Blood Cancers & Disorders Support Group

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Comments (1,102)

Yes sorry :( My mom was jak2 positive - high hemoglobin and high hemacrit. The biopsy...

https://connect.mayoclinic.org/comment/1228461/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3 9:54am

I, too, am interested in what feedback others have. My platelets are in the 500s and...

https://connect.mayoclinic.org/comment/941103/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

I forgot to mention that my Bone Marrow did show JAK2 mutation back in 2015. I...

https://connect.mayoclinic.org/comment/203953/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2019

My tests (done a year ago) came back positive for JAK2 V617F. I take a baby...

https://connect.mayoclinic.org/comment/1024971/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 29, 2024

I also have JAK2. I was told that I could live a normal life. I have...

https://connect.mayoclinic.org/comment/956978/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2023

Agreed! I found out last fall that I have ET and the Jak2 mutation. BMB was...

https://connect.mayoclinic.org/comment/840900/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Hi @lyd0218 I am 81 and have ET JAK2 mutation, I started taking HU 500 mg...

https://connect.mayoclinic.org/comment/1322691/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 8 6:31am

Welcome to the club. Almost 71 yo woman w/ET a few months now. Platelets are in...

https://connect.mayoclinic.org/comment/848468/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Most on this site say that they are prescribed baby aspirin along with HU. I was...

https://connect.mayoclinic.org/comment/837314/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023

I was diagnosed with Jak2 in 2019 and have been taking the hydra drug and I...

https://connect.mayoclinic.org/comment/194372/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2021

Hi @mgrimes5, I's like to welcome you to Mayo Clinic Connect. You came to the right...

https://connect.mayoclinic.org/comment/325699/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Oct 22, 2020

Some people are just advised to take a low dose aspirin for protection against clots. Great...

https://connect.mayoclinic.org/comment/773808/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

Thank you for info. My son does have a hematologist and has been checked for Jak2....

https://connect.mayoclinic.org/comment/252018/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2019

It seems that different people need different doses. What you're doing is working for you --...

https://connect.mayoclinic.org/comment/1047264/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

My daughter was recently diagnosed with JAK2. She has had two iron treatments and has another...

https://connect.mayoclinic.org/comment/328577/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

I’m a 83-year-old female, diagnosed with lymphoma and myelofibrosis (JAK2 mutation) in June of 2024. I’ve...

https://connect.mayoclinic.org/comment/1252690/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 3:11pm

Though I was diagnosed with ET, and JAK2 this summer, I still hesitate to take Hydrea...

https://connect.mayoclinic.org/comment/770145/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

ET stands for Essential Thrombocytosis. , I have this also and with a JAK2 mutation. If...

https://connect.mayoclinic.org/comment/919462/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

After reading that so many JAK2 people experience being weak or tired, and have balance issues,...

https://connect.mayoclinic.org/comment/194344/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2019