Blood Cancers & Disorders Support Group

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Comments (867)

@magic3ems I totally understand your reluctance to go back to see the oncologist. It is a...

https://connect.mayoclinic.org/comment/1208186/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2025

Keep track of any symptoms (good and not) associated with the MM and DRVD treatment. It...

https://connect.mayoclinic.org/comment/1207419/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2025

@coynelane I echo the welcome to Mayo Clinic Connect. I just finished round 10 of Revlimid,...

https://connect.mayoclinic.org/comment/713046/

Discussion: High risk smoldering myeloma protocol after 24 cycles of Revlimid?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2022

@treehouse5437 Here is a link to the Social Security Administration website regarding multiple myeloma as a...

https://connect.mayoclinic.org/comment/1362110/

Discussion: Disability w/MM

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025

@tominga I’m so glad that you posted. Welcome to Mayo Clinic’s Connect. I believe that MGUS...

https://connect.mayoclinic.org/comment/1442519/

Discussion: Smoldering Myeloma: Coping with the emotional toll and acceptance

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

I don’t know anything about MDS but my hubby (who has multiple myeloma) has taken revlomid...

https://connect.mayoclinic.org/comment/1397869/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

@cgirl0721, I’d like to invite @auntieoakley into this discussion. She has been a caregiver to a...

https://connect.mayoclinic.org/comment/707219/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2022

@suppiskey2surv I absolutely agree with a previous comment re bone marrow. You should get a baseline...

https://connect.mayoclinic.org/comment/1422724/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

I have kappa light chain MGUS. My IgA, IgM, IgG and other bloodwork have been ramping...

https://connect.mayoclinic.org/comment/932979/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2023

I've had IgA Kappa Light Chain MGUS for 8 years (70 yo) and my Kappa is...

https://connect.mayoclinic.org/comment/1193967/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

I found this information which I believe is credible. The article source is attached. https://pmc.ncbi.nlm.nih.gov/articles/PMC1895159/ “MGUS...

https://connect.mayoclinic.org/comment/1272777/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Yes, it will take more of your time but having the "correct attitude is VERY important."...

https://connect.mayoclinic.org/comment/1108183/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024

I was diagnosed with MGUS in 2020 and light chain multiple myeloma in September 2025. I...

https://connect.mayoclinic.org/comment/1446497/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2025

Hi Deborah, what kind of practice are you working with now to have your bloodwork monitored?...

https://connect.mayoclinic.org/comment/813340/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

@cgirl0721 It is good to see you are looking in to this, as a family member...

https://connect.mayoclinic.org/comment/705336/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2022

Hi, I am new to this group and to Multiple Myeloma. Currently I am diagnosed as...

https://connect.mayoclinic.org/comment/797821/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

@nancyworld Even the specialists seem to be very specialized. I poked around until I found someone...

https://connect.mayoclinic.org/comment/987752/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Good morning, @tristram, Zometa is a medication which can help prevent bone damage for patients with...

https://connect.mayoclinic.org/comment/839806/

Discussion: Zometa Experiences

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2023

https://www.facebook.com/photo?fbid=488680226637801&set=pb.100064874824712.-2207520000. Please call this number to find your nearest qualified Multiple Myeloma specialist. Ask the person...

https://connect.mayoclinic.org/comment/764870/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2022

Welcome @leah107, Did you see @loribmt’s reply to you? I see from your profile bio that...

https://connect.mayoclinic.org/comment/697669/

Discussion: Pain after a bone marrow biopsy: Is this normal?

Support Group: Cancer: Managing Symptoms

Posted: Apr 10, 2022