Blood Cancers & Disorders Support Group | Page 16

@nisi I just posted this to someone asking about Jakafi and ET: “ I was placed...

https://connect.mayoclinic.org/comment/1527366/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 10:17am

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Saw haematologist all good. I still have essential thrombocythemia. Tests show slight scaring of the bone...

https://connect.mayoclinic.org/comment/1206674/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

There is so much info on the internet that it will be exhausting to sort through...

https://connect.mayoclinic.org/comment/1369812/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

Hi @doreen78 and welcome to Connect. I think I’m as confused as you are about your...

https://connect.mayoclinic.org/comment/1291816/

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2025

Hi, I’ve lived a relatively good life after being diagnosed with ET at 20 and I’m...

https://connect.mayoclinic.org/comment/958246/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

I was diagnosed with Myelofibrosis last summer. My platelets were high and I had funny looking...

https://connect.mayoclinic.org/comment/1503617/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 11:28pm

Hi @nisi Welcome to Mayo Connect. I’m so sorry to see that there’s been a change...

https://connect.mayoclinic.org/comment/1523951/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 11:45am

Just curious if your doc has suggested trying something other than hydroxyurea? Dad also had ET,...

https://connect.mayoclinic.org/comment/1030898/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Interesting you mention this. Yes yes and yes. With it radiating to my knee conceded me...

https://connect.mayoclinic.org/comment/1341397/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2025

Lori, I wanted to update you on my husbands progress of his myelofibrosis. He finished his...

https://connect.mayoclinic.org/comment/1300132/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 8, 2025

Hi, I think it is a good idea to have a Bone Marrow Biopsy before treatment...

https://connect.mayoclinic.org/comment/1270976/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2025

ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...

https://connect.mayoclinic.org/comment/901889/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

I was diagnosed with ET in 1992 and took it for about 5 years. I had...

https://connect.mayoclinic.org/comment/1416110/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Hi all, only the last two questions are relevant. I too had a bone marrow biopsy...

https://connect.mayoclinic.org/comment/1041299/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024

@heimbca Yes, that’s Jakafi. Not for everyone. Wasn’t for me. Felt like it was killing me....

https://connect.mayoclinic.org/comment/1503650/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 12 4:33am

et1055, I found this comment from Colleen, one of our monitors, on another thread. I myself...

https://connect.mayoclinic.org/comment/1168338/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

I was diagnosed 3 years ago with secondary (non cancerous) PV. I do not have the...

https://connect.mayoclinic.org/comment/870096/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

@loribmt you are so helpful. Thank you for the information. It certainly seems a small thing...

https://connect.mayoclinic.org/comment/1370870/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 14, 2025