Blood Cancers & Disorders Support Group

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Comments (2,262)

ET stands for Essential Thrombocytosis. , I have this also and with a JAK2 mutation. If...

https://connect.mayoclinic.org/comment/919462/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

I hope you can trust the doctors to help you. Did you have ET first and...

https://connect.mayoclinic.org/comment/1227254/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2025

@sarahgault I just think it’s a good idea to talk with your doctor about this. Anytime...

https://connect.mayoclinic.org/comment/1557496/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Thank you for sharing that. Really good to hear there is life after stroke. MPL is...

https://connect.mayoclinic.org/comment/1064099/

Discussion: Essential Thrombocythemia and relationship to stroke

Support Group: Blood Cancers & Disorders

Posted: May 8, 2024

For 10 yrs my platelets ranged 950-1200. I was diagnosed with ET at age 41 back...

https://connect.mayoclinic.org/comment/950682/

Discussion: Needing help understanding ET and how it affects my life

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

My hemotologist/oncologist calls ET an incurable but treatable blood disorder. I have had it for at...

https://connect.mayoclinic.org/comment/910633/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

Hello. I was also diagnosed in the UK with ET 10 days ago. I am 54...

https://connect.mayoclinic.org/comment/57953/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2020

When diagnosed, I too was told KEEP MOVING! Our ET diagnosis makes CV-strengthening exercise essential.

https://connect.mayoclinic.org/comment/1007684/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

@nohrt4me BTW Are there any studies about the impact of nutrition and sports on ET on...

https://connect.mayoclinic.org/comment/1488712/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 10:26am

I am confused about ET being a cancer my hemp/onco told me it is not a...

https://connect.mayoclinic.org/comment/1281654/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

Hello, anavleek. An ET diagnosis is really scary, especially since you'd probably never realized such whacky...

https://connect.mayoclinic.org/comment/1278323/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2025

ET complicates things. I was always very high energy until I hit 55. Then the fatigue...

https://connect.mayoclinic.org/comment/947217/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2023

I've been treated for thrombocytosis since 2011, so I shall consider it ET, even though my...

https://connect.mayoclinic.org/comment/1050285/

Discussion: Anybody else have Factor V Leiden?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2024

Sherry, did you say you were diagnosed with ET? Curious if you had high WBC as...

https://connect.mayoclinic.org/comment/895939/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

ET is definitely classified as a blood cancer and I have read MPN experts refer to...

https://connect.mayoclinic.org/comment/57942/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2020

Oh my! Thank you so much for posting this. Recently diagnosed with ET & you really...

https://connect.mayoclinic.org/comment/1039628/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

Having suffered with asthma since 2 years old it went away in my 30s but now...

https://connect.mayoclinic.org/comment/930593/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Thanks for your reply. I have ET but no symptoms yet so only baby aspirin. Have...

https://connect.mayoclinic.org/comment/1284230/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2025

@janemc I recently went to apply for more life insurance. They wanted to know if I'd...

https://connect.mayoclinic.org/comment/1534388/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 12:17pm

@eileen11108 Eileen, Your case sounds similar to mine. I was diagnosed in 2023, ET/Jak2, and take...

https://connect.mayoclinic.org/comment/1557630/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 1 day ago