Blood Cancers & Disorders Support Group

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Comments (1,109)

You may also want to change to an MDS Center of Excellence. You can find listings...

https://connect.mayoclinic.org/comment/1365515/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

I really have no idea what caused my MDS. I thought, maybe because I smoked for...

https://connect.mayoclinic.org/comment/1607111/

Discussion: If you have MDS, do you think you got it?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Thanks again not sure if I have that could be MDS for me not sure if...

https://connect.mayoclinic.org/comment/817111/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Hi @twitt1949 Just popping into the conversation regarding your diagnosis of myelodyplastic syndromes (MDS). Myelodysplastic syndromes...

https://connect.mayoclinic.org/comment/1523979/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:22pm

Welcome, @jschellhaas. It is scary to get a new diagnosis. To help you connect others living...

https://connect.mayoclinic.org/comment/1198238/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

@randman Ok sounds good. Just for my own information, what does the Pet scan tell the...

https://connect.mayoclinic.org/comment/1533470/

Discussion: Can I drive home (3 hours) after a PET scan? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 10:15am

Welcome to Connect, @healthtree. MDS (Myelodyplastic syndromes) can be a very frustrating disease with some of...

https://connect.mayoclinic.org/comment/1579776/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: May 21 9:42am

So dx is MDs EB-2 gona be on meds an transfusions as needed any insight from...

https://connect.mayoclinic.org/comment/820915/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

@nancytrudeau. You’re so right, antihistamines can dry up more than a runny nose or relieve itching....

https://connect.mayoclinic.org/comment/1566184/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: May 4 8:40am

@katgob - you're in great hands at COH! Myelodysplastic syndromes (MDS) likely stem from a mix...

https://connect.mayoclinic.org/comment/1313497/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 26, 2025

Hi @revbobcoulson I admit MDS Extended isn’t a term I’ve heard before and not sure what...

https://connect.mayoclinic.org/comment/1202272/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

My dad was dx with MDS. He’s 79, is bone marrow and option?

https://connect.mayoclinic.org/comment/1561142/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 27 4:18pm

Welcome to Connect @lindak123 Since you were recently diagnosed with having Myelodyplastic syndromes (MDS) you probably...

https://connect.mayoclinic.org/comment/1364912/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

@kgerbitz, I add my welcome. I moved your conversation with @loribmt about descreasing red blood cell...

https://connect.mayoclinic.org/comment/856601/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Hi @kippi1950, I found several discussion in Connect with members who have MDS or loved ones...

https://connect.mayoclinic.org/comment/895291/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Hi @time4dje and welcome to Mayo Connect. Myelodysplastic syndromes (MDS) are a group of disorders caused...

https://connect.mayoclinic.org/comment/1564250/

Discussion: Radiation of spleen side effects…

Support Group: Blood Cancers & Disorders

Posted: May 1 2:52pm

Oh my. 93. I say go up to the subject line on the top of the...

https://connect.mayoclinic.org/comment/1365953/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Hi Jean Pierre, There are so many. If you Google mds-foundation.org, you will get a map...

https://connect.mayoclinic.org/comment/961814/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2023

MDS and Cladribine - I had (have) hairy-cell-leukemia ("successfully " treated). According to AI, Cladribine can...

https://connect.mayoclinic.org/comment/1470464/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2025

The GlobalRPh article reference below tells how a vitamin B12 deficiency can be mistaken as MDS....

https://connect.mayoclinic.org/comment/1327283/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2025

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