Blood Cancers & Disorders Support Group

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Comments (277)

Hi I was diagnosed with MGUS last year by my neurologist. He sent me to my...

https://connect.mayoclinic.org/comment/1339488/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 2 6:39am

Is there anyone here with a confirmed diagnosis of multiple myeloma with amylidosis?

https://connect.mayoclinic.org/comment/869018/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Hi, I have high Kappa 2.62 and high kappa/lambda ratio 1.94. My last blood work was...

https://connect.mayoclinic.org/comment/1181038/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

Hello, I was just diagnosed with MGUS. I am 42 yr old white woman. Weight loss...

https://connect.mayoclinic.org/comment/937414/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Hello, I was just diagnosed with MGUS. I am 42 yr old white woman. Weight loss...

https://connect.mayoclinic.org/comment/937408/

Discussion: MGUS at young age

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Hi this is all new to me any info that I can get will be a...

https://connect.mayoclinic.org/comment/885698/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2023

Thank you Rae. I am not on any chemo. Went in because I wasn’t feeling good...

https://connect.mayoclinic.org/comment/937486/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Thanks Kay, I was diagnosed with AL amyliodosis on October 9th, now it is Oct 24th....

https://connect.mayoclinic.org/comment/1161982/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2024

Thank you for your support. My local hematologist/oncologist sent me to Mayo. So I was there...

https://connect.mayoclinic.org/comment/938661/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2023

I am a daughter of a father who had MM many years ago, and was not...

https://connect.mayoclinic.org/comment/50126/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2012

Would like to know what type of medication are prescribe for AMYLODOSIS ATTR

https://connect.mayoclinic.org/comment/1265406/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 7:00am

Oh yes, I take pictures and document everything. My BP is stable. I wish they'd see...

https://connect.mayoclinic.org/comment/892472/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

I was diagnosed with both Amylodosis and smoldering myeloma in June 2019 any hints on diet...

https://connect.mayoclinic.org/comment/81211/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

If you have bilateral carpal tunnel that is a red flag for ATTR. I had a...

https://connect.mayoclinic.org/comment/1290539/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Apr 26 2:17pm

Hello, I was just diagnosed with MGUS. I am 42 yr old white woman. Weight loss...

https://connect.mayoclinic.org/comment/937404/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

They have light therapy and chemical peels. I myself prefer the chemical peels because when the...

https://connect.mayoclinic.org/comment/880961/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

BTW, if you read NIH funded or other research the 2020 and newer pubs are good...

https://connect.mayoclinic.org/comment/1159127/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2024