Blood Cancers & Disorders Support Group

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Comments (337)

hmm, 20 tablets a week? I wonder if there was a disconnect in the conversation. Have...

https://connect.mayoclinic.org/comment/1094130/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

I’m also thankful for this group! My very supportive husband found this for me. I was...

https://connect.mayoclinic.org/comment/975461/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Polycythemia SECONDARY,NOT VERA

https://connect.mayoclinic.org/comment/1357371/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025

Hello, I too have Polycythaemia Vera. I was diagnosed just over one year ago when I...

https://connect.mayoclinic.org/comment/787794/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

It does appear that PV can be affected by altitude. Though one study I found has...

https://connect.mayoclinic.org/comment/737086/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2022

I went to my GP with other issues & checked with him re Sleep Apnea. He...

https://connect.mayoclinic.org/comment/1036484/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

I was diagnosed with polysythema Vera a little over 10 years ago. My weight has went...

https://connect.mayoclinic.org/comment/1010259/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Thank you so much for all your encouragement, you are super positive & determined to keep...

https://connect.mayoclinic.org/comment/966802/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

My husband was diagnosed with Polycythemia rubra vera about 12 years ago. He has done extremely...

https://connect.mayoclinic.org/comment/837851/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

Is JAK 2 the same as policythemia vera. My dr. said only that the test was...

https://connect.mayoclinic.org/comment/194307/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

I have polycythmia Vera, and 9 different rare diagnosis. Told my doctor I only collected rare...

https://connect.mayoclinic.org/comment/798518/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

They can tell from your red and white cells, platelets and hematocrit . The name of...

https://connect.mayoclinic.org/comment/986546/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

@simple27 -- Agree that my anemic hematocrit points AWAY from PV. I wish I could convince...

https://connect.mayoclinic.org/comment/231792/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2019

Welcome to Connect, @isabellereine. You’re not crazy but you certainly are complicated! ☺️ For being only...

https://connect.mayoclinic.org/comment/1197279/

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

What does ET stand for? I was diagnosed 2 years ago with Polycythaemia Ruba Vera with...

https://connect.mayoclinic.org/comment/918920/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

Vent all you want here. Firstly, your getting it out and you have people with the...

https://connect.mayoclinic.org/comment/1324057/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025