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Comments (362)
Hello @cgpak, I can understand your wanting to know about the experience of others with ET....
https://connect.mayoclinic.org/comment/337139/
My hubby was told like 20 years ago by his former PCP that his blood was...
https://connect.mayoclinic.org/comment/740738/
Thank you Ms. Young, As you may know I am new to this website. My Wife...
https://connect.mayoclinic.org/comment/911895/
Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...
https://connect.mayoclinic.org/comment/1148497/
Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...
https://connect.mayoclinic.org/comment/879767/
I was first alerted in May 2022 that all red blood count were high. No one...
https://connect.mayoclinic.org/comment/825133/
Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....
https://connect.mayoclinic.org/comment/1367613/
Ok from what I’m understanding is that you’ve been diagnosed with polycythemia vera. This is a...
https://connect.mayoclinic.org/comment/1137715/
Mtnlife, I too had no symptoms of anything prior to a routine blood test. in March...
https://connect.mayoclinic.org/comment/783874/
My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...
https://connect.mayoclinic.org/comment/194297/
Good questions. I’m not a medical doctor. My career was at the diagnostic end (lab). Therefore,...
https://connect.mayoclinic.org/comment/981500/
So I have a quick question for you, knowing your background. I was diagnosed with polycythemia...
https://connect.mayoclinic.org/comment/980944/
I was diagnosed with PV in February 2021. My hematologist goes by my hemoglobin number, which...
https://connect.mayoclinic.org/comment/843409/
@chorusgirl500 There are different forms of polycythemia. Primary Polycythemia Vera generally involves an acquired mutation in...
https://connect.mayoclinic.org/comment/1467028/
I have a different diagnosis than you so you can look at my list and substitute...
https://connect.mayoclinic.org/comment/1308354/
Hi @jeanette1954 A diagnosis of Polycythemia Vera (PV) usually indicates that the person has an underlying...
https://connect.mayoclinic.org/comment/1494793/
Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...
https://connect.mayoclinic.org/comment/188873/
Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...
https://connect.mayoclinic.org/comment/969785/
Wow, that’s not very helpful! That’s the old “Take 2 aspirin and call me in the...
https://connect.mayoclinic.org/comment/1136147/
To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...
https://connect.mayoclinic.org/comment/719531/
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