Blood Cancers & Disorders Support Group

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Comments (1,035)

I have MDS and went through an anemia treatment with the monoclonal antibody that extends the...

https://connect.mayoclinic.org/comment/1406274/

Discussion: Life Expectancy of MDS-1 Patients

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2025

I was diagnosed with MDS last year. My fatigue level never improved. I also have shortness...

https://connect.mayoclinic.org/comment/1249785/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

@blakeman My doctors first clue was anemia and had me take iron pills. Later, during an...

https://connect.mayoclinic.org/comment/1472790/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 2 10:12am

Has anyone been on Venclexta for their MDS ? I am recently diagnosed ( April 2025...

https://connect.mayoclinic.org/comment/1413889/

Discussion: Life Expectancy of MDS-1 Patients

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2025

Have you found any supplements or drugs that improves your level of fatigue? I’m early in...

https://connect.mayoclinic.org/comment/1301247/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025

Hello, Diagnosed in February 2024. Treatment is INQOVI. I get frequent blood and platelet transfusions. No...

https://connect.mayoclinic.org/comment/1219841/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

My husband has had degenerative disc disease for years and this year diagnosed with MDS another...

https://connect.mayoclinic.org/comment/910478/

Discussion: Anyone dealt with degenerative disk disease with PV diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

I have posted before in both areas of MDS and Parkinson’s. Yes my husband has now...

https://connect.mayoclinic.org/comment/1250651/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 4, 2025

Good morning, @jacklyn. Itching…I swear that can be worse than pain. Unfortunately it’s a lovely side...

https://connect.mayoclinic.org/comment/1329004/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

I was diagnosed with MDs in June 2016. My one cytopenia is neutropenia. Local hematologist prescribed...

https://connect.mayoclinic.org/comment/235268/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Hello @jaylevel1, welcome to Connect. It is my understanding, and I am not a medical professional,...

https://connect.mayoclinic.org/comment/226228/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2018

Hi- I have MDS & have not experienced hands swelling, but have experienced feet & ankles...

https://connect.mayoclinic.org/comment/1361588/

Discussion: Anyone experience swollen and sometimes painful hands with MDS

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2025

Thank you for all your helpful comments and caviats. You are obviously well read and informed....

https://connect.mayoclinic.org/comment/1268891/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

Hi @pathilt, I just wanted to check in to see how your sister has been feeling....

https://connect.mayoclinic.org/comment/1133265/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2024

I have MDS/MPN with Thrombocytosis. Also JAK2 and SRSF2 positive. I take Hydroxyurea to reduce my...

https://connect.mayoclinic.org/comment/256907/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2019

Just reading post. I am so glad to find this ! We have no idea what...

https://connect.mayoclinic.org/comment/1283908/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2025

I have MDS and have been put on the same Chemo with Venetoclax. I have had...

https://connect.mayoclinic.org/comment/1097753/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

Welcome to Connect, @rjperk633 This is a tough decision for you and your mom. It sounds...

https://connect.mayoclinic.org/comment/1185547/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

PixieSusan, I like you have low platelets. After bone marrow biopsy I was diagnosed with low...

https://connect.mayoclinic.org/comment/1146754/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2024

Stem cell/bone marrow transplant is very very challenging and not recommended for anyone over 75 (until...

https://connect.mayoclinic.org/comment/1241902/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2025