Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,173 total results

Comments (1,099)

Hi, I haven't been diagnosed with PV yet, but I'm getting the JAK2 test done soon....

https://connect.mayoclinic.org/comment/194364/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2020

Im given aspirin and posibly jak2 might b repeated , do these MPNs progress with time...

https://connect.mayoclinic.org/comment/194360/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2020

@ang3, I hope you saw the helpful posts from @cindyem and @hanya. You may also be...

https://connect.mayoclinic.org/comment/1261470/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 18 9:01pm

I also have polycythemia secondary to testosterone treatments. JAK2 negative. It is possible to have PV...

https://connect.mayoclinic.org/comment/890536/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

What does ET stand for? I was diagnosed 2 years ago with Polycythaemia Ruba Vera with...

https://connect.mayoclinic.org/comment/918920/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

I have Essential Thrombocythemia JAK2+ and Osteoporosis.

https://connect.mayoclinic.org/comment/1214981/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 1:12pm

They will need the Jak2 test to confirm but usually with all of those labs high...

https://connect.mayoclinic.org/comment/872648/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Hi pj -how long have your platelets stayed at that level? Do you have the JAK2...

https://connect.mayoclinic.org/comment/1066167/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

Why did they test u for jak2? What is your diagnosis?

https://connect.mayoclinic.org/comment/974126/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Didn’t need to at this point. Blood tests confirmed JAK2 positive.

https://connect.mayoclinic.org/comment/834983/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023

I do not have JAK2. I am a triple negative.

https://connect.mayoclinic.org/comment/1215899/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 18 4:25pm

@simple27 I took my promethease jak2 variant information with me to my Dr appointment. I’m showing...

https://connect.mayoclinic.org/comment/231794/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2019

@nypara66 yes I am JAK2 and other mutation gene negative.

https://connect.mayoclinic.org/comment/898905/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@arti4 Hello! I was diagnosed with ET w/JAK2 just recently and my main symptom is lightheadedness.

https://connect.mayoclinic.org/comment/1287743/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Apr 22 6:04pm

How does life's stress/situations affect our JAK2 and ET?

https://connect.mayoclinic.org/comment/982853/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

I had a blood test that included genetic testing that was positive for JAK2.

https://connect.mayoclinic.org/comment/1054131/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Basic diagnostic criteria: CBC, EPO, and JAK2. All blood tests.

https://connect.mayoclinic.org/comment/986788/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

Hi all, I thought you might appreciate these related discussions: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/774755/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2022

Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...

https://connect.mayoclinic.org/comment/675825/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2022

I also have jak2 and ET. Good luck with your treatment

https://connect.mayoclinic.org/comment/146298/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2020