Blood Cancers & Disorders Support Group

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Comments (307)

Oh yes, I take pictures and document everything. My BP is stable. I wish they'd see...

https://connect.mayoclinic.org/comment/892472/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

I was diagnosed with both Amylodosis and smoldering myeloma in June 2019 any hints on diet...

https://connect.mayoclinic.org/comment/81211/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

Would like to know what type of medication are prescribe for AMYLODOSIS ATTR

https://connect.mayoclinic.org/comment/1265406/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

Hello, I was just diagnosed with MGUS. I am 42 yr old white woman. Weight loss...

https://connect.mayoclinic.org/comment/937404/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

They have light therapy and chemical peels. I myself prefer the chemical peels because when the...

https://connect.mayoclinic.org/comment/880961/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

If you have bilateral carpal tunnel that is a red flag for ATTR. I had a...

https://connect.mayoclinic.org/comment/1290539/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2025

BTW, if you read NIH funded or other research the 2020 and newer pubs are good...

https://connect.mayoclinic.org/comment/1159127/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2024