Blood Cancers & Disorders: Discussions | Page 1

Welcome to Connect, @drmshadowrid. It sounds like you’re having good success with Jakafi but that is...

https://connect.mayoclinic.org/comment/1091634/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22 9:21am

Welcome to Connect, @godschild56. I encourage you to view this more recent discussion where you will...

https://connect.mayoclinic.org/comment/68481/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2020

I have been diagnosed with primary myelofibrosis for 6 yrs, after having elevated platelets, and after...

https://connect.mayoclinic.org/comment/1171967/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11 6:05pm

I corrected the broken link. See this video of Dr. Ayalew Tefferi discussing potential drugs for...

https://connect.mayoclinic.org/comment/132648/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2020

https://us.gsk.com/en-us/media/press-releases/ojjaara-momelotinib-approved-in-the-us-as-the-first-and-only-treatment-indicated-for-myelofibrosis-patients-with-anemia/

https://connect.mayoclinic.org/comment/1101018/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jul 7 12:31pm

Hi @carolannt, if you would like to get a second opinion at Mayo Clinic, you can...

https://connect.mayoclinic.org/comment/963448/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

I had terrible thorax itching. Xanax stops it fast!!! And my itching was more than likely...

https://connect.mayoclinic.org/comment/905705/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2023

Amanda-I am 74 & was diagnosed with myelofibrosis in 2016. Just interested in overall discussions of...

https://connect.mayoclinic.org/comment/674388/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Check out this article: https://us.gsk.com/en-us/media/press-releases/ojjaara-momelotinib-approved-in-the-us-as-the-first-and-only-treatment-indicated-for-myelofibrosis-patients-with-anemia/

https://connect.mayoclinic.org/comment/1101000/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jul 7 12:09pm

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13 9:06am

@samlupowitz, if you would like to seek a second opinion from Mayo experts in myelofibrosis and...

https://connect.mayoclinic.org/comment/808434/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

I guess it depends on the hematologist/oncologist’s experience. I was never offered the option - I...

https://connect.mayoclinic.org/comment/877816/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Hello @wellness3070, Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you...

https://connect.mayoclinic.org/comment/132602/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Hello @susanvij, Teresa, @hopeful33250 has provided some great information, and I would also encourage you to...

https://connect.mayoclinic.org/comment/50515/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2017

Hello @derikburger and welcome to Mayo Clinic Connect. It sounds like you may have been diagnosed...

https://connect.mayoclinic.org/comment/674287/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Welcome @iis. Are you asking whether the Jak2 mutation is hereditary? Here's more information that you...

https://connect.mayoclinic.org/comment/811076/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

Hi @raglus, I'm tagging @scottmatteo to make sure he sees your question about dietary changes. Have...

https://connect.mayoclinic.org/comment/859309/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

stimme, thank you for your contribution and I hope the acupuncture has helped. I came across...

https://connect.mayoclinic.org/comment/132617/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2020

Sorry, but I find it difficult to know how to enter the discussion without just replying...

https://connect.mayoclinic.org/comment/1165808/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 31 12:24pm

Blood Cancers & Disorders Support Group