Blood Cancers & Disorders Support Group | Page 14

Would be interested. I have severe scoliosis. However, Dad also had ET, and no scoliosis or...

https://connect.mayoclinic.org/comment/1100203/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Hello. I work full time. I am 61 never have i been sick then getting this...

https://connect.mayoclinic.org/comment/1010579/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

My oncologist suggested probiotics after I developed some bowel distress after a few years on HU....

https://connect.mayoclinic.org/comment/1219610/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

I've checked with AI ChatGBT...it gave a lot of info. Here is some of it... Why...

https://connect.mayoclinic.org/comment/1513662/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 12:49pm

Just curious if your doc has suggested trying something other than hydroxyurea? Dad also had ET,...

https://connect.mayoclinic.org/comment/1030898/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

@skossaz I have ET also with Jake 2 I’ve been on hydro 500mg everyday for one...

https://connect.mayoclinic.org/comment/1511928/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 10:16am

Thank you: yes I did have a confirm diagnosis of ET in 2021 via blood and...

https://connect.mayoclinic.org/comment/797085/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2023

Thank you for your reply. It’s so helpful to hear how others are doing with ET...

https://connect.mayoclinic.org/comment/787271/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

@arti4 Hello! I was diagnosed with ET w/JAK2 just recently and my main symptom is lightheadedness.

https://connect.mayoclinic.org/comment/1287743/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2025

Does your doc have a patient portal you can email? That service is good for questions...

https://connect.mayoclinic.org/comment/736334/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2022

Waiting for approval for biopsy. Diagnosed with ET by bloodwork. My message to the oncologist was...

https://connect.mayoclinic.org/comment/848584/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

From Esperanzam : what other medications are you refering to that can help slow the progression...

https://connect.mayoclinic.org/comment/792323/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Changing the subject completely (apologies), is anyone dealing with aching fingers, joints and bones, making normal...

https://connect.mayoclinic.org/comment/1512991/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 4:04pm

Hello, lexsjx. I am so sorry for your health issues, and even more sorry about the...

https://connect.mayoclinic.org/comment/1496053/

Discussion: Misdx with VWD at 14, in my late 20’s now looks like ET/or MPN. help?

Support Group: Blood Cancers & Disorders

Posted: Feb 2 6:11am

My hematology/Oncology doctor as well as our blood lab facility has said anything under 50 is...

https://connect.mayoclinic.org/comment/1545657/

Discussion: Iron Deficiency Anemia: At what ferritin level do you get infusions?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 11:03am

I think people have every right to treat their ET the way they want. I also...

https://connect.mayoclinic.org/comment/929305/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Im given aspirin and posibly jak2 might b repeated , do these MPNs progress with time...

https://connect.mayoclinic.org/comment/194360/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2020

I had fatigue initially but after being on hydroxyurea for 6 months (500 mg day) and...

https://connect.mayoclinic.org/comment/1538746/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 11:36am

Living with ET for 9 years and have not spoken to anyone else with this disorder....

https://connect.mayoclinic.org/comment/781906/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

I am and 82 year old female. I have been living with ET for over 11...

https://connect.mayoclinic.org/comment/1498465/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 6:52am