Blood Cancers & Disorders Support Group

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Comments (257)

Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...

https://connect.mayoclinic.org/comment/194256/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

I was searching for "ketogenic diet polycythemia vera". Google gave this conversation as the first Search...

https://connect.mayoclinic.org/comment/632207/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2021

Welcome to this "new planet" @cmcj. To help you connect with others, I moved your post...

https://connect.mayoclinic.org/comment/891068/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

I have Polycythemia Vera. I'm seeing a Hematologist but never discuss diet, can anyone expand on...

https://connect.mayoclinic.org/comment/1092342/

Discussion: Polycythemia Vera: What foods should I eat?

Support Group: Blood Cancers & Disorders

Posted: Jun 23 9:30am

When filling out a health questionnaire, you will now need to check Yes. Multiple myeloma is...

https://connect.mayoclinic.org/comment/746801/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

A high EPO is indicative of secondary polycythemia. Those with polycythemia vera (primary polycythemia) have low...

https://connect.mayoclinic.org/comment/231786/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

If they are checking for Polycythemia Vera, the Jak 2 test (Pisitive)will confirm. No need to...

https://connect.mayoclinic.org/comment/827691/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Hi @brooks7987, welcome. I moved your question about HU (hydroxyurea) and interferon to this existing discussion:...

https://connect.mayoclinic.org/comment/794968/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Welcome, @brilsmla. I moved your message to this existing discussion: - Polycythemia Vera: Just been diagnosed:...

https://connect.mayoclinic.org/comment/811553/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

Hi, my Mom was diagnosed with Polycythemia Vera after her labs went crazy. They did not...

https://connect.mayoclinic.org/comment/718613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2022

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

What's the difference between polycythemia vera and just polycethemia? A lung specialist told me that "they...

https://connect.mayoclinic.org/comment/920060/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2023

Good morning, @mdobney Welcome to Mayo Connect. Polycythemia vera is a blood condition where your body...

https://connect.mayoclinic.org/comment/989067/

Discussion: Can polycythemia cause iron deficiency?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2023

Hello, @vnvet, Welcome to Mayo Clinic Connect. Polycythemia vera is a type of chronic leukemia (blood...

https://connect.mayoclinic.org/comment/795352/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2023

Hi, yes, those headaches can be debilitating and painful. I’m sorry you’re suffering with many symptoms....

https://connect.mayoclinic.org/comment/1126359/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Aug 18 6:40pm

Welcome Christine, I moved your "just diagnosed" message to this existing discussion of the same name:...

https://connect.mayoclinic.org/comment/749672/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Welcome, @chitra. How long have you been living with polycythemia vera? Did you find switching to...

https://connect.mayoclinic.org/comment/975494/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Good morning, @lylespeace, PV is Polycythemia Vera, a blood disorder. https://www.mayoclinic.org/diseases-conditions/polycythemia-vera/symptoms-causes/syc-20355850 Welcome to Mayo Connect where...

https://connect.mayoclinic.org/comment/872121/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

What is polycythemia Vera and what are the other symptoms? Mine is more of a tickling...

https://connect.mayoclinic.org/comment/818925/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

Is there anyone out there that has been diagnosed with both polycythemia vera and myelo fibrosis?...

https://connect.mayoclinic.org/comment/781275/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022