Blood Cancers & Disorders: Discussions | Page 2

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...

https://connect.mayoclinic.org/comment/1043541/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

I had horrible thorax itching years before being diagnosed with Myelofibrosis. No specialist could determine the...

https://connect.mayoclinic.org/comment/875274/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

I’ve been on Hydrea for ten months for lymphoma and myelofibrosis. The only side effect I’ve...

https://connect.mayoclinic.org/comment/1278721/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 1:31pm

Hi nohrt4me, Thank you for posting. I totally agree with you that we have to work...

https://connect.mayoclinic.org/comment/1313253/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26 10:59am

Good luck at Mayo. Would really appreciate hearing about info. received at Mayo re.. Myelofibrosis. Important...

https://connect.mayoclinic.org/comment/50511/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

Welcome to Connect, @godschild56. I encourage you to view this more recent discussion where you will...

https://connect.mayoclinic.org/comment/68481/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2020

Welcome to Connect, @drmshadowrid. It sounds like you’re having good success with Jakafi but that is...

https://connect.mayoclinic.org/comment/1091634/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

I corrected the broken link. See this video of Dr. Ayalew Tefferi discussing potential drugs for...

https://connect.mayoclinic.org/comment/132648/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2020

My husband was diagnosed with myelofibrosis about a month and half ago. During a blood work...

https://connect.mayoclinic.org/comment/1252712/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 3:39pm

Check out this article: https://us.gsk.com/en-us/media/press-releases/ojjaara-momelotinib-approved-in-the-us-as-the-first-and-only-treatment-indicated-for-myelofibrosis-patients-with-anemia/

https://connect.mayoclinic.org/comment/1101000/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

Hi @carolannt, if you would like to get a second opinion at Mayo Clinic, you can...

https://connect.mayoclinic.org/comment/963448/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Amanda-I am 74 & was diagnosed with myelofibrosis in 2016. Just interested in overall discussions of...

https://connect.mayoclinic.org/comment/674388/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

I had terrible thorax itching. Xanax stops it fast!!! And my itching was more than likely...

https://connect.mayoclinic.org/comment/905705/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2023

I get bulletins from Patient Power about drug therapies, and am bookmarking this one that lays...

https://connect.mayoclinic.org/comment/1329826/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 18 10:52am

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

I guess it depends on the hematologist/oncologist’s experience. I was never offered the option - I...

https://connect.mayoclinic.org/comment/877816/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

I was diagnosed with myelofibrosis a year ago, along with B-cell lymphoma. I’m taking Hydroxyurea with...

https://connect.mayoclinic.org/comment/1264930/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 12:31pm

I have a different diagnosis than you so you can look at my list and substitute...

https://connect.mayoclinic.org/comment/1308354/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 20 8:35am

@samlupowitz, if you would like to seek a second opinion from Mayo experts in myelofibrosis and...

https://connect.mayoclinic.org/comment/808434/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Blood Cancers & Disorders Support Group