Blood Cancers & Disorders Support Group

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Comments (567)

Hi @kippi1950, I found several discussion in Connect with members who have MDS or loved ones...

https://connect.mayoclinic.org/comment/895291/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Hi Steve, @schindsm, Welcome to Connect I’m sorry to hear about your mom’s diagnosis with MDS...

https://connect.mayoclinic.org/comment/1170515/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2024

@kgerbitz, I add my welcome. I moved your conversation with @loribmt about descreasing red blood cell...

https://connect.mayoclinic.org/comment/856601/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Hi Jean Pierre, There are so many. If you Google mds-foundation.org, you will get a map...

https://connect.mayoclinic.org/comment/961814/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2023

Hi @mkt24, I hope you have seen all the blood cancer-related discussions, in particular those related...

https://connect.mayoclinic.org/comment/1075284/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 26, 2024

Good morning, Bonnie, and welcome to Connect. My goodness, you and your brother have both had...

https://connect.mayoclinic.org/comment/1052948/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

https://connect.mayoclinic.org/comment/1032536/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024

Brenda, I was dignosed a year ago. But it is probable that the MDS was present...

https://connect.mayoclinic.org/comment/961490/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2023

Neutropenia results in less ability to fight organisms that wish to use your body. Neutropenia results...

https://connect.mayoclinic.org/comment/626424/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2021

Fatigue is a common symptom with all forms of Leukemia and MDS or MPN disorders. Hydrea...

https://connect.mayoclinic.org/comment/850175/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

That is understandable @bradmm, and I hope my inquiry was not offensive. I would like to...

https://connect.mayoclinic.org/comment/253115/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

No tx yet. Fish analysis MDs extended: issues: Del5q, trisomy 8 and 19 all detected abnormal.

https://connect.mayoclinic.org/comment/1202390/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

Welcome @hlmcneely, great to connect with @susan1000 in this discussion. You may also be interested in...

https://connect.mayoclinic.org/comment/750661/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

Welcome @gothman. There are different subtypes of MDS, some having more of a tendency to potentially...

https://connect.mayoclinic.org/comment/1195304/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

https://connect.mayoclinic.org/comment/1031190/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Hi Brenda! New here. Just diagnosed in July, but evidence suggests I have had the disease...

https://connect.mayoclinic.org/comment/985991/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Good morning Bonnie. I too have MDS. I was diagnosed last year, but believe I have...

https://connect.mayoclinic.org/comment/1053654/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Thanks, suetex! I looked up Reblozyl. It's Luspatercept, the drug Moffit Cancer Tampa, Dr. Rami Komrokji...

https://connect.mayoclinic.org/comment/1100293/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

You need to do bone marrow biopsy to detect MDS

https://connect.mayoclinic.org/comment/1110210/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2024

Anne - Marie I was reading the post and you made 2 remarks and I wonder...

https://connect.mayoclinic.org/comment/962383/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023