Blood Cancers & Disorders Support Group

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Comments (2,233)

@1oldsoul In my experience, I have other health issues occurring at the same time. What to...

https://connect.mayoclinic.org/comment/1127430/

Discussion: Does anyone know of bruising as a progressing symptom of mgus to MM?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

I just sawca hopeful blurb by a physician at Sloan Kettering that her 12 week study...

https://connect.mayoclinic.org/comment/1221067/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2025

I had a bone marrow in the original diagnostic testing. The MD is a well known...

https://connect.mayoclinic.org/comment/1199659/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

@rlhare Welcome to Connect. Fatigue is frequently mentioned as a symptom of MGUS. I’m sorry you...

https://connect.mayoclinic.org/comment/1059677/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2024

Ginger, you seem grounded and very knowledgeable about MGUS. I live near Boston and Dana Farber...

https://connect.mayoclinic.org/comment/777240/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

Ahhhh I apologize. I thought you have MGUS. Glad you have a follow up scheduled.

https://connect.mayoclinic.org/comment/1075978/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2024

@lindagi I am curious if the diagnosis is multiple myeloma, or one of the precurosors of...

https://connect.mayoclinic.org/comment/1017637/

Discussion: Has anyone been diagnosed with both AML and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

@positivethinking Yes. I was first diagnosed with neuropathy, then MGUS and now Waldenstrom macroglobulinemia, say that...

https://connect.mayoclinic.org/comment/1453886/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

I have MDS and MGUS (which is the precursor to MM). I am going to be...

https://connect.mayoclinic.org/comment/1017373/

Discussion: Has anyone been diagnosed with both AML and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Welcome to Connect, @paulatjohn738. Thank you for sharing your experience with the fluctuation in IgA in...

https://connect.mayoclinic.org/comment/949225/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2023

I was diagnosed with mgus over a year ago. Since then I have been really sick...

https://connect.mayoclinic.org/comment/856961/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023

I too have MGUS and have intermittent M spikes on labs. Mine is lambda FLC also....

https://connect.mayoclinic.org/comment/1134423/

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

@positivethinking it’s amazing how much “mixed messaging” is disseminated by the various “ologists” I see. I...

https://connect.mayoclinic.org/comment/1452798/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

Oh. Yes. Ok. I read your comment. How long have you had mgus. That you know...

https://connect.mayoclinic.org/comment/970713/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2023

Here are a couple more articles on MGUS: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3445886/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9301229/

https://connect.mayoclinic.org/comment/954443/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2023

I have MGUS, and just found out that I have osteopenia. I just upped my calcium...

https://connect.mayoclinic.org/comment/829639/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

I am nearly the same, mgus in 2013, pv in 2019. Still going strong with the...

https://connect.mayoclinic.org/comment/789230/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2022

Check all the posts for MGUS. Maybe someone has talked about it. I am sure more...

https://connect.mayoclinic.org/comment/1233327/

Discussion: Coffee and MGUS progression.

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2025

@donna195 I have high-risk IgA kappa free light chain SMM with the 1q21 gain and HLA-DQ8...

https://connect.mayoclinic.org/comment/1540417/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Apr 1 12:02pm