Blood Cancers & Disorders Support Group

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Comments (436)

How are you feeling today, @ann7449, after being on Jakafi for a couple of days?

https://connect.mayoclinic.org/comment/1012286/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2024

Would like to see group. I’m on Jakafi. Still messing around with dosage.

https://connect.mayoclinic.org/comment/1413021/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2025

@baygirl80 Yes!! When my Jakafi dosage was increased from 10 to 15 mg my skin cancer...

https://connect.mayoclinic.org/comment/1443894/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

I take Jakafi 10mg twice a day.

https://connect.mayoclinic.org/comment/887996/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

I am currently taking aspirin and Jakafi.

https://connect.mayoclinic.org/comment/771059/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022

I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had...

https://connect.mayoclinic.org/comment/1091493/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Instead of a chemo pill I take Jakafi.

https://connect.mayoclinic.org/comment/721141/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2022

@learnandlive was the squamous related to the Jakafi or sun exposure?

https://connect.mayoclinic.org/comment/1451249/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2025

I was diagnosed with PV three years ago. Started Jakafi 8 months ago.

https://connect.mayoclinic.org/comment/699312/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2022

Hi @emma1971, Welcome to Connect. The medication you’re referring to, Ruxolitinib is actually a medication used...

https://connect.mayoclinic.org/comment/1293785/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

@teriberi123, her Dr. did not approve it with Jakafi or with pacritinib.

https://connect.mayoclinic.org/comment/713038/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2022

I have ET. The info I got from my hemo is that Jakafi causes weight gain...

https://connect.mayoclinic.org/comment/751571/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2022

Jakafi helped immensely with my PV side effects.

https://connect.mayoclinic.org/comment/773849/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

Jakafi stopped the itching plus other symptoms for me.

https://connect.mayoclinic.org/comment/1363470/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

Hi Tim, I was diagnosed with myelofibrosis (JAK-2) in October 2025. Currently waiting for a second...

https://connect.mayoclinic.org/comment/1501187/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 8 5:43pm

Always within range. Still are while I’m on Jakafi

https://connect.mayoclinic.org/comment/1023160/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Jakafi and the other medicine i don’t remember the name

https://connect.mayoclinic.org/comment/256901/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2019

Did your Dr. approve taking quercetin with Jakafi? Thanks

https://connect.mayoclinic.org/comment/639479/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2021

please let us know how you do with the jakafi!!

https://connect.mayoclinic.org/comment/1007017/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2024

@baygirl80 I was on Jakafi for 8-9 years before my ET converted to secondary myelofibrosis. In...

https://connect.mayoclinic.org/comment/1445447/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025