Blood Cancers & Disorders: Discussions | Page 2

I am interested in resources for ET. I am newly diagnosed with ET and PV. All...

https://connect.mayoclinic.org/comment/967778/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2023

I have ET with JAK2. My doc told it me means its a gene mutation...but not...

https://connect.mayoclinic.org/comment/1507620/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 16 6:22pm

ET isn't the worst possible diagnosis -- but it's not a walk in the park, either....

https://connect.mayoclinic.org/comment/1489348/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 23 10:11am

@colran When I was originally diagnosed with ET in 2005 at the age of 50, I...

https://connect.mayoclinic.org/comment/1527344/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:58am

Welcome to Mayo Connect, @amterrazas1. Stereotactic body radiotherapy (SBRT) is a type of precisely focused radiation...

https://connect.mayoclinic.org/comment/1539487/

Discussion: Anyone with ET (JAK2+ or CALR) had SBRT (radiotherapy)?

Support Group: Blood Cancers & Disorders

Posted: 13 hours ago

Do you think it is for ET reasonable as well to take interferon?

https://connect.mayoclinic.org/comment/1488466/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 12:47am

@magnolia1949, I'd like to add my welcome. You might also appreciate these related discussions: - Essential...

https://connect.mayoclinic.org/comment/971761/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2023

@ina2022 I have "sinking spells," but never black out ... yet. Mine are caused by wonky...

https://connect.mayoclinic.org/comment/1519221/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 8:14am

When a doctor says "No, that has nothing to do with ET or HU," what it...

https://connect.mayoclinic.org/comment/1473320/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 6:15am

Re aspirin, ET blood over-produces platelets that are sticky. Aspirin is supposed to make them slipperier....

https://connect.mayoclinic.org/comment/1104759/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

I was diagnosed with ET in September 2011. I'm wondering if anybody knows anyone that has...

https://connect.mayoclinic.org/comment/68973/

Discussion: Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2017

Lots of people here have reported dry eyes, dry mouth, and other Sjogren's symptoms, tho not...

https://connect.mayoclinic.org/comment/1495489/

Discussion: Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 8:33am

@hudson2019 Just a nosy question, so feel free to ignore: If you are in the States,...

https://connect.mayoclinic.org/comment/1532714/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 9:47am

Thanks for replying. I should have said I have ET.

https://connect.mayoclinic.org/comment/1475650/

Discussion: Has anyone experienced vision changes on Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 8:35am

@ina2022 "Hematologist is convinced it has nothing to do with ET." Fiddlesticks. Shame on your hematologist....

https://connect.mayoclinic.org/comment/1519157/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 7:06am

Welcome, @sregiani. I moved your message to this existing discussion about essential thrombocythemia - I have...

https://connect.mayoclinic.org/comment/834410/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

I have ET and my B12 is high > 2000. I got no explanation from my...

https://connect.mayoclinic.org/comment/915003/

Discussion: Effects of HU on immune system

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

ET is essential thrombocythemia, a variation off MPN Myeloprolifertive Neoplasm PV is a variation of MPN,...

https://connect.mayoclinic.org/comment/919636/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

I was diagnosed with ET about a year ago and started experiencing leg pain shortly thereafter...

https://connect.mayoclinic.org/comment/1386272/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

ET triple negative is where you do not have any of the 3 mutations of ET....

https://connect.mayoclinic.org/comment/1279571/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Blood Cancers & Disorders Support Group