Blood Cancers & Disorders Support Group

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Comments (253)

I found it online. It's an open access article in Volume 67 (January 2024) of the...

https://connect.mayoclinic.org/comment/1226430/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 31 4:16pm

I agree. I developed Essential Thrombocythemia AFTER my Vaccine Shots TM Retired MD

https://connect.mayoclinic.org/comment/934757/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2023

Hi, thanks for your interest, I have been suffering from essential thrombocythemia for 1 year

https://connect.mayoclinic.org/comment/1102651/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Welcome to Connect, @mariaalive. It sounds like you’re very proactive in taking care of your health...

https://connect.mayoclinic.org/comment/1196339/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2024

I have been on Hydrea for over a year now for essential thrombocythemia. 500 mg daily...

https://connect.mayoclinic.org/comment/940282/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Hi @annkucharski, welcome. What treatment(s) are you on for essential thrombocythemia? Is it currently well managed?...

https://connect.mayoclinic.org/comment/1319804/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 3 10:04pm

@sregiani, I noticed that you wished to post a URL to an MPN Research Foundation with...

https://connect.mayoclinic.org/comment/837073/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

@damari, you may find some answers to your questions regarding erythropoietin levels and essential thrombocythemia in...

https://connect.mayoclinic.org/comment/596131/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2021

Hi Patty, With ET, essential thrombocythemia, there is an overabundance of platelets in the blood. The...

https://connect.mayoclinic.org/comment/1136064/

Discussion: What about no treatment for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2024

ET is essential thrombocythemia, a variation off MPN Myeloprolifertive Neoplasm PV is a variation of MPN,...

https://connect.mayoclinic.org/comment/919636/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

@mamsgirl1998, I know you considered your options, including getting input from members about choosing treatment in...

https://connect.mayoclinic.org/comment/1050842/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Hello @shenriq, according to Mayo Clinic, dizziness and lightheadedness can occur from essential thrombocythemia, but could...

https://connect.mayoclinic.org/comment/257504/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2019

Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have...

https://connect.mayoclinic.org/comment/1203402/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 9:54pm

Hola, @vivoconte I moved your post to this discussion group: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/825716/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2023

Hi @shenriq In addition to the Breast Cancer group, I included your post in the Blood...

https://connect.mayoclinic.org/comment/203930/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2018

@rlybolt Remember what your elementary teacher said: “There are no stupid questions!” ET is Essential Thrombocythemia....

https://connect.mayoclinic.org/comment/737547/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

Hi all, I thought you might appreciate these related discussions: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/774755/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2022

If you’re relatively new to your ET diagnosis you probably have a lot of questions and...

https://connect.mayoclinic.org/comment/1132865/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024

@pattycake11, you mention that the bone marrow biopsies were negative and it's not cancer and you've...

https://connect.mayoclinic.org/comment/1054914/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

according to the nhlbi.nih.gov website: Thrombocythemia refers to a high platelet count that is not caused...

https://connect.mayoclinic.org/comment/806012/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023