Blood Cancers & Disorders Support Group

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Comments (55)

Hello! I’m glad you are going to search around for a more attentive physician. The medical...

https://connect.mayoclinic.org/comment/903456/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2023

Don't fixate too much on this at this point. I went to neurologist for tingling toes....

https://connect.mayoclinic.org/comment/898502/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

Aw, Nathan, that sounds just awful. I’m so sorry you’re having this much pain on a...

https://connect.mayoclinic.org/comment/875351/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Last year routine blood was not my normal results. My kidney numbers were dyalis level. I...

https://connect.mayoclinic.org/comment/1217258/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 20 9:13am

Hi @martetom You’ve asked some very good questions about a bone marrow transplant. Is it painful,...

https://connect.mayoclinic.org/comment/798131/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17, 2023

Like someone above mentioned, you need to get your daughter to the best hematologist / oncologist...

https://connect.mayoclinic.org/comment/824746/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

@tristram, how are you doing? I found this article about multiple myeloma and managing bone pain:...

https://connect.mayoclinic.org/comment/808437/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Hi there sorry about bone pain Posted by tristram @tristram, Bone pain is frustrating and hard...

https://connect.mayoclinic.org/comment/802800/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Welcome @leah107, Did you see @loribmt’s reply to you? I see from your profile bio that...

https://connect.mayoclinic.org/comment/697669/

Discussion: Pain after a bone marrow biopsy: Is this normal?

Support Group: Cancer: Managing Symptoms

Posted: Apr 10, 2022

@bigbob5461 I know. Especially for those of us who typically take the bull by the horn,...

https://connect.mayoclinic.org/comment/1119287/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

Welcome to Connect, @nathangolden. I’m going to echo @deborahjb by encouraging you to advocate for yourself....

https://connect.mayoclinic.org/comment/875309/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

I have just been diagnosed with Smoldering Multiple Myeloma, I don't have any symptoms except fatigue...

https://connect.mayoclinic.org/comment/50127/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2012

Hi Lori! I am now 8 1/2 months post Auto SCT. I was diagnosed with Multiple...

https://connect.mayoclinic.org/comment/335086/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 3, 2021

I didn’t realize your dad was already a patient at Mayo. From personal experience, I know...

https://connect.mayoclinic.org/comment/1217696/

Discussion: Plasma Cell Leukemia

Support Group: Blood Cancers & Disorders

Posted: Jan 20 6:04pm

Thank you, Lori, for your sweet reply! I am glad we have our re-birthdays close together!...

https://connect.mayoclinic.org/comment/335088/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 6, 2021

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

@jeannie215 hi Jeannie, welcome to the forum. Even though they tell you that MGUS is low...

https://connect.mayoclinic.org/comment/1008265/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

Hi, thank you so much for the reply, I'm sure for those that have been in...

https://connect.mayoclinic.org/comment/953732/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2023

I would like to share this with you from the NIH Natural Library of Medicine.This is...

https://connect.mayoclinic.org/comment/950906/

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

I understand your pain. I was prediabetic at one point and doctor put me on metformin...

https://connect.mayoclinic.org/comment/857068/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023