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Comments (1,045)

Im given aspirin and posibly jak2 might b repeated , do these MPNs progress with time...

https://connect.mayoclinic.org/comment/194360/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2020

I also have polycythemia secondary to testosterone treatments. JAK2 negative. It is possible to have PV...

https://connect.mayoclinic.org/comment/890536/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

What does ET stand for? I was diagnosed 2 years ago with Polycythaemia Ruba Vera with...

https://connect.mayoclinic.org/comment/918920/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

They will need the Jak2 test to confirm but usually with all of those labs high...

https://connect.mayoclinic.org/comment/872648/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

I have Essential Thrombocythemia JAK2+ and Osteoporosis.

https://connect.mayoclinic.org/comment/1214981/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 1:12pm

Why did they test u for jak2? What is your diagnosis?

https://connect.mayoclinic.org/comment/974126/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Didn’t need to at this point. Blood tests confirmed JAK2 positive.

https://connect.mayoclinic.org/comment/834983/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023

I do not have JAK2. I am a triple negative.

https://connect.mayoclinic.org/comment/1215899/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 18 4:25pm

Hi pj -how long have your platelets stayed at that level? Do you have the JAK2...

https://connect.mayoclinic.org/comment/1066167/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

ET triple negative is where you do not have any of the 3 mutations of ET....

https://connect.mayoclinic.org/comment/1279571/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11 5:33pm

@nypara66 yes I am JAK2 and other mutation gene negative.

https://connect.mayoclinic.org/comment/898905/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@simple27 I took my promethease jak2 variant information with me to my Dr appointment. I’m showing...

https://connect.mayoclinic.org/comment/231794/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2019

my bone marrow biopsy results are consistent with a JAK2+ myeloproliferative neoplasms. Do i have cancer?

https://connect.mayoclinic.org/comment/1227761/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 2 1:25pm

I had a blood test that included genetic testing that was positive for JAK2.

https://connect.mayoclinic.org/comment/1054131/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Basic diagnostic criteria: CBC, EPO, and JAK2. All blood tests.

https://connect.mayoclinic.org/comment/986788/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

I also have jak2 and ET. Good luck with your treatment

https://connect.mayoclinic.org/comment/146298/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2020

Hi all, I thought you might appreciate these related discussions: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/774755/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2022

Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...

https://connect.mayoclinic.org/comment/675825/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2022

How does life's stress/situations affect our JAK2 and ET?

https://connect.mayoclinic.org/comment/982853/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

@pattitoo, here's more information about lab testing done for JAK2 mutation https://labtestsonline.org/tests/jak2-mutation I'm so glad that...

https://connect.mayoclinic.org/comment/328559/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020