Blood Cancers & Disorders Support Group

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Comments (486)

If you are 50 years old or even 40 years old, and have platelets that high,...

https://connect.mayoclinic.org/comment/1439273/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2025

Have you been tested for Allergic Contact Dermatitis, ACD? Google the 5 Day Extended Patch Test....

https://connect.mayoclinic.org/comment/959339/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Hi all! I had posted on here a while back but I have had new symptoms....

https://connect.mayoclinic.org/comment/753312/

Discussion: How does leukemia (or similar diseases) present in blood work?

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2022

Hi Ismat, There are so many abbreviations for diseases, it’s a challenge to keep them all...

https://connect.mayoclinic.org/comment/1367584/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Hi @rjperk633 Such a lovely update about your mom! Wishing her a belated 88th birthday. I’m...

https://connect.mayoclinic.org/comment/1314073/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

I was diagnosed two years ago with PVCV but doctored for two years before that with...

https://connect.mayoclinic.org/comment/1086040/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

When I was diagnosed, with PCV and Jak 2 positive, the first thing they did was...

https://connect.mayoclinic.org/comment/891492/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2023

I did not stop taking Hydroxyurea when I had knee surgery nor for any general illnesses...

https://connect.mayoclinic.org/comment/730094/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2022

@jackiecarey hi Jackie I also am 77 and like you have never heard of PV or...

https://connect.mayoclinic.org/comment/1439459/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2025

Hello. I’ve had relatively little itching since I started HU about five years ago. Curiously, my...

https://connect.mayoclinic.org/comment/1375023/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...

https://connect.mayoclinic.org/comment/807931/

Discussion: Possible Polycythemia Tinnitus, Dizziness, Headache, Fatigue

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

I have been trying to get help and told this is what I have, 2 years...

https://connect.mayoclinic.org/comment/806632/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

Thank you @mefely. That's an interesting statement, does not help regrow, but does help keep it....

https://connect.mayoclinic.org/comment/1260618/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

I have CMML/MF and have been dealing with itching for ten years. Jakafi works to some...

https://connect.mayoclinic.org/comment/1431290/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087439/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Welcome to Connect, @wesm. Polycythemia Vera is a condition where your body is producing too many...

https://connect.mayoclinic.org/comment/1094588/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Hello, new to these posts, groups and all of this information. I have had atopic dermatitis...

https://connect.mayoclinic.org/comment/161948/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2019

I was diagnosed with IgA MGUS WHEN I WAS 52. I’m now 61. The typical age...

https://connect.mayoclinic.org/comment/1248366/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

I’m at a loss after being told by my dermatologist she believes I have PV. I...

https://connect.mayoclinic.org/comment/1255864/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2025