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Public Support Group 336 total results
Comments (296)
Welcome, @sregiani. I moved your message to this existing discussion about essential thrombocythemia - I have...
https://connect.mayoclinic.org/comment/834410/
Welcome, @gama1287. Getting a new diagnosis comes with a steep learning curve. You've come to the...
https://connect.mayoclinic.org/comment/1464606/
Yes, I was diagnosed with Essential Thrombocythemia, a Myloproliferative Neoplasm, 12/23 additionally Sjögren’s syndrome 12/25.
https://connect.mayoclinic.org/comment/1471722/
Has anyone on HU for Essential Thrombocythemia gotten a Medic Alert bracelet and do you think...
https://connect.mayoclinic.org/comment/1313235/
Hi, thanks for your interest, I have been suffering from essential thrombocythemia for 1 year
https://connect.mayoclinic.org/comment/1102651/
Welcome to Connect, @mariaalive. It sounds like you’re very proactive in taking care of your health...
https://connect.mayoclinic.org/comment/1196339/
Essential thrombocythemia is having too many platelets. Thrombocytopenia is the term for having too few platelets....
https://connect.mayoclinic.org/comment/1382421/
Looking for a support group for newly diagnosed Essential Thrombocythemia due JAK2 genetic mutation. This is...
https://connect.mayoclinic.org/comment/1464573/
I have been on Hydrea for over a year now for essential thrombocythemia. 500 mg daily...
https://connect.mayoclinic.org/comment/940282/
@milestogo, along with @vivoconte, I'm tagging a few other "babies" like @tinak123 @nancyra and @lynnevb who...
https://connect.mayoclinic.org/comment/1526898/
@sregiani, I noticed that you wished to post a URL to an MPN Research Foundation with...
https://connect.mayoclinic.org/comment/837073/
@damari, you may find some answers to your questions regarding erythropoietin levels and essential thrombocythemia in...
https://connect.mayoclinic.org/comment/596131/
Hi Patty, With ET, essential thrombocythemia, there is an overabundance of platelets in the blood. The...
https://connect.mayoclinic.org/comment/1136064/
ET is essential thrombocythemia, a variation off MPN Myeloprolifertive Neoplasm PV is a variation of MPN,...
https://connect.mayoclinic.org/comment/919636/
@mamsgirl1998, I know you considered your options, including getting input from members about choosing treatment in...
https://connect.mayoclinic.org/comment/1050842/
Hi @annkucharski, welcome. What treatment(s) are you on for essential thrombocythemia? Is it currently well managed?...
https://connect.mayoclinic.org/comment/1319804/
Hello @shenriq, according to Mayo Clinic, dizziness and lightheadedness can occur from essential thrombocythemia, but could...
https://connect.mayoclinic.org/comment/257504/
Hola, @vivoconte I moved your post to this discussion group: - Essential Thrombocythemia: Looking for information...
https://connect.mayoclinic.org/comment/825716/
Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have...
https://connect.mayoclinic.org/comment/1203402/
@pattycake11, you mention that the bone marrow biopsies were negative and it's not cancer and you've...
https://connect.mayoclinic.org/comment/1054914/
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