Blood Cancers & Disorders Support Group

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Comments (2,297)

Thank you Ginger. Can I ask how long you’ve had MGUS?

https://connect.mayoclinic.org/comment/1141673/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

They have you on chemo with a negative biopsy? Are the meds for symptoms associated with...

https://connect.mayoclinic.org/comment/933604/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Hi Susan: I was diagnosed about 2 years ago with MGUS from routine physical- trying to...

https://connect.mayoclinic.org/comment/861128/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023

I am convinced neuropathy can be related to free light chains and antibodies(in my case igM)...

https://connect.mayoclinic.org/comment/987941/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Welcome to Connect, @monte22. MGUS generally is perceived as not having many symptoms but as other...

https://connect.mayoclinic.org/comment/953547/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2023

hi, I am not really understanding Chip either. It’s similar to MGS because they are both...

https://connect.mayoclinic.org/comment/1116759/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2024

@samraz, I thought I'd tag you on this discussion to connect you with others living with...

https://connect.mayoclinic.org/comment/817673/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

this gives some good diagnostic information about MGUS. https://ascopubs.org/doi/10.1200/EDBK_349643

https://connect.mayoclinic.org/comment/1267675/

Discussion: MGUS Diagnosis Criteria

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2025

@pnpam75 MM is shorthand for Multiple Myeloma. MGUS is often considered a precursor to this, a...

https://connect.mayoclinic.org/comment/1062610/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Welcome, @emurrell65. I can imagine you're nervous, not to mention confused when your doctor is not...

https://connect.mayoclinic.org/comment/830382/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

I have been diagnosed with mgus but don't fully understand what it is all about

https://connect.mayoclinic.org/comment/977013/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2023

I’m not really sure what markers. I was diagnosed with MGUS 6 months ago

https://connect.mayoclinic.org/comment/1183827/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

Although my doctors have all told me my numbers, M-Spikes, etc., do not indicate malignancy and...

https://connect.mayoclinic.org/comment/1420149/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Welcome to Connect,@j2c There are a number of other members in the MGUS support group who...

https://connect.mayoclinic.org/comment/990715/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

@suppiskey2surv I'm surprised you haven't had a Bone Marrow Biopsy (BMB) yet. On my very first...

https://connect.mayoclinic.org/comment/1422300/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

That’s good news! May I ask what your FLCs were initially, and what they are now?...

https://connect.mayoclinic.org/comment/1336561/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

See a myeloma specialist. If they suggest it, follow their very knowledgeable advice. I’m glad I...

https://connect.mayoclinic.org/comment/1324346/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

I only know a few months that a have MGUS. I‘m very anxious. I have never...

https://connect.mayoclinic.org/comment/1189629/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024

@amberl99 hello! Totally agree! But this is one of the explanations you will receive quite often...

https://connect.mayoclinic.org/comment/1429949/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Good morning Free spirit. I was diagnosed IgM Kappa in 2012. I was stable until 2023...

https://connect.mayoclinic.org/comment/1353132/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

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