Blood Cancers & Disorders Support Group

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Comments (306)

I am 68 years old, I have MGUS and arrhythmogenic cardiomyopathy. Recent immunology shows my lambda...

https://connect.mayoclinic.org/comment/1370729/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2025

I have been having an assortment of apparently unrelated minor symptoms and my PCP is dismissive...

https://connect.mayoclinic.org/comment/1305671/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2025

Jill6, The first bit of time after such a DX is rough. There are many frightening...

https://connect.mayoclinic.org/comment/104697/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2017

Thank you for asking. My appointment went great. The doctor is the head of the department...

https://connect.mayoclinic.org/comment/1317939/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

The loss of the Y chromosome in males is a hot topic among geneticist. Why is...

https://connect.mayoclinic.org/comment/1222048/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

@Jilljohnson61401 Are you still on? I am still around, but still impatiently waiting and watching. Mayo,...

https://connect.mayoclinic.org/comment/104701/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2017

Hi, I also amonthins treatment with AL Amyloidosis. Everybody is different, but generally speaking days two...

https://connect.mayoclinic.org/comment/1296892/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...

https://connect.mayoclinic.org/comment/987954/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

I have sarcoidosis (cardiac w/pacemaker) which is an inflammatory/autoimmune disease. It sometimes goes hand in hand...

https://connect.mayoclinic.org/comment/1215885/

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025

Thank you for your comment. I also super from many auto immune disorders. Graves. Endometriosis. Had...

https://connect.mayoclinic.org/comment/1216598/

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

In 2010 I became very sick and lethargic having to go on medical disability from my...

https://connect.mayoclinic.org/comment/104732/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2018

Wow, y’all are so inspiring. I was Diagnosed with Sytemic Amyloidosis AL. It is not a...

https://connect.mayoclinic.org/comment/1058433/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 27, 2024

Thank you. I have been educating myself daily on AL and its affect on the body...

https://connect.mayoclinic.org/comment/88320/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2019

I am so glad to find and join this group. I have struggled with doctors not...

https://connect.mayoclinic.org/comment/884229/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Hi, Dell. I really feel badly for you. AML seems to be a really tough thing....

https://connect.mayoclinic.org/comment/163802/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2017

Stanford diagnosed me with light chain amyloidosis and multiple myeloma. They recommended dara-CyBorD which consists of...

https://connect.mayoclinic.org/comment/1532424/

Discussion: What should I expect from Dara-CyBorD treatment for AL Amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21 10:24pm

I was diagnosed with Systemic Amyloidosis AL March 2024. @ the Mayo Clinic Rochester. What a...

https://connect.mayoclinic.org/comment/1392891/

Discussion: Treatment approaches for MRD positive AML in remission

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2025

Hi, @pmm - what to do if the hematologists/oncologists at your clinic "don't treat MGUS"? I...

https://connect.mayoclinic.org/comment/987303/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

Judy, sadly that’s par for the course with some of our blood diseases…fatigue. And with that...

https://connect.mayoclinic.org/comment/724281/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2022

Hi @rdiehl. With a your new diagnosis, and your concerns that this may be familial, do...

https://connect.mayoclinic.org/comment/1317764/

Discussion: What is the next step for amyloidosis - unknown type?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

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