Blood Cancers & Disorders Support Group

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Comments (1,892)

@jzeee Welcome to Mayo Clinic Connect! You'll find a lot of support and information here, with...

https://connect.mayoclinic.org/comment/1125535/

Discussion: Does anyone know of bruising as a progressing symptom of mgus to MM?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2024

The MGUS was discovered by a neurologist 4 years ago who has been monitoring it every...

https://connect.mayoclinic.org/comment/970766/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2023

Just recently diagnosed with MGUS. Since research is my favorite thing, dug into it. And although...

https://connect.mayoclinic.org/comment/1257854/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Mar 14 12:27pm

@jart When I have had the 24-hour urine test, they are looking for protein levels, so...

https://connect.mayoclinic.org/comment/708543/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

Good to hear that at 8 years you are still MGUS levels. Good to see your...

https://connect.mayoclinic.org/comment/1144760/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2024

Hi @lisa54, the MGUS related discussions can be found in the Cancer group here: https://connect.mayoclinic.org/group/cancer/?tab=discussions

https://connect.mayoclinic.org/comment/73353/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2016

Hi @gina5009 CRAB criteria is a means of staging multiple myeloma. Monoclonal Gammopathy of Undetermined Significance...

https://connect.mayoclinic.org/comment/890159/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Thanks for this! I'm 41 year old male and just got diagnosed with Mgus out of...

https://connect.mayoclinic.org/comment/928040/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

@colleenyoung , im not on any treatment for mgus. I did email my care group...my nurse...

https://connect.mayoclinic.org/comment/296797/

Discussion: Leukopenia ( low white blood count)

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2020

@beccaboo66 You sound like me…so many “ist” appointments. Glad to hear there is very little progression...

https://connect.mayoclinic.org/comment/995311/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2024

Thank you Paula! This is very interesting that MGUS can have to do with autoimmune disease....

https://connect.mayoclinic.org/comment/949710/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2023

I have LC MGUS ratio 2.1. Urine tests are always normal. Maybe the ratio needs to...

https://connect.mayoclinic.org/comment/859122/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Thank you for your kind response. I am sorry for the course your mgus has taken....

https://connect.mayoclinic.org/comment/771763/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2022

I don’t think my LDH was tested with the other MGUS tests can that be. What...

https://connect.mayoclinic.org/comment/1198968/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2024

@rustypenny Welcome to the Mayo Clinic connect. It’s quite an emotional roller coaster ride when you...

https://connect.mayoclinic.org/comment/1184488/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2024

Thank you so much @leslie2121 for replying! So your experience was that FLCs went up slightly...

https://connect.mayoclinic.org/comment/1332802/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 22 1:40pm

Thanks for your share. Have you done anything special to keep the MGUS from progressing? 10...

https://connect.mayoclinic.org/comment/1230376/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 5 10:50pm

I've had migraines with aura my whole life, no headache, thankfully. Diagnosed with MGUS September 2022....

https://connect.mayoclinic.org/comment/922862/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

My daughter has been diagnois with MGUS. I have been researching to see if it was...

https://connect.mayoclinic.org/comment/823634/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

Red, you might be interested in this discussion: - What’s the science on diet and MGUS/SMM?...

https://connect.mayoclinic.org/comment/767055/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2022