Blood Cancers & Disorders Support Group

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Comments (413)

Hello from PA. I have a history that may give you some help with perspective of...

https://connect.mayoclinic.org/comment/81218/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2020

Don't assume I have any medical knowledge about MGUS or anything else. I don't even fully...

https://connect.mayoclinic.org/comment/1180120/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

Hello everyone. I was diagnosed with WM in February of 2023 at the VA Medical Center...

https://connect.mayoclinic.org/comment/1074718/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Welcome to the MGUS club. It does seem a bit maddening to rely on the wait...

https://connect.mayoclinic.org/comment/793954/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Hi @reneebarber77, A few months ago we had a discussion about smudge cells showing up in...

https://connect.mayoclinic.org/comment/781922/

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Hi @donnarichterssyndrome I’m so sorry your CLL has decided to take things up a notch. Most...

https://connect.mayoclinic.org/comment/684456/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2022

I was introduced to multiple myeloma (MM) when my 53 year old daughter was diagnosed with...

https://connect.mayoclinic.org/comment/1441288/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2025

@kayeanna Greetings, welcome to Mayo Clinic Connect. Good gravy, 10 broken bones since Christmas? I certainly...

https://connect.mayoclinic.org/comment/1163717/

Discussion: Mgus and broken bones?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

@lizzyr1114 hello! I think blood disorders in general are pretty much out of the purvey of...

https://connect.mayoclinic.org/comment/987158/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

I’m in Little Rock Arkansas and although the University of Arkansas for Medical Sciences has a...

https://connect.mayoclinic.org/comment/723075/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2022

Hi Debra @oldladydebra1 , welcome to the forum. There are many people living with MGUS here...

https://connect.mayoclinic.org/comment/992118/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

@kediskep, this is what Mayo Clinic says about treating multiple myeloma: "Multiple myeloma treatment isn't always...

https://connect.mayoclinic.org/comment/983987/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2023

@lynne756 Welcome to Mayo Clinic Connect, Lynne! When we get a diagnosis that is confusing, it...

https://connect.mayoclinic.org/comment/785804/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2022

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

Hi. Thank you for connecting. I am not sure I have the ability to take a...

https://connect.mayoclinic.org/comment/1331147/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2025

@genedoms I would add a couple that are specific to MGUS. Remember, MGUS is not cancer....

https://connect.mayoclinic.org/comment/1309315/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2025

@vera101 Welcome to the forum. I am so sorry about your vision problems. One of the...

https://connect.mayoclinic.org/comment/1000528/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

You truly are new to this diagnosis, and of course your responses are fresh. I am...

https://connect.mayoclinic.org/comment/965533/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023

I have smoldering multiple myeloma, 6 autoimmune diseases, diabetes and many more. I have to take...

https://connect.mayoclinic.org/comment/780057/

Discussion: Medicare question: Traditional or Advantage approach better for MPNers

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2022

@tallyteresa My MGUS/myeloma journey started when a new nephrologist recognized concerning blood results. Apparently, they had...

https://connect.mayoclinic.org/comment/793950/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023