Blood Cancers & Disorders Support Group

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Comments (634)

I am a Canadian[ Calgary] and have been diagnosed with CLL.Will have more tests and will...

https://connect.mayoclinic.org/comment/1080307/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

I have CLL that was treated in 2016, 2017-2019. Hemaglobin rose to 15 million in 2020,...

https://connect.mayoclinic.org/comment/828716/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

Just received the results from my recent blood work and am breathing a huge sigh of...

https://connect.mayoclinic.org/comment/1017337/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

I too was diagnosed with CLL and the EBV had reactivated according to my Infectious Disease...

https://connect.mayoclinic.org/comment/647411/

Discussion: Dual Diagnosis of CLL and Acute Epstein Barr Virus

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2021

I have CLL, and have gotten monthly infusions of immunoglobulin (IVIG) for 2 years. This has...

https://connect.mayoclinic.org/comment/238061/

Discussion: CLL - Referral to CLL Specialist

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2019

Hi I have been diagnosed with CLL now since 2020 and get severe itchy skin and...

https://connect.mayoclinic.org/comment/865646/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

How is your husband doing? Is Rich in T-Cell Rich B-Cell non-Hodgkin Lymphoma so called Richter's...

https://connect.mayoclinic.org/comment/752053/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 20, 2022

Hi @fortunateoldman, you have quite a jaded view of the medical system. The doctors that I...

https://connect.mayoclinic.org/comment/1081834/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Recently diagnosed with CLL and in the “wait and Watch” period 61 years old and not...

https://connect.mayoclinic.org/comment/945614/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2023

OMG! Yes, that is exactly what the oncologist said. "CLL won't kill you something else will."...

https://connect.mayoclinic.org/comment/996585/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Thank you for your insight. My blood tests show that I am not having those types...

https://connect.mayoclinic.org/comment/994520/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I have had CLL since my diagnosis in 2017. Since then, I see my oncologist just...

https://connect.mayoclinic.org/comment/963912/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2023

Good morning, @kellim I’m going to echo @dringge in their comment that this would be a...

https://connect.mayoclinic.org/comment/896719/

Discussion: Sudden enlarged lymph nodes

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

I am In exactly your position! Rituxan didn’t work. Started obutasamab this last week and will...

https://connect.mayoclinic.org/comment/844189/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2023

thanks for your thoughtful and helpful replies... as an 81 woman with many years of CLL,...

https://connect.mayoclinic.org/comment/1072034/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Hello @tlb, some how I missed your entry into our forum so I want to properly...

https://connect.mayoclinic.org/comment/913902/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Hi @sonia85, it looks like you must have received results of some bloodwork and there were...

https://connect.mayoclinic.org/comment/750501/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2022

Yes, I certainly had many of the common CLL/SLL signs and symptoms. Intense fatigue and tiredness,...

https://connect.mayoclinic.org/comment/1056602/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I was diagnosed with CLL/SLL in 2014. No treatment till June of 2021. Very good response...

https://connect.mayoclinic.org/comment/744205/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

Hello @rmoen, I would like to add my welcome to @dougmann's. Thank you for sharing your...

https://connect.mayoclinic.org/comment/113615/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2017