Blood Cancers & Disorders Support Group

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Comments (2,233)

I only know a few months that a have MGUS. I‘m very anxious. I have never...

https://connect.mayoclinic.org/comment/1189629/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024

Although my doctors have all told me my numbers, M-Spikes, etc., do not indicate malignancy and...

https://connect.mayoclinic.org/comment/1420149/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Welcome, @emurrell65. I can imagine you're nervous, not to mention confused when your doctor is not...

https://connect.mayoclinic.org/comment/830382/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

@amberl99 hello! Totally agree! But this is one of the explanations you will receive quite often...

https://connect.mayoclinic.org/comment/1429949/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Good morning Free spirit. I was diagnosed IgM Kappa in 2012. I was stable until 2023...

https://connect.mayoclinic.org/comment/1353132/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

I've have been denied twice and was offered a very expensive policy due to my MGUS

https://connect.mayoclinic.org/comment/858729/

Discussion: Anyone been denied life insurance based on your MGUS dx?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

I have had two bouts of trigeminal neuralgia. I never thought to connect it with MGUS.

https://connect.mayoclinic.org/comment/851643/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

I would truly appreciate any information on diet and supplements and how they can relate to...

https://connect.mayoclinic.org/comment/754397/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

Does anybody else get stingin joints with their MGUS, particularly behind the knees and elbow area?

https://connect.mayoclinic.org/comment/1128432/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2024

Welcome to Connect,@j2c There are a number of other members in the MGUS support group who...

https://connect.mayoclinic.org/comment/990715/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

@suppiskey2surv I'm surprised you haven't had a Bone Marrow Biopsy (BMB) yet. On my very first...

https://connect.mayoclinic.org/comment/1422300/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

That’s good news! May I ask what your FLCs were initially, and what they are now?...

https://connect.mayoclinic.org/comment/1336561/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

Yes I have MGUS and recurring mouth sores. Not as often now. A month ago was...

https://connect.mayoclinic.org/comment/1144140/

Discussion: Recurring severe mouth ulcers and MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2024

As I await my referral to a hematologist for my MGUS (diagnosed 4 years ago), would...

https://connect.mayoclinic.org/comment/921032/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2023

@barbarian1 the “m” paraprotein. https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362

https://connect.mayoclinic.org/comment/1445362/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025

I hope there are no negative effects from MGUS diagnosis We carry on with our lives...

https://connect.mayoclinic.org/comment/1340943/

Discussion: Lower leg blood clot. Occlusion DVT thrombotic

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2025

Excess weight increases the risk of a number of different cancers. Is your MAGUS the same...

https://connect.mayoclinic.org/comment/1234268/

Discussion: MGUS progression and excess weight

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

Because I am IgM, the doctors think it is most likely that my PN is due...

https://connect.mayoclinic.org/comment/836474/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

@diana1958 Welcome to Mayo Clinic Connect! It is almost always a surprise when we are handed...

https://connect.mayoclinic.org/comment/1276440/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

S. I suggest you chat with your doctor. I found these two references that you may...

https://connect.mayoclinic.org/comment/889926/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023