Blood Cancers & Disorders Support Group

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Comments (319)

@nsnipes11 (Nan), I just had another thought. It's quite possible that your primary care doctor just...

https://connect.mayoclinic.org/comment/995165/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Knowledge is power. You’ll find the doctors and the medical teams at Mayo are very approachable,...

https://connect.mayoclinic.org/comment/726744/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022

I was at a routine visit in January 2024 and my cardiologist said I needed a...

https://connect.mayoclinic.org/comment/1556433/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Apr 21 8:19pm

I was diagnosed in 2021 by Stanford Amyloid Center. They recommended the regimen called dara-CyBorD and...

https://connect.mayoclinic.org/comment/1519050/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 11:37pm

Hello Bob, so sorry to hear of your wife’s diagnosis. Hopefully her treatment can be performed...

https://connect.mayoclinic.org/comment/88336/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2019

Hi Susan, I’m sorry to hear you’re also not being heard, and I hope you have...

https://connect.mayoclinic.org/comment/883939/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

I do think there is more happening with some of us than the research or statistics...

https://connect.mayoclinic.org/comment/1061564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

Hi, Jill and Board. Back again Not much has changed with me. Except that I have...

https://connect.mayoclinic.org/comment/104706/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2017

My husband has been diagnosed with cardiac WTTR amyloidosis and AL confirmed by myocardium biopsies,which is...

https://connect.mayoclinic.org/comment/624591/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2021

Well, Dell, I always try to help. I am 77 (April), and I actually know very...

https://connect.mayoclinic.org/comment/163804/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2017

Hi Lori thank you for the welcome. I'm a 73 year old male. My journey started...

https://connect.mayoclinic.org/comment/782404/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

I am 68 years old, I have MGUS and arrhythmogenic cardiomyopathy. Recent immunology shows my lambda...

https://connect.mayoclinic.org/comment/1370729/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2025

I have been having an assortment of apparently unrelated minor symptoms and my PCP is dismissive...

https://connect.mayoclinic.org/comment/1305671/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2025

Jill6, The first bit of time after such a DX is rough. There are many frightening...

https://connect.mayoclinic.org/comment/104697/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2017

Thank you for asking. My appointment went great. The doctor is the head of the department...

https://connect.mayoclinic.org/comment/1317939/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

The loss of the Y chromosome in males is a hot topic among geneticist. Why is...

https://connect.mayoclinic.org/comment/1222048/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

@Jilljohnson61401 Are you still on? I am still around, but still impatiently waiting and watching. Mayo,...

https://connect.mayoclinic.org/comment/104701/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2017

Hi @drw32, I am glad to see you find Connect and others with Cardiomyopathy of Transthyretin-Mediated...

https://connect.mayoclinic.org/comment/1530239/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:17pm

Hi, I also amonthins treatment with AL Amyloidosis. Everybody is different, but generally speaking days two...

https://connect.mayoclinic.org/comment/1296892/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

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