Blood Cancers & Disorders Support Group

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Comments (1,391)

I also suffer from low iron after many phlebotomies. I had an iron infusion one year...

https://connect.mayoclinic.org/comment/1225254/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025

I’m wondering who tried the keto diet and how it worked. I started keto a year...

https://connect.mayoclinic.org/comment/775370/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2022

Have you been tested for gout? My JAK2 was determined after I complained of bad knee...

https://connect.mayoclinic.org/comment/1348052/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Just because you have the JAK2 mutation it doesn't mean you cannot have other gene mutations....

https://connect.mayoclinic.org/comment/194366/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2020

I had RnY as well and am ET/Jak2. I have been iron deficient for years. My...

https://connect.mayoclinic.org/comment/1548495/

Discussion: Gastric bypass in 2018, now diagnosed with Iron Deficiency Anemia

Support Group: Blood Cancers & Disorders

Posted: Apr 12 8:31am

My very active 82 year old father just got diagnosed with JAK2 positive, high white count...

https://connect.mayoclinic.org/comment/859841/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Cindy1209-- Met with the Dr 4/18 and still at a loss- waiting for the results of...

https://connect.mayoclinic.org/comment/846151/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

I have ET with the JAK2 mutation and my hematologist-oncologist has me on both HU and...

https://connect.mayoclinic.org/comment/1085943/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

I was diagnosed with high platelets after a blood test in January 2025. My previous July...

https://connect.mayoclinic.org/comment/1348757/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

Hello, I'm 77 years old live in Seabrook, Texas I have PV JAK2 positive diagnosed 3...

https://connect.mayoclinic.org/comment/1439213/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2025

Does it make a difference whether a blood test or bone marrow biopsy was done? I...

https://connect.mayoclinic.org/comment/877565/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Hello, I have a few questions, recently, I was diagnosed with Jak2. Unlikely but still fairly...

https://connect.mayoclinic.org/comment/810851/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

I too have PV JAK2 positive on two separate occasions. I'm on hydroxurea and baby asa...

https://connect.mayoclinic.org/comment/1455153/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not...

https://connect.mayoclinic.org/comment/855393/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

My hgb is around 16.8 and hct around 49 for the past 2 years. Jak2 is...

https://connect.mayoclinic.org/comment/1131134/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

@janeto1357 Hi, I was diagnosed in May 2024with ET and JAK2. My plateletts were initially 554,...

https://connect.mayoclinic.org/comment/1444851/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2025

My PCP in rural Mississippi urged me to see a hematologist when my CBC on routine...

https://connect.mayoclinic.org/comment/1087613/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

Hi there, I also have ET & JAK2 but with no symptoms other than high platelets....

https://connect.mayoclinic.org/comment/257506/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2019

@sarahgault Hi, I have ET and Jak2 and take 1000mg HU Monday Wednesday and Friday and...

https://connect.mayoclinic.org/comment/1555364/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 20 1:12pm

JAK2 is the mutation that causes myeloproliferative neoplasms (cancers) like ET, PV, and MF. A small...

https://connect.mayoclinic.org/comment/989167/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2023