Blood Cancers & Disorders Support Group

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Comments (384)

I have gotten my platelets down to 388,000 but it has take a long time and...

https://connect.mayoclinic.org/comment/792897/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

It took me several days, but finally found good questions for my PV and Myelofibrosis (9...

https://connect.mayoclinic.org/comment/802843/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Jan 28, 2023

Hi doreen78, First off, no, I have not been told I am in remission from any...

https://connect.mayoclinic.org/comment/1292137/

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28 3:43pm

congrats! I think Posted by samlupowitz @samlupowitz, 2 days ago yep; Florida Here too (Allergy to...

https://connect.mayoclinic.org/comment/802880/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Hello, are you still discussing myelofibrosis? I was diagnosed in 2011. Presumably, it was already in...

https://connect.mayoclinic.org/comment/132611/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2020

Thanks for sharing your story I was diagnosed at 39 and was put on HU and...

https://connect.mayoclinic.org/comment/1354755/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 23 2:51pm

Are you seeing a hematologist? You should be seeing a specialist to get the best information....

https://connect.mayoclinic.org/comment/1362239/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 2 1:52pm

What do you mean they can't do much? That doesn't sound good at all! You need...

https://connect.mayoclinic.org/comment/1102499/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

My heart goes out to you Posted by mtnlife @mtnlife, 6 days ago. I don't know...

https://connect.mayoclinic.org/comment/802874/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...

https://connect.mayoclinic.org/comment/797572/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...

https://connect.mayoclinic.org/comment/1250438/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 4 3:09pm

Has anyone been prescribed a pill DONOZOL to be taken twice per day for Mylofibrosis? If...

https://connect.mayoclinic.org/comment/1131840/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2024

Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...

https://connect.mayoclinic.org/comment/1299114/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: May 7 1:14pm

I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I...

https://connect.mayoclinic.org/comment/1275379/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 6 8:45am

Wow, I am glad I kept checking till I saw all these reports on mylefibrosis. I...

https://connect.mayoclinic.org/comment/894079/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2023

What dietary changes did you make to help with myleofibrosis?

https://connect.mayoclinic.org/comment/854017/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Has anybody had any eye issues with?myelofibrosi?

https://connect.mayoclinic.org/comment/1164296/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024