative neoplasms....

https://connect.mayoclinic.org/comment/1249272/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 8:49am

Thanks for the summary. Yes I have Primary Myelofibrosis. I was diagnosed a year ago.

https://connect.mayoclinic.org/comment/1322127/

Discussion: Any information om using CAR-T cell techniques to treat myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jun 7 8:23am

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Hi @toste, and welcome to Mayo Clinic Connect! This is a new one on me. I...

https://connect.mayoclinic.org/comment/1369923/

Discussion: Are their support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 13 1:33pm

Hi @loribmt That was a very good video. I think doctors have a hard time telling...

https://connect.mayoclinic.org/comment/1369265/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 12 3:50pm

I’m facing a bone marrow transplant due to myelofibrosis. I have been taking Jakavi for high...

https://connect.mayoclinic.org/comment/1356198/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 25 1:18pm

Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...

https://connect.mayoclinic.org/comment/1043541/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

I had horrible thorax itching years before being diagnosed with Myelofibrosis. No specialist could determine the...

https://connect.mayoclinic.org/comment/875274/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

988 when diagnosed with ET on 1/10/25 and 844 when diagnosis changed to Myelofibrosis one 2/10/25

https://connect.mayoclinic.org/comment/1281844/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 3:06pm

Thank you @1pearl It seems like of the blood disorders with Myelofibrosis there are different versions....

https://connect.mayoclinic.org/comment/1348784/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15 11:43am

Good luck at Mayo. Would really appreciate hearing about info. received at Mayo re.. Myelofibrosis. Important...

https://connect.mayoclinic.org/comment/50511/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

I’ve been on Hydrea for ten months for lymphoma and myelofibrosis. The only side effect I’ve...

https://connect.mayoclinic.org/comment/1278721/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 1:31pm

Welcome to Connect, @godschild56. I encourage you to view this more recent discussion where you will...

https://connect.mayoclinic.org/comment/68481/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2020

Welcome to Connect, @drmshadowrid. It sounds like you’re having good success with Jakafi but that is...

https://connect.mayoclinic.org/comment/1091634/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

I corrected the broken link. See this video of Dr. Ayalew Tefferi discussing potential drugs for...

https://connect.mayoclinic.org/comment/132648/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2020

My husband was diagnosed with myelofibrosis about a month and half ago. During a blood work...

https://connect.mayoclinic.org/comment/1252712/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 3:39pm

Hi nohrt4me, Thank you for posting. I totally agree with you that we have to work...

https://connect.mayoclinic.org/comment/1313253/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26 10:59am

Hi @carolannt, if you would like to get a second opinion at Mayo Clinic, you can...

https://connect.mayoclinic.org/comment/963448/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Amanda-I am 74 & was diagnosed with myelofibrosis in 2016. Just interested in overall discussions of...

https://connect.mayoclinic.org/comment/674388/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Check out this article: https://us.gsk.com/en-us/media/press-releases/ojjaara-momelotinib-approved-in-the-us-as-the-first-and-only-treatment-indicated-for-myelofibrosis-patients-with-anemia/

https://connect.mayoclinic.org/comment/1101000/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

Blood Cancers & Disorders Support Group