Blood Cancers & Disorders Support Group

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Comments (310)

Hi, Hello, My neurologist recently diagnosed me with MGUS. Also, he previously determined I have small...

https://connect.mayoclinic.org/comment/922903/

Discussion: Wooziness and MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

I have MGUS and suffer of peripheral neuropathy (PN) for at least 5 years. My PN...

https://connect.mayoclinic.org/comment/899330/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Hello new members @steffiney and @milo3986 Lori is very experienced and has a depth of information...

https://connect.mayoclinic.org/comment/890559/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Hi there Shawnnyce, I’m sorry to hear firstly that the doc didn’t inform you of the...

https://connect.mayoclinic.org/comment/888521/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Hi sliddy47, I’m really sorry to hear that😔 I hope you can find a smart, empathetic...

https://connect.mayoclinic.org/comment/888268/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

So, I have been taking 4500mg of Turmeric Root Extract (95% Curcuminoids with Black Pepper Extract...

https://connect.mayoclinic.org/comment/868334/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 28, 2023

Hi There. My name is Tracey. I was diagnosed at 50,with MGUS. The proper blood tests...

https://connect.mayoclinic.org/comment/828732/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

I was diagnosed 6 years ago but wonder if the Oncologist diagnosed correctly?? because I have...

https://connect.mayoclinic.org/comment/74591/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2019

Hi cindylb, I saw your post today...im new here and have MGUS. The one thing I...

https://connect.mayoclinic.org/comment/161945/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2018

I have widespread Lived Reticularis or vasculopathy whichever doctor I see< It was originally diagnosed by...

https://connect.mayoclinic.org/comment/52522/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2017

We all are so confused by this and honestly do not know were to turn. Since...

https://connect.mayoclinic.org/comment/74542/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2016

Thank you for the comments I dont know if everyone has alot of pain but I...

https://connect.mayoclinic.org/comment/1303901/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2025

Can I please interject? Back in 2013 I had a 10 day bout with C difficile...

https://connect.mayoclinic.org/comment/1012076/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

I have had MGUS since 2017. MY M spike showed up then. The M spike is...

https://connect.mayoclinic.org/comment/1249566/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

Thanks for providing your test data. I figured you had a good reason for having your...

https://connect.mayoclinic.org/comment/1251392/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

I am also taking turmeric 1200 mg per day and following mostly plant based diet organic...

https://connect.mayoclinic.org/comment/1199662/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Hello everyone, I'm a 49 yo f and was diagnosed with MGUS in April 2023. In...

https://connect.mayoclinic.org/comment/1247349/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2025

I have MGUS IgG Lambda, low levels of IgA. I’m on the cusp of SMM according...

https://connect.mayoclinic.org/comment/899437/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

My hematologist expressed concern that my MGUS could be morphing into smoldering myeloma. I went back...

https://connect.mayoclinic.org/comment/1245356/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

@314nana2one Greetings and welcome to Mayo Clinic’s Connect support for Blood cancers and disorders. I’m so...

https://connect.mayoclinic.org/comment/1374451/

Discussion: MGUS, pain and weight loss

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2025