Blood Cancers & Disorders: Discussions | Page 16

Dear Tokyolin: I am “flynnconn” and you can check out my specifics in 2 previous posts...

https://connect.mayoclinic.org/comment/882771/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Aloha @shenriq I am 67 and was diagnosed with E.T. in 1982.. so been on Hydroxyurea...

https://connect.mayoclinic.org/comment/1353524/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 21 6:11pm

Also, I might add that a few years ago they thought it may have morphed into...

https://connect.mayoclinic.org/comment/1051289/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Welcome to Connect @kwmotley Reading through your comments it looks like you’re taking a daily aspirin...

https://connect.mayoclinic.org/comment/974721/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

Good morning @ruthiek519 Well, of all the gifts you could have gotten for your 72nd b-day,...

https://connect.mayoclinic.org/comment/1312373/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25 9:16am

Hi @1pearl, There are a number of different blood conditions and cancers with subsets to each....

https://connect.mayoclinic.org/comment/1348374/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14 7:13pm

According to the Leukemia and Lymphoma Society and by the opinion of most doctors in the...

https://connect.mayoclinic.org/comment/1263596/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 21 3:00pm

I was just diagnosed last week with ET (CALR mutation) as a result of a marrow...

https://connect.mayoclinic.org/comment/776073/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2022

1pearl, wishing you well with your bone marrow biopsy. Learning more about your condition is so...

https://connect.mayoclinic.org/comment/1225947/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 31 6:54am

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Not sure if this is the place to write a follow up note. I have written...

https://connect.mayoclinic.org/comment/194314/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2019

Hello Colleen, Thank you for your reply. Looking forward to msg someone who has used this...

https://connect.mayoclinic.org/comment/969263/

Discussion: VonJo (pacritinib) effects

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2023

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021

Thanks. I am new to this and definitely want to see the amin discussion so you...

https://connect.mayoclinic.org/comment/203951/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Hello @akeytoo, I don’t think anyone is fond of chemo treatments but they can be absolutely...

https://connect.mayoclinic.org/comment/911908/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

I was diagnosed with ET when I was 50. My platelet level was successfully controlled with...

https://connect.mayoclinic.org/comment/1327870/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 15 3:39pm

Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...

https://connect.mayoclinic.org/comment/1294207/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 1 10:39am

Your health picture sounds exactly like mine. I’m below normal for hemoglobin and red cells. Platelets...

https://connect.mayoclinic.org/comment/1297988/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: May 6 8:02am

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17 1:30pm

Blood Cancers & Disorders Support Group