Blood Cancers & Disorders Support Group | Page 2

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...

https://connect.mayoclinic.org/comment/1279375/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

You must have so many questions! You might want to use the search bar at the...

https://connect.mayoclinic.org/comment/1244801/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

Hi @emma1971, Welcome to Connect. The medication you’re referring to, Ruxolitinib is actually a medication used...

https://connect.mayoclinic.org/comment/1293785/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

As my platelets rose over 3 years, so did my bone pain (not in joints), finally...

https://connect.mayoclinic.org/comment/1574272/

Discussion: Hydrea and joint pain

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

This is exactly what I heard from my two ET doctors. According to them it could...

https://connect.mayoclinic.org/comment/1161622/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2024

Just diagnosed with ET. Learning about the specific foods that supposedly help lower the platelet count....

https://connect.mayoclinic.org/comment/1559918/

Discussion: Nutrition for Essential thrombocythemia (ET) diagnosis

Support Group: Blood Cancers & Disorders

Posted: Apr 26 9:49am

Do you have a firm diagnosis? Sounds like the oncology tests were inconclusive, no genetic markers...

https://connect.mayoclinic.org/comment/1522419/

Discussion: Elevated Platelet Count With Extreme Fatigue

Support Group: Blood Cancers & Disorders

Posted: Mar 8 11:34am

@dd1949 Having a diagnosis (ET) that literally labels us aliens -- has a way of making...

https://connect.mayoclinic.org/comment/1569149/

Discussion: Fatigue and Frustration with CALR ET

Support Group: Blood Cancers & Disorders

Posted: May 7 2:37pm

@kapow Your vulnerability to blood clots depends on SO MANY factors. Speaking very generally: Relative to...

https://connect.mayoclinic.org/comment/1576296/

Discussion: Is anyone involved in clinical trials for ET, specifically for CALR?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

I am interested in resources for ET. I am newly diagnosed with ET and PV. All...

https://connect.mayoclinic.org/comment/967778/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2023

@suzannebhi Diagnosis hits like a train. Few of us even knew that our blood could go...

https://connect.mayoclinic.org/comment/1555750/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Apr 21 5:02am

@magnolia1949, I'd like to add my welcome. You might also appreciate these related discussions: - Essential...

https://connect.mayoclinic.org/comment/971761/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2023

@kearleyhagey, welcome. How are you doing on hydroxyurea? Are you new to ET?

https://connect.mayoclinic.org/comment/1555642/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 20 8:20pm

Re aspirin, ET blood over-produces platelets that are sticky. Aspirin is supposed to make them slipperier....

https://connect.mayoclinic.org/comment/1104759/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

I was diagnosed with ET in September 2011. I'm wondering if anybody knows anyone that has...

https://connect.mayoclinic.org/comment/68973/

Discussion: Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2017

@mjervis Before I started taking Hydroxyurea I hardly ever got colds or got sick. But this...

https://connect.mayoclinic.org/comment/1570759/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: May 9 4:02pm

Has anyone here considered or is currently on long-term disability due to ET CALR? How has...

https://connect.mayoclinic.org/comment/1560975/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Apr 27 12:43pm

I have ET and my B12 is high > 2000. I got no explanation from my...

https://connect.mayoclinic.org/comment/915003/

Discussion: Effects of HU on immune system

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

@janemc are there trials ongoing for ET? I have not seen any info on research?

https://connect.mayoclinic.org/comment/1538473/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:08am

ET is essential thrombocythemia, a variation off MPN Myeloprolifertive Neoplasm PV is a variation of MPN,...

https://connect.mayoclinic.org/comment/919636/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023