Blood Cancers & Disorders Support Group

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Comments (697)

rbhawk48 A 2nd opinion would be helpful. Can you file for benefits under the Pact Act?...

https://connect.mayoclinic.org/comment/1162546/

Discussion: Vietnam Vet and exposure to Benzene

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Hi Howard, even though this MDS is the diagnosis you were expecting it’s still a shock...

https://connect.mayoclinic.org/comment/819458/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

My husband had low white counts since 2017 and we had no idea about MGUS and...

https://connect.mayoclinic.org/comment/962551/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

I too believe toxic exposure in the military leads to some of the blood cancers. I...

https://connect.mayoclinic.org/comment/1100958/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

I've had similar success with my MDS and MF. After years of decline I had a...

https://connect.mayoclinic.org/comment/1032154/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024

I have MDS with Thrombocytosis. My platelets were in the millions. Started Hydroxyurea at 1000 mg...

https://connect.mayoclinic.org/comment/895518/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

So another question has popped into my brain… So Mom has 10% blasts based on bone...

https://connect.mayoclinic.org/comment/1193343/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

So I had high WBC and platelet numbers and went to Sloan Cancer Center. They performed...

https://connect.mayoclinic.org/comment/298974/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2020

Reading this last message had me holding my breath! Your poor, sweet sister! That’s just crazy...

https://connect.mayoclinic.org/comment/1112890/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Hi to all I have MDs an have 1 round of chemo using Inqovi but drug...

https://connect.mayoclinic.org/comment/844954/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Hi @susan1000, welcome. You may wish to connect with others living with mantle cell lymphoma in...

https://connect.mayoclinic.org/comment/750557/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2022

jseeker. Have you message The Moffitt center or her current dr for help with this symptom?...

https://connect.mayoclinic.org/comment/1210759/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 3:37pm

Lori, I have seen many posts from you, all seem to be so uplifting. My husband...

https://connect.mayoclinic.org/comment/1041638/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 28, 2024

I’m not a geneticist so I’m limiting my comments accordingly. The ASXL1 mutation appears in many...

https://connect.mayoclinic.org/comment/329373/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

I expect your sister is feeling a little more perky tonight after her transfusion today. I’m...

https://connect.mayoclinic.org/comment/1120359/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

I was diagnosed with MDS IB2 March 2024 age 76. I was told by my hematologist...

https://connect.mayoclinic.org/comment/1265906/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 24 2:29pm

@donnamae90 Fatigue is a problem with MDS. I too live alone. I have accepted that I...

https://connect.mayoclinic.org/comment/1193426/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Hi, I hope you don’t mind me commenting but I just had to share that my...

https://connect.mayoclinic.org/comment/1080466/

Discussion: Have you been able to reverse Anemia of Chronic Disease (ACD)?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

Happy Birthday to you too, @janetlen. We’re both Classy Chassis, eh? 😉 Not sure I’m in...

https://connect.mayoclinic.org/comment/986993/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

Hi Lori, I didn’t want to post this in the other chat, but my brother who...

https://connect.mayoclinic.org/comment/1117789/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024