I was diagnosed with high platelets in 1988 (850) and am now 48. I've been thru it all.
When I was first diagnosed after a CBC and bone marrow biopsy, i was told to take 1 regular dose aspirin daily. This worked fine for about 12 years, with sporadic phlebotomies to help maintain the plateletsin the 400's.
In 2000, for some reason my platelet count soared to 2000+ & I was hospilized for 1 month with major complications. The only way to get the platelets under control was massive doses of chemo to "start over". I was not happy about the hair loss & other side effects!!! At that time i was put on agarelide which managed the platelets at about 450 at 1mg/day.
I've tried hydroxi & hated the side effects of the chemo even tho it was low dose.
Now i seem to be having other symptoms - dizzy, facial tingling, lack of thirst, climbing platelets, high WB & HCT. My hemotologist want to do cancer tests. Needless to say i"m scared to death because I have always been told "there's no chance this will develop into leukemia"
Any thoughts/discussions would be great to know I'm not alone in this.