Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

75 total results

Comments (67)

Hi Tracy. I'm Amanda and I was diagnosed last spring at age 56. My MGUS was...

https://connect.mayoclinic.org/comment/793921/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Hi Becky, your oncologist would be in the better position to diagnose your possible blood cancer....

https://connect.mayoclinic.org/comment/738126/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2022

My heart goes out to your sister. I had a period of time when morphine wasn’t...

https://connect.mayoclinic.org/comment/730088/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2022

Thank you- much appreciated. I have some bone pain, but nothing to scream about. Multiple myeloma...

https://connect.mayoclinic.org/comment/728026/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2022

Hi Gmill, Sorry to hear about your problems post the bone marrow biopsy. I’ve had 3...

https://connect.mayoclinic.org/comment/325262/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2020

This is information I found on the internet. Hope it helps. Causes: The exact cause of...

https://connect.mayoclinic.org/comment/1422404/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

Last year routine blood was not my normal results. My kidney numbers were dyalis level. I...

https://connect.mayoclinic.org/comment/1217258/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

I am new to this group. My sister passed away with Light Chain Deposition Disease. Light...

https://connect.mayoclinic.org/comment/1485133/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Jan 17 9:35pm

Welcome to Connect, @nathangolden. I’m going to echo @deborahjb by encouraging you to advocate for yourself....

https://connect.mayoclinic.org/comment/875309/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Like someone above mentioned, you need to get your daughter to the best hematologist / oncologist...

https://connect.mayoclinic.org/comment/824746/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

@tristram, how are you doing? I found this article about multiple myeloma and managing bone pain:...

https://connect.mayoclinic.org/comment/808437/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Hi there sorry about bone pain Posted by tristram @tristram, Bone pain is frustrating and hard...

https://connect.mayoclinic.org/comment/802800/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Thank you, Lori, for your sweet reply! I am glad we have our re-birthdays close together!...

https://connect.mayoclinic.org/comment/335088/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 6, 2021

Hi Lori! I am now 8 1/2 months post Auto SCT. I was diagnosed with Multiple...

https://connect.mayoclinic.org/comment/335086/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 3, 2021

Hi @theodicy and welcome to Mayo Clinic’s Connect. Oh boy I do remember when I was...

https://connect.mayoclinic.org/comment/1489338/

Discussion: 41 yo female recently diagnosed with MGUS, looking for support

Support Group: Blood Cancers & Disorders

Posted: Jan 23 9:58am

I would like to know what to expect. I have just been diagnosed with Multiple Myeloma...

https://connect.mayoclinic.org/comment/1424748/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2025

@jdm02 Ah, yes . . . MGUS, MGUS, MGUS. For years, I've dealt with this goofy...

https://connect.mayoclinic.org/comment/1415660/

Discussion: Have MGUS and just caught Covid: Did Covid affect your numbers?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2025

Last November, I fell backwards into my wheelchair & hit screws at L5S1. I went to...

https://connect.mayoclinic.org/comment/1394155/

Discussion: Symptoms of non Hodgkin's Lymphoma ?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2025

I didn’t realize your dad was already a patient at Mayo. From personal experience, I know...

https://connect.mayoclinic.org/comment/1217696/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

@bigbob5461 I know. Especially for those of us who typically take the bull by the horn,...

https://connect.mayoclinic.org/comment/1119287/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024