Blood Cancers & Disorders Support Group

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Comments (1,035)

Happy Birthday! We turn 70 a few weeks apart. Mine is coming up just before the...

https://connect.mayoclinic.org/comment/986710/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

I did have a bone marrow biopsy that confirmed my mds. My Hematologist suggested chemo (every...

https://connect.mayoclinic.org/comment/1198051/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

I'm on my 8th injection of Aranesp and have had no side effects at all. I...

https://connect.mayoclinic.org/comment/1193500/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Good morning, Howard. I’ve only been able to find one reply with a member who had...

https://connect.mayoclinic.org/comment/825941/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

My original MDS diagnosis indicated a higher level of risk. My local hematologist suggested treatment with...

https://connect.mayoclinic.org/comment/235270/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Hi @emaddox Relentless itching is the worst, isn’t it? I can tolerate pain over itching any...

https://connect.mayoclinic.org/comment/923860/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Hi Debbie, Don’t have a clue what caused my MDS. I had breast cancer 17 years...

https://connect.mayoclinic.org/comment/1379844/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2025

I am a 31 year stage 3 multiple myeloma survivor, 11 years ago I was diagnosed...

https://connect.mayoclinic.org/comment/816656/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

I was diagnosed with low platelets and MDS in 2012 and my local transplant oncologist advised...

https://connect.mayoclinic.org/comment/757096/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

I couldn't say since I am not a Dr. If you have low risk MDS, 6...

https://connect.mayoclinic.org/comment/1382749/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

I am in the same boat. I was recently diagnosed with MDS with anemia. It's a...

https://connect.mayoclinic.org/comment/1366073/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2025

Hi @hpjohnson85, welcome to Connect. MDS (myelodyplastic syndromes) is actually a group of blood cancers that...

https://connect.mayoclinic.org/comment/1405840/

Discussion: Life Expectancy of MDS-1 Patients

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2025

I have low risk MDS and have been receiving treatments of Reblozyl These treatments have been...

https://connect.mayoclinic.org/comment/1080366/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Have had MDS for a couple of years with no symptoms. Lately have about a dozen...

https://connect.mayoclinic.org/comment/1205915/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2025

cindyborch, Tomorrow for sure you will have great informative posts to ease your mind. Many of...

https://connect.mayoclinic.org/comment/1282903/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Hi @katgob! You were in my notes to check in with you soon because I knew...

https://connect.mayoclinic.org/comment/1015879/

Discussion: Bone marrow transplants for CMML

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 14, 2024

I am 76 and have MDS with anemia. My hemoglobin dropped to 9.3 so my doctor...

https://connect.mayoclinic.org/comment/1477438/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Jan 8 11:51am

Hi @asarnesejr - given your anxiety, why don’t you ask for a sooner appointment and do...

https://connect.mayoclinic.org/comment/1529312/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Mar 17 4:46pm

Has anyone else had problems with joint pain while taking Vidaza (Azacitidine) infusions for MDS? I...

https://connect.mayoclinic.org/comment/1548915/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 12 3:13pm

Have MDS … have done bone marrow biopsy with a lidocaine injection … a little uncomfortable...

https://connect.mayoclinic.org/comment/1149990/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024