Blood Cancers & Disorders Support Group

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Comments (867)

I was diagnosed yesterday 2-15-24 with MGUS, the Hematologist/Oncologist just wants to watch it for 6...

https://connect.mayoclinic.org/comment/1016804/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

I am an active multiple myeloma patient, but also a kidney dialysis patient. For the last...

https://connect.mayoclinic.org/comment/967020/

Discussion: Best Medicare Insurance for MGUS and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Hello members of the multiple myeloma discussion. As I am sure many of you have already...

https://connect.mayoclinic.org/comment/109722/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2019

Welcome @user_ch3a1e07f, @mamaellie and @bjsdancer. @scmsable recently also joined Connect. I moved your messages to this...

https://connect.mayoclinic.org/comment/73346/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

I’m sorry to hear about your diagnosis. The Mayo Clinic is in Scottsdale Arizona and would...

https://connect.mayoclinic.org/comment/1226467/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2025

I was diagnosed with multiple myeloma in March 2025. I've undergone 5 sessions of radiation and...

https://connect.mayoclinic.org/comment/1456437/

Discussion: Anyone had cataract surgery living with MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

I've had IgA kappa light chain MGUS for 8 years (I'm 70). My current kappa is...

https://connect.mayoclinic.org/comment/1168428/

Discussion: Kappa light chains: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

In 2021 I was diagnosed with multiple myeloma and amyloidosis. Stanford put me on a drug...

https://connect.mayoclinic.org/comment/1413538/

Discussion: Has anyone gone through remission without SCT or CAR-T

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2025

If you haven't already, I'd consult with my doctor to make sure it's not an infection....

https://connect.mayoclinic.org/comment/1131956/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2024

I am a 31 year stage 3 myeloma survivor, Mayo second opinions being key. Some lessons...

https://connect.mayoclinic.org/comment/805894/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

It is though the multiple myeloma association at Mayo clinic Rochester Mn and four other hospitals....

https://connect.mayoclinic.org/comment/109781/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2020

My doc is trying to diagnose or rule out a monoclonal protein spike which might indicate...

https://connect.mayoclinic.org/comment/1166730/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2024

Greetings. It’s a lot to take in, isn’t it? The hematologist surely would refer you to...

https://connect.mayoclinic.org/comment/829705/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

@amyboylan1 It's natural to be apprehensive when we get a diagnosis like this. There are a...

https://connect.mayoclinic.org/comment/1112772/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Welcome @cappyak. I found several discussions and comments from members in the forum who have also...

https://connect.mayoclinic.org/comment/1371860/

Discussion: Is anyone dealing the effects of Xgeva?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

Hi claydavis. We have the same last name and same disease! Was diagnosed with multiple myeloma...

https://connect.mayoclinic.org/comment/1479021/

Discussion: Anyone have experience with CAR-T therapy for multiple myeloma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 10 2:30pm

@baps6194 hello Sean and welcome to the Mayo Clinic Connect. Boy I remember when I had...

https://connect.mayoclinic.org/comment/1333428/

Discussion: In regard to lab results

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2025

I, too, am 72 and was diagnosed 3 months ago with MGUS with iron defiency. Had...

https://connect.mayoclinic.org/comment/894625/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

I was diagnosed with MGUS recently based on an elevated kappa lambda ratio and elevated kappa...

https://connect.mayoclinic.org/comment/1038588/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2024

Hi all, you may also be interested in these related discussions: - Any suggestions to alleviate...

https://connect.mayoclinic.org/comment/1372545/

Discussion: Is anyone else suffering from bone pain due to multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2025