Blood Cancers & Disorders Support Group

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Comments (1,035)

Good morning, @tyson1221 I know you’re anxious to get a diagnosis because of your low blood...

https://connect.mayoclinic.org/comment/807507/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

hi again. Both doctors are Hematologist/Oncologist. Just two different hospitals. To recap: initial routine blood test:...

https://connect.mayoclinic.org/comment/1382630/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Hello @jlw218 and welcome to Neuroendocrine support group on Mayo Connect. I appreciate your helpfulness to...

https://connect.mayoclinic.org/comment/1177317/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2024

Good morning, @twitt1949 Last week I think we chatted about unexpected bruising, along with the bleeding...

https://connect.mayoclinic.org/comment/1547912/

Discussion: Just noticed this today: MDS and bruising?

Support Group: Blood Cancers & Disorders

Posted: Apr 11 11:18am

Hi @brendamarlene. I read through a few of your past posts in Connect. You’ve certainly been...

https://connect.mayoclinic.org/comment/1551966/

Discussion: MDS and thin skin: What else to watch out for as time goes on?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 10:59am

Bone marrow test is essential to understanding what other issues your marrow is experiencing. It is...

https://connect.mayoclinic.org/comment/1517020/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Mar 1 8:31am

@sonieaml When I was diagnosed with MDS/MPN/sMF in 2017 my Oncologist at Sloan said the life...

https://connect.mayoclinic.org/comment/1551466/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 6:28pm

This is good news! I know the ‘wait & see’ approach can be scary. But your...

https://connect.mayoclinic.org/comment/1365238/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

It is true what Lori said in his reply. I am not a doctor and it...

https://connect.mayoclinic.org/comment/821832/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

I had to wait two years before I started treatment. My hemoglobin dropped to 10. Started...

https://connect.mayoclinic.org/comment/1164875/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

My friend has MDS in the late stages . He is receiving 4-6 units of blood...

https://connect.mayoclinic.org/comment/1120430/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Hi @dwolden, It’s been quite awhile since we chatted. Your husband was just starting chemo for...

https://connect.mayoclinic.org/comment/1080255/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 3, 2024

Please ask your doctor for a CBC with differential (if not doing this routinely already). This...

https://connect.mayoclinic.org/comment/1548870/

Discussion: Just noticed this today: MDS and bruising?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 2:26pm

Hi @ikampel2, welcome to Connect. I moved your post to the Cancer group so that I...

https://connect.mayoclinic.org/comment/94437/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2016

Yes, we will have an appointment on July 26th and another blood draw before that. I...

https://connect.mayoclinic.org/comment/895259/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...

https://connect.mayoclinic.org/comment/256904/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

ron79mds What are your blood numbers? I expect the mentors will be posting the various postings...

https://connect.mayoclinic.org/comment/1443609/

Discussion: 79 year old male with MDS: Worried about increasng fatigue

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2025

My husband has just been diagnosed with MDS after having JAK2 for about ten years. His...

https://connect.mayoclinic.org/comment/1201670/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025